Repeat Oxygen User's Bill of Rights

[Guest guest]

There have been many discussions recently involving differences between oxygen providers and issues with patients getting what they need. So, I decided to repeat my Oxygen User's Bill of Rights:I deserve to be treated with caring by health care professionals interested in making my life as full as it can be and not just selling a product like a retailer.I deserve the system designed specifically and best to fit my needs, all of them.I deserve to be educated on all my choices and trained on any choice I make. I deserve to be informed of any possible emergency maintenance I might need and how to perform it.I deserve to be able to be comfortable in my home, to be able to easily get out and around locally and to be able to travel when I want to. I deserve solutions for all of those needs.I deserve to in no way be limited by my supplier's disregard for my needs or by them making decisions that are best for them.I deserve assistance in changing my setup as I progress and my needs change. I deserve to be able to sit at home comfortably with all factors considered including comfort, noise, cost, delivery and maintenance, and emergency situations considered. I deserve never to be concerned about running out or not having oxygen available.I deserve to be able to spend as much time as possible outside my home and have all the oxygen, tanks, or other devices necessary to accomodate that. I deserve to have different systems if needed for different things. For instance a shoulder pack may work in some cases and in others need more capacity and a cart.I deserve to be able to travel by car, train, or plane, as far as I want and for as long as I want. I deserve the availability to me of whatever system most appropriate at that time and for that trip. I deserve to have back up solutions so that I never have to be concerned whether at home, our for the day, or traveling of equipment malfunction or of running out.I deserve to at all times be made to feel I am special and that meeting my needs and assisting me in every way is the goal of my provider.I deserve to have my quality of life enhanced by my oxygen solutions, not lessened.Please don't settle for less.