Re: Outrageous and Criminal - A child's sad death in a Florida ...

[Guest guest]

Forgive me if this is a stupid question but did these deficiencies and atrocities exist to this extent BEFORE Governor ?

I am sick to my stomach after reading this.

How can the State of Florida and particularly the Agency for Health Care Administration (AHCA) justify this? They are actually upset that the Justice Department is questioning the systematic placement of children in nursing homes, over appropriately funding them to stay in their family homes with the appropriate supports. They are willing to pay a nursing home up to $500.00 a day to care for (which they obviously don't) children that are medically fragile and they won't pay a family more than $40.00 a day? Yes, you read that correctly. If your child is living at home and is under 18 years of age, Medicaid Waiver/State Plan Medicaid pays $14,900 a year. Maybe they will pay additionally for some nursing services, if you file an appeal and hire an attorney. Mostly, children that are medically fragile and need considerable amount of care are not allowed to receive it in the family home. No, they have to go to places like the ones listed below.

AHCA actually stated that these places are strictly regulated. Read below and you can see that is not true. In one case a child was found to have a Christmas light lodged in her lung and diaper fragments in her throat and the nursing home was fined a whopping $3,750.00. WHAT!!!!!!!! They get $500.00 a day and they are fined basically for less than 8 days of the care they charge for? If you don't want to do the math, they charge the state $182,500 a year and almost killed her.

Now a child has died. What is AHCA going to do to defend this one? The day she arrived at the nursing home, which was supposed to be better than the family home and the state determined that the family couldn't care for the child at home, she died.

To top it all off, AHCA fined the home $7,500, but state that the home hasn't paid the fine yet. Are they still paying for the care of the other 37 children in that home? Why aren't they taking the fine out of the funds they are receiving for other clients. For that matter, why aren't they arresting the nurses on duty or child abuse or involuntary manslaughter? Why aren't they arresting the nursing home operator for child abuse or negligence? Why aren't they closing the home down? Oh sorry, it is only a child with a disability. She would never hold a job, so what do you expect? The only people that the State of Florida wants to help are those who can help themselves. Haven't you seen the writing on the wall? If you cannot support yourself, you don't deserve any services or to be alive, evidently. What the hell is going on in this State? Are we all asleep? Why the hell isn't everyone outraged and calling their legislators, AHCA, the Governor's office? Am I being too harsh on the leaders of this state? Too bad. They should all be ashamed of themselves. From the Speaker of the House, to the President of the Senate. to the head of AHCA, to the Governor. The constant lip service of "you have to live within your means." That is easy to say when you are travelling in a limo or flying on a private jet to Mara Lago to eat with Trump.

They have been systematically dismantling what little infrastructure that this state had, in the name of living within our means. Well, you now can all have the thought of this little girl on your conscience. I am ashamed to live in this state, you all should be too.

Outraged,

Ven Sequenzia

A child's sad death in a Florida nursing home

Published: November 12, 2012http://www.bradenton.com/2012/11/12/4275532/a-childs-sad-death-in-a-florida.html By CAROL MARBIN MILLER — Miami Herald

For 14 years, Doris Freyre cared for her profoundly disabled daughter in her modest Tampa home, pureeing fresh fruit, yams and vegetables and surrounding the girl with family photos and pictures of angels.

Marie Freyre died in the care of a $506-per-day nursing home — sobbing, shaking and screaming for her real home.

She never saw her Minnie Mouse plush toy, her Winnie the Pooh or her Cabbage Patch Kids again. She never again saw her Mami or her Abuela.

Marie had been taken to the Florida Club Care Center against her mother’s wishes. Social workers insisted the Miami Gardens nursing home was the safest place for the 14-year-old, who suffered from, among other things, cerebral palsy and seizures. But the evening Marie arrived, records show, nurses did not give her life-sustaining medications and she may have had no food except applesauce.

When Marie struggled to breathe in the two hours before she died, no one at the nursing home called a doctor.

“We are still mourning for her,†said Freyre, Marie’s grandfather. “She was a part of us. It was like losing a leg or an arm or a heart. We are all hurting.â€

Marie’s death stands as a bitter reminder of a dog fight between state health regulators and federal civil rights lawyers, who have accused the state of warehousing sick and disabled children as virtual potted plants. The U.S. Justice Department’s Civil Rights division has threatened to sue the state if it does not take steps to care for sick children outside of large institutions.

Records obtained by The Miami Herald from the state agency that has defended the practice of housing children in nursing homes, as well as records from other agencies and advocacy groups, show the children in such facilities often receive little education, are provided few activities and can suffer grievous neglect. Two of the six nursing homes that house children are on the state’s “watch list†of deficient facilities; one is on both the state list and a federal “special focus†list of marginal homes.

“Nursing homes are not a place for children,†said Dr. Gwen Wurm, who teaches clinical pediatrics at the University of Miami’s School of Medicine. “For children who cannot walk or talk, a smile may be the only form of communication. I have seen seriously disabled children, with terminal genetic disorders, light up at the sound of a parent’s voice. We should be doing all we can to keep children in a family setting,†added Wurm.

How nursing homes became the residence of choice for severely challenged children is at the core of the Justice Department’s battle with the state. Florida, the DOJ said in a letter, “has planned, structured and administered a system of care that has led to the unnecessary separation and isolation of hundreds of children in nursing facilities.†Agency administrators have “systematically†cut services for parents, making it almost impossible for them to care for their sick children at home, the letter says. At the same time, they’ve agreed to pay nursing homes a more generous rate for children than for elders, creating an additional incentive.

FUNDING DISPARITY

Florida healthcare administrators will pay nursing homes about $213 to care for a frail elder, records show. But the state will reimburse homes more than $506 per day to care for a sick child.

“State policies and practices have favored institutional care at the expense of community-based services,†the letter said.

Some children, the Justice Department said, “have been in a facility for a decade or longer, including some who entered a facility as toddlers.â€

Both nursing home industry groups and the Agency for Health Care Administration, which regulates the industry, have defended the practice, saying some youngsters are too frail or too disabled to live at home.

“Nursing homes serving children must meet different criteria than facilities that serve only older adults,†AHCA told The Miami Herald in a prepared statement. “They are strictly regulated to ensure that the appropriate services are provided specifically for children. Nursing homes that serve children are designed to service persons with complex medical needs; they provide a safe, secure and enriching environment for the children in their care.â€

The Florida Health Care Association has called the federal report that criticized the practice — and the media reports that followed — “an attempt to demonize these facilities.â€

“The unfortunate reality is that these pediatric facilities are the safety net for children who cannot be cared for at home because either their medical needs are too complex or they have no family to rely on,†J. Emmet , the association’s executive director, wrote in a statement. “ ‘Fragile’ does not begin to describe their care needs — they require ventilators, feeding tubes; they have traumatic brain injuries or may even be comatose.â€

said youngsters in nursing homes live separate from frail elders, and receive care specific to the needs of developing children. Nurses, therapists and aides “care for them and love them as if they were their own,†wrote.

“You’ll find handicap-accessible playgrounds, toys, stuffed animals and a brightly colored, kid-friendly living environment. Education is an important component, and through collaboration among the families, medical team and school system, each child’s schooling needs are met. You’ll also find more than twice the number of staffing hours per child than that which is required for seniors.â€

The healthcare agency’s own records, however, as well as records from other groups, show that is often not the case.

‘SOCIAL ISOLATION’

As far back as 2009, AHCA inspectors found nine children sitting around a TV watching cartoons at 8:30 a.m. “with no hands-on activity†at the Westminster Community Care of Orlando nursing home. Two caregivers were in the “activity room†watching the residents as they sat before the television, a report said, adding “there [was] no interpersonal interaction observed between staff and the children.â€

Inspectors said one frail resident was supposed to receive daily visits from “activities†staff to prevent “social isolation,†but no such visits occurred.

Another resident, who suffered from cerebral palsy, seizures and had a feeding tube, was supposed to have daily visits for socialization and stimulation, home schooling, and music. But during a two-day inspection, observers found only a TV tuned to a news program. An administrator acknowledged the child was receiving no education.

During a complaint investigation that same year, AHCA inspectors found a child slumped in a stroller in front of a television, with a helmet on in case the child fell. Administrators told the healthcare agency the child’s wheelchair was “out in the shed,†and that an order for a new wheelchair was supposed to have been made months earlier. No one in the nursing home’s physical therapy department had evaluated the child to secure funding from Medicaid, a state insurance program for the needy. Inspectors faulted the home for failing to provide physical therapy for some of the children in the pediatric unit.

Last May, Disability Rights Florida, a federally funded advocacy group, wrote a detailed report on a 3-year-old foster child who has spent his entire life at a small nursing facility in Orlando. Disability Rights has recommended the boy be removed from the home and placed with an adoptive family. While the institution is in a “wonderful community setting,†a report says, the home’s staff does “not take the children to the park, or for walks around the block to meet other children.â€

An investigator who visited the little boy earlier this year “observed no books, flash cards, blocks, puzzles, educational DVDs, coloring books, painting items, and limited interactive toys†in the boy’s room. The boy and other youngsters in the home were placed in front of a TV “watching cartoons for several hours.â€

The advocacy group said the boy was at great risk of developing Reactive Attachment Disorder, an often severe psychiatric condition that leaves children unable to form emotional bonds.

Late last June, AHCA inspectors found 17 sick and disabled children being supervised by one adult at the Golden Glades Nursing and Rehabilitation Center, the home formerly known as Florida Club Care. One little girl was punching herself in the head “with both of her hands†as the sole caregiver attempted to intervene. The 16 other children, a report said, were yelling at the aide for attention.

The home was supposed to have two other staff members assisting the activities director that day, but they both had the day off, a report said.

In September, a team of inspectors from the Department of Children & Families as well as Miami’s private foster care agency visited Golden Glades again. They found that very little had changed: “The children did not have toys in the rooms and minimal toys in the playroom,†the team wrote.

“There is an activity board by the nurses’ station that lists daily activities, however, our assessment is that there did not seem to be structured activities at the time we were there,†the team wrote

AHCA inspectors faulted Florida Club Care in 2009 when they found nurses had placed orthotic splints — designed to improve the use of a child’s hands — on the wrong hands. The devices were important, a report said, to protect the child’s “skin integrity†as well as range of motion.

FAILURE TO PROTECT

Healthcare administrators filed a complaint against Westminster Community Care, where the pediatric unit is called Grandma’s House, in 2007, claiming the Orlando home’s “failure†to protect a severely disabled child led to life-threatening respiratory distress. The child, whose gender a report does not specify, was blind, intellectually disabled, couldn’t speak or eat and breathed with the aid of a tube in the child’s windpipe. In July 2007, the child was diagnosed with double pneumonia, had foreign objects lodged in his or her lungs, and a temperature of 103 degrees.

At a nearby hospital, the child had to be resuscitated more than once, and doctors found parts of a diaper in the youngster’s throat, as well as a Christmas tree light in the child’s lungs.

Westminster, which is now called Orlando Health and Rehabilitation Center, agreed to pay a $3,750 fine in a settlement with the state.

A 2008 complaint claimed Westminster had failed to follow a doctor’s orders that a child with cerebral palsy be given extensive physical therapy to ensure the resident did not suffer any deterioration in the use of his or her arms and legs. The child was supposed to be given a detailed regimen of restorative therapy to the arms and legs five days-per week, and be allowed to stand up three days each week. But notes and interviews showed the child had been given such therapies only once, an AHCA report says.

At Grandma’s House — which advertises on the Internet that it provides a “homelike atmosphere that fosters intergenerational healing†— one child who has autism and a cognitive disorder suffered an injury to the hand when nursing staff failed to remove protective mittens at the required interval. The 9-year-old’s left arm was swollen, discolored and bruised from the elbow to the fingertips where the hand mitt had been in place, a July 2009 report said.

Some nursing home mishaps involving children are never documented by the healthcare agency.

In 2008, a pediatrician with the Department of Health’s Child Protection Team in Miami, which investigates some allegations of child abuse and neglect, wrote a scathing letter to then-Gov. Charlie Crist, accusing an AHCA inspector of botching an investigation into reports that a severely disabled foster child had been burned at Florida Club Care.

In his letter, pediatrician D. Strong said he was “shocked†by the AHCA inspector’s “apparent lack of due diligence†in a probe of the case that found no fault in the nursing home’s actions. The 12-year-old girl, who suffers from cerebral palsy and cannot communicate, had sustained second-degree burns to her hand and thigh — and no one at the home had taken responsibility for the injuries.

THE DEATH OF MARIE

The greatest tragedy involved Marie Freyre, a curly-haired cherub with a huge smile — but enormous challenges.

The backdrop to Freyre’s story is displayed in 40 color photos at the youngster’s online memorial: Marie as a smiling infant wrapped in a white gauzy blanket and surrounded by white teddy bears and a white reindeer; a smiling Marie in a tangerine-colored dress, with Minnie Mouse — her arms outstretched in a welcoming gesture — in the background; a smiling Marie, bows in her hair, so covered with stuffed toys that much of her body has disappeared; a smiling Marie in a lavender party dress, her hair festooned with ribbons, dwarfed by a yellow birthday cake and a candle shaped in the number 3.

“She was a very happy baby,†her grandfather said, “because she was loved by all.â€

But the photos reveal another truth: Marie is never standing. Her hands are clenched in a fist, victims of the cerebral palsy that devastated her life.

Born with fluid surrounding her brain, and a seizure disorder in addition to the crippling cerebral palsy, Marie lived with her mother until a series of setbacks brought her to Tampa General Hospital, where a Hillsborough County judge — asked to determine custody of the girl — ordered that she be returned to her mother, Doris Freyre. Almost a month later, said the family’s Tampa attorney, J. Brudny, the hospital placed her in an ambulance for what became a bumpy, five-hour, trip to the Miami Gardens nursing home — the only one that would accept Marie, her grandfather said. Her mother and grandfather pleaded in vain with hospital staff not to take her.

“When they took Marie out of my arms, it destroyed everyone in the family,†said 59-year-old Doris Freyre.

Joe Follick, a spokesman for the Department of Children & Families, said he does not know why a private foster care agency under contract with the state sent Marie to a Miami-Dade nursing home in violation of a judge’s order. The agency, Hillsborough Kids, no longer works with the state. “The priority of the department,†he said, “is always to keep families together, keep children in family settings and consider the best needs of a child and their family in often difficult and complex situations.â€

Marie arrived at Florida Club Care Center on April 26, 2011 at 5:30 p.m. on a stretcher. “Patient was screaming,†records say.

At 9 p.m., the next note in her chart said Marie was given applesauce and “comfort measures.†At 11 p.m., Marie was noted to be screaming, as she was in the next notation, at 2 a.m.. At 5:40 a.m., notations say Marie’s breathing was labored, and she was “warm to the touch.†Five minutes later, Marie was “unresponsive.â€

The 14-year-old died of a heart attack at 6:54 a.m. at North Medical Center. Health regulators faulted the nursing home for a spate of lapses:

• Marie’s condition was not assessed by nurses until three hours after she arrived.

• There’s no record that the nursing home ever told a doctor she was struggling to breathe.

• Records suggest Marie did not receive life-saving anti-seizure drugs — prescribed for three times each day — past 9 or 10 a.m. the day before she died.

• Despite the enhanced funding for pediatric residents, the nursing home acknowledged it had no policies for treating children differently than frail elders.

• Even after Marie died, the home failed to notify the state, as required by Florida law. When questioned about the lapse, the home’s administrator took no responsibility for the girl’s death. “She did not expire in the facility,†he said. “She expired in the hospital.â€

Federal regulators assessed a $300,000 fine, the largest by the feds against a nursing home in recent years. AHCA imposed a fine of $7,500, a spokeswoman said, but the fine has yet to be collected. The home currently cares for 37 children.

“We are still hurting — very, very much,†said Freyre, the girl’s grandfather. “This is something we will never forget, and we will never forgive — including the state of Florida.â€

Read more here: http://www.miamiherald.com/2012/11/10/v-fullstory/3091570/no-place-like-home.html#storylink=cpy

Marie Freyre with her Minnie Mouse doll in her bedroom at home.

Read more here: http://www.bradenton.com/2012/11/12/4275532/a-childs-sad-death-in-a-florida.html#storylink=cpy

Read more here: http://www.bradenton.com/2012/11/12/4275532/a-childs-sad-death-in-a-florida.html#storylink=cpy

-- Regards, Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

[Guest guest]

Forgive me if this is a stupid question but did these deficiencies and atrocities exist to this extent BEFORE Governor ?

I am sick to my stomach after reading this.

How can the State of Florida and particularly the Agency for Health Care Administration (AHCA) justify this? They are actually upset that the Justice Department is questioning the systematic placement of children in nursing homes, over appropriately funding them to stay in their family homes with the appropriate supports. They are willing to pay a nursing home up to $500.00 a day to care for (which they obviously don't) children that are medically fragile and they won't pay a family more than $40.00 a day? Yes, you read that correctly. If your child is living at home and is under 18 years of age, Medicaid Waiver/State Plan Medicaid pays $14,900 a year. Maybe they will pay additionally for some nursing services, if you file an appeal and hire an attorney. Mostly, children that are medically fragile and need considerable amount of care are not allowed to receive it in the family home. No, they have to go to places like the ones listed below.

AHCA actually stated that these places are strictly regulated. Read below and you can see that is not true. In one case a child was found to have a Christmas light lodged in her lung and diaper fragments in her throat and the nursing home was fined a whopping $3,750.00. WHAT!!!!!!!! They get $500.00 a day and they are fined basically for less than 8 days of the care they charge for? If you don't want to do the math, they charge the state $182,500 a year and almost killed her.

Now a child has died. What is AHCA going to do to defend this one? The day she arrived at the nursing home, which was supposed to be better than the family home and the state determined that the family couldn't care for the child at home, she died.

To top it all off, AHCA fined the home $7,500, but state that the home hasn't paid the fine yet. Are they still paying for the care of the other 37 children in that home? Why aren't they taking the fine out of the funds they are receiving for other clients. For that matter, why aren't they arresting the nurses on duty or child abuse or involuntary manslaughter? Why aren't they arresting the nursing home operator for child abuse or negligence? Why aren't they closing the home down? Oh sorry, it is only a child with a disability. She would never hold a job, so what do you expect? The only people that the State of Florida wants to help are those who can help themselves. Haven't you seen the writing on the wall? If you cannot support yourself, you don't deserve any services or to be alive, evidently. What the hell is going on in this State? Are we all asleep? Why the hell isn't everyone outraged and calling their legislators, AHCA, the Governor's office? Am I being too harsh on the leaders of this state? Too bad. They should all be ashamed of themselves. From the Speaker of the House, to the President of the Senate. to the head of AHCA, to the Governor. The constant lip service of "you have to live within your means." That is easy to say when you are travelling in a limo or flying on a private jet to Mara Lago to eat with Trump.

They have been systematically dismantling what little infrastructure that this state had, in the name of living within our means. Well, you now can all have the thought of this little girl on your conscience. I am ashamed to live in this state, you all should be too.

Outraged,

Ven Sequenzia

A child's sad death in a Florida nursing home

Published: November 12, 2012http://www.bradenton.com/2012/11/12/4275532/a-childs-sad-death-in-a-florida.html By CAROL MARBIN MILLER — Miami Herald

For 14 years, Doris Freyre cared for her profoundly disabled daughter in her modest Tampa home, pureeing fresh fruit, yams and vegetables and surrounding the girl with family photos and pictures of angels.

Marie Freyre died in the care of a $506-per-day nursing home — sobbing, shaking and screaming for her real home.

She never saw her Minnie Mouse plush toy, her Winnie the Pooh or her Cabbage Patch Kids again. She never again saw her Mami or her Abuela.

Marie had been taken to the Florida Club Care Center against her mother’s wishes. Social workers insisted the Miami Gardens nursing home was the safest place for the 14-year-old, who suffered from, among other things, cerebral palsy and seizures. But the evening Marie arrived, records show, nurses did not give her life-sustaining medications and she may have had no food except applesauce.

When Marie struggled to breathe in the two hours before she died, no one at the nursing home called a doctor.

“We are still mourning for her,†said Freyre, Marie’s grandfather. “She was a part of us. It was like losing a leg or an arm or a heart. We are all hurting.â€

Marie’s death stands as a bitter reminder of a dog fight between state health regulators and federal civil rights lawyers, who have accused the state of warehousing sick and disabled children as virtual potted plants. The U.S. Justice Department’s Civil Rights division has threatened to sue the state if it does not take steps to care for sick children outside of large institutions.

Records obtained by The Miami Herald from the state agency that has defended the practice of housing children in nursing homes, as well as records from other agencies and advocacy groups, show the children in such facilities often receive little education, are provided few activities and can suffer grievous neglect. Two of the six nursing homes that house children are on the state’s “watch list†of deficient facilities; one is on both the state list and a federal “special focus†list of marginal homes.

“Nursing homes are not a place for children,†said Dr. Gwen Wurm, who teaches clinical pediatrics at the University of Miami’s School of Medicine. “For children who cannot walk or talk, a smile may be the only form of communication. I have seen seriously disabled children, with terminal genetic disorders, light up at the sound of a parent’s voice. We should be doing all we can to keep children in a family setting,†added Wurm.

How nursing homes became the residence of choice for severely challenged children is at the core of the Justice Department’s battle with the state. Florida, the DOJ said in a letter, “has planned, structured and administered a system of care that has led to the unnecessary separation and isolation of hundreds of children in nursing facilities.†Agency administrators have “systematically†cut services for parents, making it almost impossible for them to care for their sick children at home, the letter says. At the same time, they’ve agreed to pay nursing homes a more generous rate for children than for elders, creating an additional incentive.

FUNDING DISPARITY

Florida healthcare administrators will pay nursing homes about $213 to care for a frail elder, records show. But the state will reimburse homes more than $506 per day to care for a sick child.

“State policies and practices have favored institutional care at the expense of community-based services,†the letter said.

Some children, the Justice Department said, “have been in a facility for a decade or longer, including some who entered a facility as toddlers.â€

Both nursing home industry groups and the Agency for Health Care Administration, which regulates the industry, have defended the practice, saying some youngsters are too frail or too disabled to live at home.

“Nursing homes serving children must meet different criteria than facilities that serve only older adults,†AHCA told The Miami Herald in a prepared statement. “They are strictly regulated to ensure that the appropriate services are provided specifically for children. Nursing homes that serve children are designed to service persons with complex medical needs; they provide a safe, secure and enriching environment for the children in their care.â€

The Florida Health Care Association has called the federal report that criticized the practice — and the media reports that followed — “an attempt to demonize these facilities.â€

“The unfortunate reality is that these pediatric facilities are the safety net for children who cannot be cared for at home because either their medical needs are too complex or they have no family to rely on,†J. Emmet , the association’s executive director, wrote in a statement. “ ‘Fragile’ does not begin to describe their care needs — they require ventilators, feeding tubes; they have traumatic brain injuries or may even be comatose.â€

said youngsters in nursing homes live separate from frail elders, and receive care specific to the needs of developing children. Nurses, therapists and aides “care for them and love them as if they were their own,†wrote.

“You’ll find handicap-accessible playgrounds, toys, stuffed animals and a brightly colored, kid-friendly living environment. Education is an important component, and through collaboration among the families, medical team and school system, each child’s schooling needs are met. You’ll also find more than twice the number of staffing hours per child than that which is required for seniors.â€

The healthcare agency’s own records, however, as well as records from other groups, show that is often not the case.

‘SOCIAL ISOLATION’

As far back as 2009, AHCA inspectors found nine children sitting around a TV watching cartoons at 8:30 a.m. “with no hands-on activity†at the Westminster Community Care of Orlando nursing home. Two caregivers were in the “activity room†watching the residents as they sat before the television, a report said, adding “there [was] no interpersonal interaction observed between staff and the children.â€

Inspectors said one frail resident was supposed to receive daily visits from “activities†staff to prevent “social isolation,†but no such visits occurred.

Another resident, who suffered from cerebral palsy, seizures and had a feeding tube, was supposed to have daily visits for socialization and stimulation, home schooling, and music. But during a two-day inspection, observers found only a TV tuned to a news program. An administrator acknowledged the child was receiving no education.

During a complaint investigation that same year, AHCA inspectors found a child slumped in a stroller in front of a television, with a helmet on in case the child fell. Administrators told the healthcare agency the child’s wheelchair was “out in the shed,†and that an order for a new wheelchair was supposed to have been made months earlier. No one in the nursing home’s physical therapy department had evaluated the child to secure funding from Medicaid, a state insurance program for the needy. Inspectors faulted the home for failing to provide physical therapy for some of the children in the pediatric unit.

Last May, Disability Rights Florida, a federally funded advocacy group, wrote a detailed report on a 3-year-old foster child who has spent his entire life at a small nursing facility in Orlando. Disability Rights has recommended the boy be removed from the home and placed with an adoptive family. While the institution is in a “wonderful community setting,†a report says, the home’s staff does “not take the children to the park, or for walks around the block to meet other children.â€

An investigator who visited the little boy earlier this year “observed no books, flash cards, blocks, puzzles, educational DVDs, coloring books, painting items, and limited interactive toys†in the boy’s room. The boy and other youngsters in the home were placed in front of a TV “watching cartoons for several hours.â€

The advocacy group said the boy was at great risk of developing Reactive Attachment Disorder, an often severe psychiatric condition that leaves children unable to form emotional bonds.

Late last June, AHCA inspectors found 17 sick and disabled children being supervised by one adult at the Golden Glades Nursing and Rehabilitation Center, the home formerly known as Florida Club Care. One little girl was punching herself in the head “with both of her hands†as the sole caregiver attempted to intervene. The 16 other children, a report said, were yelling at the aide for attention.

The home was supposed to have two other staff members assisting the activities director that day, but they both had the day off, a report said.

In September, a team of inspectors from the Department of Children & Families as well as Miami’s private foster care agency visited Golden Glades again. They found that very little had changed: “The children did not have toys in the rooms and minimal toys in the playroom,†the team wrote.

“There is an activity board by the nurses’ station that lists daily activities, however, our assessment is that there did not seem to be structured activities at the time we were there,†the team wrote

AHCA inspectors faulted Florida Club Care in 2009 when they found nurses had placed orthotic splints — designed to improve the use of a child’s hands — on the wrong hands. The devices were important, a report said, to protect the child’s “skin integrity†as well as range of motion.

FAILURE TO PROTECT

Healthcare administrators filed a complaint against Westminster Community Care, where the pediatric unit is called Grandma’s House, in 2007, claiming the Orlando home’s “failure†to protect a severely disabled child led to life-threatening respiratory distress. The child, whose gender a report does not specify, was blind, intellectually disabled, couldn’t speak or eat and breathed with the aid of a tube in the child’s windpipe. In July 2007, the child was diagnosed with double pneumonia, had foreign objects lodged in his or her lungs, and a temperature of 103 degrees.

At a nearby hospital, the child had to be resuscitated more than once, and doctors found parts of a diaper in the youngster’s throat, as well as a Christmas tree light in the child’s lungs.

Westminster, which is now called Orlando Health and Rehabilitation Center, agreed to pay a $3,750 fine in a settlement with the state.

A 2008 complaint claimed Westminster had failed to follow a doctor’s orders that a child with cerebral palsy be given extensive physical therapy to ensure the resident did not suffer any deterioration in the use of his or her arms and legs. The child was supposed to be given a detailed regimen of restorative therapy to the arms and legs five days-per week, and be allowed to stand up three days each week. But notes and interviews showed the child had been given such therapies only once, an AHCA report says.

At Grandma’s House — which advertises on the Internet that it provides a “homelike atmosphere that fosters intergenerational healing†— one child who has autism and a cognitive disorder suffered an injury to the hand when nursing staff failed to remove protective mittens at the required interval. The 9-year-old’s left arm was swollen, discolored and bruised from the elbow to the fingertips where the hand mitt had been in place, a July 2009 report said.

Some nursing home mishaps involving children are never documented by the healthcare agency.

In 2008, a pediatrician with the Department of Health’s Child Protection Team in Miami, which investigates some allegations of child abuse and neglect, wrote a scathing letter to then-Gov. Charlie Crist, accusing an AHCA inspector of botching an investigation into reports that a severely disabled foster child had been burned at Florida Club Care.

In his letter, pediatrician D. Strong said he was “shocked†by the AHCA inspector’s “apparent lack of due diligence†in a probe of the case that found no fault in the nursing home’s actions. The 12-year-old girl, who suffers from cerebral palsy and cannot communicate, had sustained second-degree burns to her hand and thigh — and no one at the home had taken responsibility for the injuries.

THE DEATH OF MARIE

The greatest tragedy involved Marie Freyre, a curly-haired cherub with a huge smile — but enormous challenges.

The backdrop to Freyre’s story is displayed in 40 color photos at the youngster’s online memorial: Marie as a smiling infant wrapped in a white gauzy blanket and surrounded by white teddy bears and a white reindeer; a smiling Marie in a tangerine-colored dress, with Minnie Mouse — her arms outstretched in a welcoming gesture — in the background; a smiling Marie, bows in her hair, so covered with stuffed toys that much of her body has disappeared; a smiling Marie in a lavender party dress, her hair festooned with ribbons, dwarfed by a yellow birthday cake and a candle shaped in the number 3.

“She was a very happy baby,†her grandfather said, “because she was loved by all.â€

But the photos reveal another truth: Marie is never standing. Her hands are clenched in a fist, victims of the cerebral palsy that devastated her life.

Born with fluid surrounding her brain, and a seizure disorder in addition to the crippling cerebral palsy, Marie lived with her mother until a series of setbacks brought her to Tampa General Hospital, where a Hillsborough County judge — asked to determine custody of the girl — ordered that she be returned to her mother, Doris Freyre. Almost a month later, said the family’s Tampa attorney, J. Brudny, the hospital placed her in an ambulance for what became a bumpy, five-hour, trip to the Miami Gardens nursing home — the only one that would accept Marie, her grandfather said. Her mother and grandfather pleaded in vain with hospital staff not to take her.

“When they took Marie out of my arms, it destroyed everyone in the family,†said 59-year-old Doris Freyre.

Joe Follick, a spokesman for the Department of Children & Families, said he does not know why a private foster care agency under contract with the state sent Marie to a Miami-Dade nursing home in violation of a judge’s order. The agency, Hillsborough Kids, no longer works with the state. “The priority of the department,†he said, “is always to keep families together, keep children in family settings and consider the best needs of a child and their family in often difficult and complex situations.â€

Marie arrived at Florida Club Care Center on April 26, 2011 at 5:30 p.m. on a stretcher. “Patient was screaming,†records say.

At 9 p.m., the next note in her chart said Marie was given applesauce and “comfort measures.†At 11 p.m., Marie was noted to be screaming, as she was in the next notation, at 2 a.m.. At 5:40 a.m., notations say Marie’s breathing was labored, and she was “warm to the touch.†Five minutes later, Marie was “unresponsive.â€

The 14-year-old died of a heart attack at 6:54 a.m. at North Medical Center. Health regulators faulted the nursing home for a spate of lapses:

• Marie’s condition was not assessed by nurses until three hours after she arrived.

• There’s no record that the nursing home ever told a doctor she was struggling to breathe.

• Records suggest Marie did not receive life-saving anti-seizure drugs — prescribed for three times each day — past 9 or 10 a.m. the day before she died.

• Despite the enhanced funding for pediatric residents, the nursing home acknowledged it had no policies for treating children differently than frail elders.

• Even after Marie died, the home failed to notify the state, as required by Florida law. When questioned about the lapse, the home’s administrator took no responsibility for the girl’s death. “She did not expire in the facility,†he said. “She expired in the hospital.â€

Federal regulators assessed a $300,000 fine, the largest by the feds against a nursing home in recent years. AHCA imposed a fine of $7,500, a spokeswoman said, but the fine has yet to be collected. The home currently cares for 37 children.

“We are still hurting — very, very much,†said Freyre, the girl’s grandfather. “This is something we will never forget, and we will never forgive — including the state of Florida.â€

Read more here: http://www.miamiherald.com/2012/11/10/v-fullstory/3091570/no-place-like-home.html#storylink=cpy

Marie Freyre with her Minnie Mouse doll in her bedroom at home.

Read more here: http://www.bradenton.com/2012/11/12/4275532/a-childs-sad-death-in-a-florida.html#storylink=cpy

Read more here: http://www.bradenton.com/2012/11/12/4275532/a-childs-sad-death-in-a-florida.html#storylink=cpy

-- Regards, Ven Sequenzia, Jr.

President

Autism Society of America

State of Florida Chapter

[Guest guest]

They absolutely existed before Mr. took office. It has been happening for

a very long time, in every state in the country. (similar situations caused the

asylums of the past were closed). It is one of the reasons that FDDC gives for

not wanting supportive communities in FL, and why Lila Klausman in Melbourne

Florida has/had such a struggle trying to get the 1000 ft. rule changed.

Nursing homes of any kind often have problems, not only when working with

mentally disabled, but physically disabled people as well. Often they aren't

monitored closely enough because there isn't enough funding to hire inspectors,

or people who aren't well qualified are hired because of the low salary.

Emplyees in nursing homes can get " burned out " because the job of taking care of

the residents is very difficult and they are often short staffed. The pay isn't

always good either.

It's not always the fault of whoever is the governor. It is often lack of

funding and low pay that causes a lot of problems.

Glenda

>

> Forgive me if this is a stupid question but did these deficiencies and

> atrocities exist to this extent BEFORE Governor ?

>

>

>

>

> In a message dated 11/12/2012 7:21:08 P.M. Eastern Standard Time,

> vsequenzia@... writes:

>

>

>

>

> I am sick to my stomach after reading this.

>

>

> How can the State of Florida and particularly the Agency for Health Care

> Administration (AHCA) justify this? They are actually upset that the Justice

> Department is questioning the systematic placement of children in nursing

> homes, over appropriately funding them to stay in their family homes with

> the appropriate supports. They are willing to pay a nursing home up to

> $500.00 a day to care for (which they obviously don't) children that are

> medically fragile and they won't pay a family more than $40.00 a day? Yes, you

> read that correctly. If your child is living at home and is under 18 years of

> age, Medicaid Waiver/State Plan Medicaid pays $14,900 a year. Maybe they

> will pay additionally for some nursing services, if you file an appeal and

> hire an attorney. Mostly, children that are medically fragile and need

> considerable amount of care are not allowed to receive it in the family home.

No,

> they have to go to places like the ones listed below.

>

>

> AHCA actually stated that these places are strictly regulated. Read below

> and you can see that is not true. In one case a child was found to have a

> Christmas light lodged in her lung and diaper fragments in her throat and

> the nursing home was fined a whopping $3,750.00. WHAT!!!!!!!! They get

> $500.00 a day and they are fined basically for less than 8 days of the care

> they charge for? If you don't want to do the math, they charge the state

> $182,500 a year and almost killed her.

>

>

> Now a child has died. What is AHCA going to do to defend this one? The day

> she arrived at the nursing home, which was supposed to be better than the

> family home and the state determined that the family couldn't care for the

> child at home, she died.

>

>

> To top it all off, AHCA fined the home $7,500, but state that the home

> hasn't paid the fine yet. Are they still paying for the care of the other 37

> children in that home? Why aren't they taking the fine out of the funds they

> are receiving for other clients. For that matter, why aren't they arresting

> the nurses on duty or child abuse or involuntary manslaughter? Why aren't

> they arresting the nursing home operator for child abuse or negligence? Why

> aren't they closing the home down? Oh sorry, it is only a child with a

> disability. She would never hold a job, so what do you expect? The only people

> that the State of Florida wants to help are those who can help themselves.

> Haven't you seen the writing on the wall? If you cannot support yourself,

> you don't deserve any services or to be alive, evidently. What the hell is

> going on in this State? Are we all asleep? Why the hell isn't everyone

> outraged and calling their legislators, AHCA, the Governor's office? Am I

> being too harsh on the leaders of this state? Too bad. They should all be

> ashamed of themselves. From the Speaker of the House, to the President of the

> Senate. to the head of AHCA, to the Governor. The constant lip service of " you

> have to live within your means. " That is easy to say when you are

> travelling in a limo or flying on a private jet to Mara Lago to eat with

> Trump.

>

>

> They have been systematically dismantling what little infrastructure that

> this state had, in the name of living within our means. Well, you now can

> all have the thought of this little girl on your conscience. I am ashamed

> to live in this state, you all should be too.

>

>

> Outraged,

>

>

> Ven Sequenzia

>

>

>

> A child's sad death in a Florida nursing home

>

> Published: November 12,

>

2012_http://www.bradenton.com/2012/11/12/4275532/a-childs-sad-death-in-a-florida\

..html_

>

(http://www.bradenton.com/2012/11/12/4275532/a-childs-sad-death-in-a-florida.htm\

l)

> By CAROL MARBIN MILLER †" Miami Herald

>

> For 14 years, Doris Freyre cared for her profoundly disabled daughter in

> her modest Tampa home, pureeing fresh fruit, yams and vegetables and

> surrounding the girl with family photos and pictures of angels.

> Marie Freyre died in the care of a $506-per-day nursing home †" sobbing,

> shaking and screaming for her real home.

> She never saw her Minnie Mouse plush toy, her Winnie the Pooh or her

> Cabbage Patch Kids again. She never again saw her Mami or her Abuela.

> Marie had been taken to the Florida Club Care Center against her mother’s

> wishes. Social workers insisted the Miami Gardens nursing home was the

> safest place for the 14-year-old, who suffered from, among other things,

> cerebral palsy and seizures. But the evening Marie arrived, records show,

nurses

> did not give her life-sustaining medications and she may have had no food

> except applesauce.

> When Marie struggled to breathe in the two hours before she died, no one at

> the nursing home called a doctor.

> “We are still mourning for her,†said Freyre, Marie’s grandfather.

“

> She was a part of us. It was like losing a leg or an arm or a heart. We are

> all hurting.â€

> Marie’s death stands as a bitter reminder of a dog fight between state

> health regulators and federal civil rights lawyers, who have accused the state

> of warehousing sick and disabled children as virtual potted plants. The

> U.S. Justice Department’s Civil Rights division has threatened to sue the

> state if it does not take steps to care for sick children outside of large

> institutions.

> Records obtained by The Miami Herald from the state agency that has

> defended the practice of housing children in nursing homes, as well as records

> from other agencies and advocacy groups, show the children in such facilities

> often receive little education, are provided few activities and can suffer

> grievous neglect. Two of the six nursing homes that house children are on

> the state’s “watch list†of deficient facilities; one is on both the

state

> list and a federal “special focus†list of marginal homes.

> “Nursing homes are not a place for children,†said Dr. Gwen Wurm, who

> teaches clinical pediatrics at the University of Miami’s School of

> Medicine. “For children who cannot walk or talk, a smile may be the only

form

> of communication. I have seen seriously disabled children, with terminal

> genetic disorders, light up at the sound of a parent’s voice. We should be

> doing all we can to keep children in a family setting,†added Wurm.

> How nursing homes became the residence of choice for severely challenged

> children is at the core of the Justice Department’s battle with the state.

> Florida, the DOJ said in a letter, “has planned, structured and administered

> a system of care that has led to the unnecessary separation and isolation

> of hundreds of children in nursing facilities.†Agency administrators have

“

> systematically†cut services for parents, making it almost impossible for

> them to care for their sick children at home, the letter says. At the same

> time, they’ve agreed to pay nursing homes a more generous rate for children

> than for elders, creating an additional incentive.

> FUNDING DISPARITY

> Florida healthcare administrators will pay nursing homes about $213 to care

> for a frail elder, records show. But the state will reimburse homes more

> than $506 per day to care for a sick child.

> “State policies and practices have favored institutional care at the

> expense of community-based services,†the letter said.

> Some children, the Justice Department said, “have been in a facility for a

> decade or longer, including some who entered a facility as toddlers.â€

> Both nursing home industry groups and the Agency for Health Care

> Administration, which regulates the industry, have defended the practice,

saying

> some youngsters are too frail or too disabled to live at home.

> “Nursing homes serving children must meet different criteria than

> facilities that serve only older adults,†AHCA told The Miami Herald in a

prepared

> statement. “They are strictly regulated to ensure that the appropriate

> services are provided specifically for children. Nursing homes that serve

> children are designed to service persons with complex medical needs; they

> provide a safe, secure and enriching environment for the children in their

care.â€

> The Florida Health Care Association has called the federal report that

> criticized the practice †" and the media reports that followed †" “an

attempt to

> demonize these facilities.â€

> “The unfortunate reality is that these pediatric facilities are the safety

> net for children who cannot be cared for at home because either their

> medical needs are too complex or they have no family to rely on,†J. Emmet

,

> the association’s executive director, wrote in a statement. “

‘Fragile’

> does not begin to describe their care needs †" they require ventilators,

> feeding tubes; they have traumatic brain injuries or may even be comatose.â€

> said youngsters in nursing homes live separate from frail elders, and

> receive care specific to the needs of developing children. Nurses,

> therapists and aides “care for them and love them as if they were their

own,â€

> wrote.

> “You’ll find handicap-accessible playgrounds, toys, stuffed animals and a

> brightly colored, kid-friendly living environment. Education is an

> important component, and through collaboration among the families, medical

team and

> school system, each child’s schooling needs are met. You’ll also find

> more than twice the number of staffing hours per child than that which is

> required for seniors.â€

> The healthcare agency’s own records, however, as well as records from other

> groups, show that is often not the case.

> ‘SOCIAL ISOLATION’

> As far back as 2009, AHCA inspectors found nine children sitting around a

> TV watching cartoons at 8:30 a.m. “with no hands-on activity†at the

> Westminster Community Care of Orlando nursing home. Two caregivers were in the

“

> activity room†watching the residents as they sat before the television, a

> report said, adding “there [was] no interpersonal interaction observed

> between staff and the children.â€

> Inspectors said one frail resident was supposed to receive daily visits

> from “activities†staff to prevent “social isolation,†but no such

visits

> occurred.

> Another resident, who suffered from cerebral palsy, seizures and had a

> feeding tube, was supposed to have daily visits for socialization and

> stimulation, home schooling, and music. But during a two-day inspection,

observers

> found only a TV tuned to a news program. An administrator acknowledged the

> child was receiving no education.

> During a complaint investigation that same year, AHCA inspectors found a

> child slumped in a stroller in front of a television, with a helmet on in

> case the child fell. Administrators told the healthcare agency the child’s

> wheelchair was “out in the shed,†and that an order for a new wheelchair

was

> supposed to have been made months earlier. No one in the nursing home’s

> physical therapy department had evaluated the child to secure funding from

> Medicaid, a state insurance program for the needy. Inspectors faulted the home

> for failing to provide physical therapy for some of the children in the

> pediatric unit.

> Last May, Disability Rights Florida, a federally funded advocacy group,

> wrote a detailed report on a 3-year-old foster child who has spent his entire

> life at a small nursing facility in Orlando. Disability Rights has

> recommended the boy be removed from the home and placed with an adoptive

family.

> While the institution is in a “wonderful community setting,†a report

says,

> the home’s staff does “not take the children to the park, or for walks

> around the block to meet other children.â€

> An investigator who visited the little boy earlier this year “observed no

> books, flash cards, blocks, puzzles, educational DVDs, coloring books,

> painting items, and limited interactive toys†in the boy’s room. The boy

and

> other youngsters in the home were placed in front of a TV “watching cartoons

> for several hours.â€

> The advocacy group said the boy was at great risk of developing Reactive

> Attachment Disorder, an often severe psychiatric condition that leaves

> children unable to form emotional bonds.

> Late last June, AHCA inspectors found 17 sick and disabled children being

> supervised by one adult at the Golden Glades Nursing and Rehabilitation

> Center, the home formerly known as Florida Club Care. One little girl was

> punching herself in the head “with both of her hands†as the sole

caregiver

> attempted to intervene. The 16 other children, a report said, were yelling at

> the aide for attention.

> The home was supposed to have two other staff members assisting the

> activities director that day, but they both had the day off, a report said.

> In September, a team of inspectors from the Department of Children &

> Families as well as Miami’s private foster care agency visited Golden Glades

> again. They found that very little had changed: “The children did not have

> toys in the rooms and minimal toys in the playroom,†the team wrote.

> “There is an activity board by the nurses’ station that lists daily

> activities, however, our assessment is that there did not seem to be

structured

> activities at the time we were there,†the team wrote

> AHCA inspectors faulted Florida Club Care in 2009 when they found nurses

> had placed orthotic splints †" designed to improve the use of a child’s

hands

> †" on the wrong hands. The devices were important, a report said, to

> protect the child’s “skin integrity†as well as range of motion.

> FAILURE TO PROTECT

> Healthcare administrators filed a complaint against Westminster Community

> Care, where the pediatric unit is called Grandma’s House, in 2007, claiming

> the Orlando home’s “failure†to protect a severely disabled child led to

> life-threatening respiratory distress. The child, whose gender a report does

> not specify, was blind, intellectually disabled, couldn’t speak or eat and

> breathed with the aid of a tube in the child’s windpipe. In July 2007, the

> child was diagnosed with double pneumonia, had foreign objects lodged in

> his or her lungs, and a temperature of 103 degrees.

> At a nearby hospital, the child had to be resuscitated more than once, and

> doctors found parts of a diaper in the youngster’s throat, as well as a

> Christmas tree light in the child’s lungs.

> Westminster, which is now called Orlando Health and Rehabilitation Center,

> agreed to pay a $3,750 fine in a settlement with the state.

> A 2008 complaint claimed Westminster had failed to follow a doctor’s orders

> that a child with cerebral palsy be given extensive physical therapy to

> ensure the resident did not suffer any deterioration in the use of his or her

> arms and legs. The child was supposed to be given a detailed regimen of

> restorative therapy to the arms and legs five days-per week, and be allowed

> to stand up three days each week. But notes and interviews showed the child

> had been given such therapies only once, an AHCA report says.

> At Grandma’s House †" which advertises on the Internet that it provides a

“

> homelike atmosphere that fosters intergenerational healing††" one child

> who has autism and a cognitive disorder suffered an injury to the hand when

> nursing staff failed to remove protective mittens at the required interval.

> The 9-year-old’s left arm was swollen, discolored and bruised from the

> elbow to the fingertips where the hand mitt had been in place, a July 2009

> report said.

> Some nursing home mishaps involving children are never documented by the

> healthcare agency.

> In 2008, a pediatrician with the Department of Health’s Child Protection

> Team in Miami, which investigates some allegations of child abuse and

> neglect, wrote a scathing letter to then-Gov. Charlie Crist, accusing an AHCA

> inspector of botching an investigation into reports that a severely disabled

> foster child had been burned at Florida Club Care.

> In his letter, pediatrician D. Strong said he was “shocked†by the

> AHCA inspector’s “apparent lack of due diligence†in a probe of the

case

> that found no fault in the nursing home’s actions. The 12-year-old girl,

> who suffers from cerebral palsy and cannot communicate, had sustained

> second-degree burns to her hand and thigh †" and no one at the home had taken

> responsibility for the injuries.

> THE DEATH OF MARIE

> The greatest tragedy involved Marie Freyre, a curly-haired cherub with a

> huge smile †" but enormous challenges.

> The backdrop to Freyre’s story is displayed in 40 color photos at the

> youngster’s online memorial: Marie as a smiling infant wrapped in a white

gauzy

> blanket and surrounded by white teddy bears and a white reindeer; a

> smiling Marie in a tangerine-colored dress, with Minnie Mouse †" her arms

> outstretched in a welcoming gesture †" in the background; a smiling Marie,

bows in

> her hair, so covered with stuffed toys that much of her body has

> disappeared; a smiling Marie in a lavender party dress, her hair festooned

with

> ribbons, dwarfed by a yellow birthday cake and a candle shaped in the number

3.

> “She was a very happy baby,†her grandfather said, “because she was

loved

> by all.â€

> But the photos reveal another truth: Marie is never standing. Her hands are

> clenched in a fist, victims of the cerebral palsy that devastated her

> life.

> Born with fluid surrounding her brain, and a seizure disorder in addition

> to the crippling cerebral palsy, Marie lived with her mother until a series

> of setbacks brought her to Tampa General Hospital, where a Hillsborough

> County judge †" asked to determine custody of the girl †" ordered that she

be

> returned to her mother, Doris Freyre. Almost a month later, said the

family’

> s Tampa attorney, J. Brudny, the hospital placed her in an ambulance

> for what became a bumpy, five-hour, trip to the Miami Gardens nursing home

†"

> the only one that would accept Marie, her grandfather said. Her mother

> and grandfather pleaded in vain with hospital staff not to take her.

> “When they took Marie out of my arms, it destroyed everyone in the

family,â€

> said 59-year-old Doris Freyre.

> Joe Follick, a spokesman for the Department of Children & Families, said

> he does not know why a private foster care agency under contract with the

> state sent Marie to a Miami-Dade nursing home in violation of a judge’s

order.

> The agency, Hillsborough Kids, no longer works with the state. “The

> priority of the department,†he said, “is always to keep families

together, keep

> children in family settings and consider the best needs of a child and

> their family in often difficult and complex situations.â€

> Marie arrived at Florida Club Care Center on April 26, 2011 at 5:30 p.m. on

> a stretcher. “Patient was screaming,†records say.

> At 9 p.m., the next note in her chart said Marie was given applesauce and “

> comfort measures.†At 11 p.m., Marie was noted to be screaming, as she was

> in the next notation, at 2 a.m.. At 5:40 a.m., notations say Marie’s

> breathing was labored, and she was “warm to the touch.†Five minutes

later,

> Marie was “unresponsive.â€

> The 14-year-old died of a heart attack at 6:54 a.m. at North

> Medical Center. Health regulators faulted the nursing home for a spate of

> lapses:

> • Marie’s condition was not assessed by nurses until three hours after she

> arrived.

> • There’s no record that the nursing home ever told a doctor she was

> struggling to breathe.

> • Records suggest Marie did not receive life-saving anti-seizure drugs †"

> prescribed for three times each day †" past 9 or 10 a.m. the day before she

> died.

> • Despite the enhanced funding for pediatric residents, the nursing home

> acknowledged it had no policies for treating children differently than frail

> elders.

> • Even after Marie died, the home failed to notify the state, as required

> by Florida law. When questioned about the lapse, the home’s administrator

> took no responsibility for the girl’s death. “She did not expire in the

> facility,†he said. “She expired in the hospital.â€

> Federal regulators assessed a $300,000 fine, the largest by the feds

> against a nursing home in recent years. AHCA imposed a fine of $7,500, a

> spokeswoman said, but the fine has yet to be collected. The home currently

cares

> for 37 children.

> “We are still hurting †" very, very much,†said Freyre, the girl’s

> grandfather. “This is something we will never forget, and we will never

> forgive †" including the state of Florida.â€

> Read more here:

>

_http://www.miamiherald.com/2012/11/10/v-fullstory/3091570/no-place-like-home.ht\

ml#storylink=cpy_

>

(http://www.miamiherald.com/2012/11/10/v-fullstory/3091570/no-place-like-home.ht\

ml#storylink=cpy)

>

> Marie Freyre with her Minnie Mouse doll in her bedroom at home.

>

> Read more here:

>

_http://www.bradenton.com/2012/11/12/4275532/a-childs-sad-death-in-a-florida.htm\

l#storylink=cpy_

>

(http://www.bradenton.com/2012/11/12/4275532/a-childs-sad-death-in-a-florida.htm\

l#storylink=cpy)

>

>

> Read more here:

>

_http://www.bradenton.com/2012/11/12/4275532/a-childs-sad-death-in-a-florida.htm\

l#storylink=cpy_ (ht

>

tp://www.bradenton.com/2012/11/12/4275532/a-childs-sad-death-in-a-florida.html#s\

torylink=cpy)

>

>

>

>

>

>

> --

> Regards,

> Ven Sequenzia, Jr.

> President

> Autism Society of America

> State of Florida Chapter

>