One more question

[Guest guest]

I was told my the rheum it was related to arthritis rather than the

FM.

Jeanette

> Is the painless cracking and popping sound in one's joints

(neck,

> back, toes, fingers etc.) characteristic of FMS or is that more

along the

> lines of an arthritic condition? Thanks.

>

> Kurt

[Guest guest]

My toes and ankles have popped and cracked painlessly all of my life.

It's definitely not part of my Fm, not is it part of any arthritis for

me. I think it's pretty harmless, at least for me it is.

I'm with Darcy on this. My knees have popped and cracked most of my life.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman.

[Guest guest]

My toes and ankles have popped and cracked painlessly all of my life.

It's definitely not part of my Fm, not is it part of any arthritis for

me. I think it's pretty harmless, at least for me it is.

I'm with Darcy on this. My knees have popped and cracked most of my life.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman.

[Guest guest]

" SANDER, KURT " wrote:

>

> Is the painless cracking and popping sound in one's joints (neck,

> back, toes, fingers etc.) characteristic of FMS or is that more along the

> lines of an arthritic condition? Thanks.

My toes and ankles have popped anc cracked painlessly all of my life.

It's definitely not part of my Fm, not is it part of any arthritis for

me. I think it's pretty harmless, at least for me it is.

Darcy

[Guest guest]

Thanks everybody who wrote back on my last question. Im getting

anxiety thinking into the future.

another question I have is, how long does a new liver last? I know

reoccurance is high with PCS. So how long even with reoccurant PCS can

a liver last? again not too be downer. Just need to know from all of

you that might know a bit more.

thanks

[Guest guest]

<

>

, I don't think there's any way to know. I'm sure you'll get

different answers to this question. My hepatologist says that getting

a liver transplant does not get rid of the disease and that the

disease will attack the new liver. It seems to him to be more a

matter of when, not if. And, like with the original parts, there's no

way to know. Statistically, I think it's usually about the same

number of years (10-15 according to my doc), but you'll find people

outside of that range. He has one patient that the liver only lasted

3 years before being affected by PSC, and that patient was diagnosed

with PSC 13 years prior to needing a transplant. They had all hoped

the new liver would last much longer than this. And I'm sure there

are others on the other side of the spectrum that have no signs of PSC

many years after transplant. I think that's what's so difficult about

this disease. You know it's coming, but you don't know when. And,

heck, you never know, maybe it won't come at all!! I wish I could be

of more help to you. I'm new to this as well (diagnosed this past

fall) and I'm still trying to wrap my head around it all.

And to answer your first question, my doc says that, statistically

speaking, most patients will need a transplant between 10 and 15 years

after diagnosis. There will be patients outside of this range, but

most will probably fall into it.

Yours,

Suzanna