Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 First of all, Happy New Year to you all and to our new members who will need a lot of help to keep them going. I hope your New Year of 2009 will have many many days and nights of peace, love and comfort. My Pulmonologist called this morning, and he said I did not sound good at all, so he is coming to see me at home. He will call first. I know he does not live far from here. As far as the oxygen goes, going to a higher amount does not do any good, but what DOES do good is STAYING PUT if you get me. I have to learn to sit and not do anything, either watch tv or do computer work. Eat slowly, walk slowly and totally change ME. I don't know, I have gone full speed ahead all my life, and I have continually heard it all the time from you guys here on the board over and over too. My breathing condition is my own fault, not paying attention to what I am told to do. I do know that the very very shortness of breath is due to moving at all. That part I don't like. Haven't even been able to cook anything and that is my joy. I am weak and tired, but not sleepy tired, it is the kind of tired from inside my bones. The pulmo told me that there is nothing he can do for me and there is nothing new on the market at this time for my condition, my lungs are very stiff. Had complete physical last week before eye surgery and he said I have fibrosis and it is what it is. And so, I will continue, I promise, to say every day: I LOVE YOU THIS DAY. I try so hard to be the Persistent Fighter, but my bones are tired and I can't do anything anymore since this week. My eye is coming along, no pain or discomfort there, so just continuing the drops, no big deal there. I do hope that you all will stay well and stay happy no matter what happens to you, enjoy every breath God gives you. and please always remember: I LOVE YOU THIS DAY !!!! MARY LOU - RICHMOND VA (74) IPF - 02 Quote Link to comment Share on other sites More sharing options...
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