Guest guest Posted February 20, 2009 Report Share Posted February 20, 2009 Hi folks I joined this group Feb 7 2009 just a little history and update. I am 62 years old and was diagnosed with IPF in 2004.I am currently on 2 liters of oxygen 24/7 I was on the Toronto transplant list since 2005 to now. Since I was stable for a long time the doctors decided to not do anything. August 2008 I started deteriorating and my PFT went from 55 % to 34% by Dec 2008. I was re evaluated in Dec and was told that due to complications with my heart and kidneys transplant was not an option any more. The doctors ordered palliative care for me in Jan 2009 and basically suggested that I would have to live as best as I could. I went through a lot of soul searching and dismay and depression. Well our housekeeper who comes by monthly suggested I go see a Homeopathic doctor she has known for a number of years. I was very skeptical and just brushed her and my wife off and told them to leave me alone. Well I did call the homeopath and left him a message that I had IPF and if he could help me to call me. He called me a couple of days later and said he could help me.I went to see him on Jan 15 2009 and he gave me some drops and magnesium powder. After about 4 days of these drops my nasal passages cleared up and I could sleep at night.He gave me a second set of treatment on Jan 22 2009 and again it was certain medications in sugar crystals to be taken over 6 days and then a liquid afterward 2 pumps twice daily. I saw him last week for a followup and he suggested I take a different liquid instead of Advair which I used 2 times a day. Well I was once again doubting him but started taking the drops on my tongue since last Friday and have not used Advair for a week. He said he wants me to get off steroids as soon as I can. I just started taking the 2nd set of medications since yesterday and this morning I am breathing easier. I am hoping that this medications with Pulmonary Rehab which I have joined at the local hospital will improve my quality of life. I am currently walking my dog a short distance. I am driving I am execercising 4 times a week with swimming, walking,treadmill, bike, and steps and a little bit of weights,under the supervision of the Pulmonary Rehab Team. None of the above was possible for a long time. As my Homeopathic doctor said I have gone to him at the last stage and he is going to the best he can and I am already seeing subtle changes. Everywhere I read in the medical community this disease is terminal and we all have to die one day but we can choose to live life as best as we can. One last note the homeopathic medication is not cheap but you can not take anything with you when you leave this world. So friends some of you may read this and say this is just my story but to those of you who want to choose to live a quality of life that is bearable please do what you can to help your selves. God Bless. Quote Link to comment Share on other sites More sharing options...
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