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Coming up for air

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Hello to all..

I've been underwater for the last couple months. Despite monthly

hospital visits of a couple days each, I prepared a record number of

tax returns this year. It was a crazy season, but I survived. I'm

still working on a bunch of returns that are on extension, but the

worst part of tax season is over.

I'm still fighting big flareups of painful lesions in my mouth and

throat. The related pain is what has landed me in the hospital every

month. Remicade always fixes the problem within hours of the

infusions. All of the biopsies and tests for fungi, viruses, and

bacteria come back negative, so that leads to the conclusion that this

could be a Crohns flareup or other autoimmune condition. Behcet's

disease is one possibility, but nothing definitive has been concluded.

Interestingly, the doctors I've seen at town, including the

otolaryngologist, rheumatologist, gastroenterologist, and hepatologist

all agree on one thing: the anti-rejection meds used post-transplant

will likely stop these flareups. That's another argument in favor of

the transplant.

Which leads to the big news. We found a living donor, and town

put their final stamp of approval on the transplant a couple hours

ago. Right now, we're looking at mid June for the surgery. A lot

still has to happen between now and then, but things are finally

progressing.

I'm sorry I missed the ville conference this year...I was just

in no shape to make the trip, even though it would have been a great

after tax season vacation. I'll definitely make the next one, though.

Keep the faith, and I'll post updates as they are available.

Tom

PSC 1999

Crohns 2006

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