Guest guest Posted December 7, 2008 Report Share Posted December 7, 2008 Hi to & Alyce ( & anyone else I've missed!) I dunno, everytime I go AWOL new folk turn up & it takes me an age to catch up again! To VATS or not to VATS seems to be an eternal question on this Board,,, tough one that! I did 'cos it was part of seeing if I could join the Bosentan Trial. It ended up an inconclusive act & so I was refused admission to the Trial & none the wiser as to which specific type of PF I have! In retrospect I wish I'd given it a big miss....I got no clear answers & a nicked nerve out of the experience...... aaaah the value of Hindsight! The other toughie is whether to try drug treatments or not given that it is all very unclear. I've refused Prednisone or anything else.....not a favoured choice as far as my Specialists are concerned but it is MY choice! I don't want to risk the known side effects, as simple as that. I'll stick with whatever my journey brings me. So far, I'm doing everything in my own power to clean up my diet & get as fit as possible BEFORE exercising becomes a BIG issue. ( I'm not on O2 yet!) That much I CAN do! I should explain that I live in a regional area in Australia & do not have much professional specialist PF support to rely on. I get tossed in with all sorts of other Lung Patients & we offer encouragement to each other. This Board as been so valuable for educating muself & for frienship & mentoring. I can't imagine being on this road without these folk! Stick with us & we'll help in all sorts of odd ways! Regards, in Oz IPF: Fibrotic NSIP/ UIP???? Reynaud's Disease Ro52 Antibody????????? May 2007 Quote Link to comment Share on other sites More sharing options...
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