questions

[Guest guest]

I just joined this group a couple of days ago. I have had to go to

daily digest because I also belong to a fibromyalgia support group and

the amount of posts is overwhelming. I looked at some of the pictures

to see if there was anyone near me. I live in Idaho near the

Washington border and I didn't find anyone. I did find Walt from Oak

Harbor, Wa. Walt, I do have some questions for you. I was just

diagnosed with IPF a few weeks ago so all of this full time oxygen and

how to get the most out of life with it is new to me. One of the main

things that I do, or did, whichever the case may be is spend from a

few days to a couple of weeks each month on a sailboat that is moored

at the Oak Harbor Marina. I haven't been there since the oxygen. I

know that I would be alright at the dock hooked up to shore power but

is there any way that I can go out on the water for extended periods?

I have a granddaughter on Island and I have been going to visit

her by boat. I would like to at least stay out for a week. Do you have

any ideas?

I have to sell my house and move back to the coast where my children

and grandchildren are. I also found the IPF center at the University

Hospital. My doctor here would like me to stay here so he can treat

me. It will be 3 months before he can tell if the treatment is

working. Staying here is just not an option for me. I have to be back

around my children now and I need the money from the house to take

care of my funeral arrangements. Can any of you tell me about these

centers and what they do? Do they treat patients there or are they

just for study of this awful disease? Sorry this is so long. Bev