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Re: VSL #3 Question

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If you can get the prescription you will get more for less money. The over the counter has 450 billion bacteria and the prescription has 900 billion. With the prescription you pay a co-pay and get a month supply.

In the information packet it says it can be mixed with cold water or any cold non-carbonated beverage. It can also be mixed with cold foods such as ice cream, yogurt, or apple sauce. So no soft drink.

I don't know if there are many flavors. Mine was just one kind. It actually tastes pretty good. I think it has an orange flavor or something.

If you do get the prescription kind read back through some of the old messages here about how to order it. It's a little bet of a pain but worth it.

Arman

arman_shirin@...

VSL #3 Question

For those of you who take VSL #3 in the packet form can you tell me if the unflavored is truly unflavored and can not be tasted if mixed with a soft drink or juice? I got the okay from Todd’s GI that he could take it and I was going to order it online and see that there is a flavor packet or unflavored. I originally was just going to get the pill form (even though there are less bacteria numbers) because Todd hates any kind of powder…but if it truly doesn’t have a taste maybe he would be willing to try it. I also asked if the GI could give a prescription, but they wouldn’t do that they said you can just order online. Is there a difference getting a prescription?

Thanks so much.

Joanne (mom of Todd, 22, PSC 01, Crohns 02, TX Twice 03, rPSC 05, Diabetes 06, trying his best to live life to the fullest 08)

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If you can get the prescription you will get more for less money. The over the counter has 450 billion bacteria and the prescription has 900 billion. With the prescription you pay a co-pay and get a month supply.

In the information packet it says it can be mixed with cold water or any cold non-carbonated beverage. It can also be mixed with cold foods such as ice cream, yogurt, or apple sauce. So no soft drink.

I don't know if there are many flavors. Mine was just one kind. It actually tastes pretty good. I think it has an orange flavor or something.

If you do get the prescription kind read back through some of the old messages here about how to order it. It's a little bet of a pain but worth it.

Arman

arman_shirin@...

VSL #3 Question

For those of you who take VSL #3 in the packet form can you tell me if the unflavored is truly unflavored and can not be tasted if mixed with a soft drink or juice? I got the okay from Todd’s GI that he could take it and I was going to order it online and see that there is a flavor packet or unflavored. I originally was just going to get the pill form (even though there are less bacteria numbers) because Todd hates any kind of powder…but if it truly doesn’t have a taste maybe he would be willing to try it. I also asked if the GI could give a prescription, but they wouldn’t do that they said you can just order online. Is there a difference getting a prescription?

Thanks so much.

Joanne (mom of Todd, 22, PSC 01, Crohns 02, TX Twice 03, rPSC 05, Diabetes 06, trying his best to live life to the fullest 08)

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If you can get the prescription you will get more for less money. The over the counter has 450 billion bacteria and the prescription has 900 billion. With the prescription you pay a co-pay and get a month supply.

In the information packet it says it can be mixed with cold water or any cold non-carbonated beverage. It can also be mixed with cold foods such as ice cream, yogurt, or apple sauce. So no soft drink.

I don't know if there are many flavors. Mine was just one kind. It actually tastes pretty good. I think it has an orange flavor or something.

If you do get the prescription kind read back through some of the old messages here about how to order it. It's a little bet of a pain but worth it.

Arman

arman_shirin@...

VSL #3 Question

For those of you who take VSL #3 in the packet form can you tell me if the unflavored is truly unflavored and can not be tasted if mixed with a soft drink or juice? I got the okay from Todd’s GI that he could take it and I was going to order it online and see that there is a flavor packet or unflavored. I originally was just going to get the pill form (even though there are less bacteria numbers) because Todd hates any kind of powder…but if it truly doesn’t have a taste maybe he would be willing to try it. I also asked if the GI could give a prescription, but they wouldn’t do that they said you can just order online. Is there a difference getting a prescription?

Thanks so much.

Joanne (mom of Todd, 22, PSC 01, Crohns 02, TX Twice 03, rPSC 05, Diabetes 06, trying his best to live life to the fullest 08)

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It does have a taste, but not too extremely strong. I actually kind of

like the flavored variety (although I wouldn't eat it for the seer

pleasure of it!). Since the bacteria are similar to the bacteria they

use in yogurt, it does taste a bit like yogurt, and I couldn't taste it

at all when I mixed it with one of the little yogurt cups.

Usually I just mix it with a little water and then chase it with some

more water.

athan

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It does have a taste, but not too extremely strong. I actually kind of

like the flavored variety (although I wouldn't eat it for the seer

pleasure of it!). Since the bacteria are similar to the bacteria they

use in yogurt, it does taste a bit like yogurt, and I couldn't taste it

at all when I mixed it with one of the little yogurt cups.

Usually I just mix it with a little water and then chase it with some

more water.

athan

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It does have a taste, but not too extremely strong. I actually kind of

like the flavored variety (although I wouldn't eat it for the seer

pleasure of it!). Since the bacteria are similar to the bacteria they

use in yogurt, it does taste a bit like yogurt, and I couldn't taste it

at all when I mixed it with one of the little yogurt cups.

Usually I just mix it with a little water and then chase it with some

more water.

athan

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Thanks Arman and athan. I greatly appreciate your responses.

Joanne (mom of Todd, 22)

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athan... I checked out there web site for VSL #3 but there is no way on my SSD I can afford it & being OTC my medicare or medicaid will cover it.... please tell me would (papaya enzyme acidophilus & yeast would they do the same? I order my stuff thru vitacost.com it is natural or organic Jeanne PSC U/C stage 4athan wrote: It does have a taste, but not too extremely strong. I actually kind of like the flavored variety (although I wouldn't eat it for the seer pleasure of it!). Since the bacteria are similar to the bacteria they use in yogurt, it does taste a bit like yogurt, and I couldn't taste it at all when I mixed it with one of the little yogurt cups.Usually I just mix it with a little water and then chase it with some more water.athan------------------------------------

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athan... I checked out there web site for VSL #3 but there is no way on my SSD I can afford it & being OTC my medicare or medicaid will cover it.... please tell me would (papaya enzyme acidophilus & yeast would they do the same? I order my stuff thru vitacost.com it is natural or organic Jeanne PSC U/C stage 4athan wrote: It does have a taste, but not too extremely strong. I actually kind of like the flavored variety (although I wouldn't eat it for the seer pleasure of it!). Since the bacteria are similar to the bacteria they use in yogurt, it does taste a bit like yogurt, and I couldn't taste it at all when I mixed it with one of the little yogurt cups.Usually I just mix it with a little water and then chase it with some more water.athan------------------------------------

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VSL#3 is awfully expensive. If you do have drug coverage, it's possible

that they will cover the prescription strength version of VSL33 (called

VSL#3 DS). My insurance also wouldn't cover the OTC version but I just

finally managed to get the prescription strength covered, so it might be

worthwhile to check If you need help figuring out how to get it covered

you can call Sigma Tau's (manufacturer of VSL#3) reimbursement hotline

at . They were very helpful to me.

If that doesn't work out you could try one of the other probiotics that

are available. I don't really know if they'd help or not.. my GI doctor

did recommend them to me (flora Q specifically) so they may be of some

help. The acidophilus you mention is a probiotic so it may be helpful.

I have no real knowledge of the papaya enzyme or yeast, so I'll leave

those to others who may know more!

Hope that helps!

athan

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VSL#3 is awfully expensive. If you do have drug coverage, it's possible

that they will cover the prescription strength version of VSL33 (called

VSL#3 DS). My insurance also wouldn't cover the OTC version but I just

finally managed to get the prescription strength covered, so it might be

worthwhile to check If you need help figuring out how to get it covered

you can call Sigma Tau's (manufacturer of VSL#3) reimbursement hotline

at . They were very helpful to me.

If that doesn't work out you could try one of the other probiotics that

are available. I don't really know if they'd help or not.. my GI doctor

did recommend them to me (flora Q specifically) so they may be of some

help. The acidophilus you mention is a probiotic so it may be helpful.

I have no real knowledge of the papaya enzyme or yeast, so I'll leave

those to others who may know more!

Hope that helps!

athan

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VSL#3 is awfully expensive. If you do have drug coverage, it's possible

that they will cover the prescription strength version of VSL33 (called

VSL#3 DS). My insurance also wouldn't cover the OTC version but I just

finally managed to get the prescription strength covered, so it might be

worthwhile to check If you need help figuring out how to get it covered

you can call Sigma Tau's (manufacturer of VSL#3) reimbursement hotline

at . They were very helpful to me.

If that doesn't work out you could try one of the other probiotics that

are available. I don't really know if they'd help or not.. my GI doctor

did recommend them to me (flora Q specifically) so they may be of some

help. The acidophilus you mention is a probiotic so it may be helpful.

I have no real knowledge of the papaya enzyme or yeast, so I'll leave

those to others who may know more!

Hope that helps!

athan

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> For those of you who take VSL #3 in the packet form can you tell me

if the unflavored is truly unflavored and can not be tasted if mixed

with a soft drink or juice?

My son (13) has taken VSL since he was dx Jan '07 (minus a couple

months when he stopped, then restarted it). The first time he had

it, we just mixed it w/ water; he spat it out like it was poison and

said it has an " alien " taste, " like nothing (he's) ever had before on

this earth " . A little lol to his dramatic expression aside, I don't

think it tastes very good on its own. We tried mixing it in other

liquids, but nothing worked well enough to cover it's Martian

flavor. He takes it mixed with applesauce, pudding, yogurt, ice

cream, and such. His favorite to mix it w/ is chocolate soy pudding -

-he says he can't taste even a trace of it in that (better even than

when mixed w/ milk pudding).

I didn't know they came flavored --I'll have to ask our pharmacist

about ordering it that way. Thanks for that heads up.

>I got the okay from Todd's GI that he could take it and I was going

to order it online and see that there is a flavor packet or

unflavored. I originally was just going to get the pill form (even

though there are less bacteria numbers) because Todd hates any kind

of powder…but if it truly doesn't have a taste maybe he would be

willing to try it.

My husband takes the pill form of the probiotic 'Align'. It's much,

muuuch less potent a dose. What strength is the pill form of VSL?

Wyatt (my son) takes the Rx strength VSL (#3 D-S) -1x/dy.

>I also asked if the GI could give a prescription, but they wouldn't

do that they said you can just order online. Is there a difference

getting a prescription?

Wyatt's had a Rx for it since the beginning. The first 2 months, our

insurance refused to cover it (it was the Rx strength, but they did

not recognize it as an 'acceptable Rx' from their list. A call from

Wyatt's Dr's office cleared that up for us nicely, though and it's

been covered since and only costs the $30 copay now. It is very

expensive out here (to buy from our pharmacy). Only 2 pharmacies out

here get it and it was $250 at one, almost $300 at the other ('course

that's when we were getting 2x/dy in a single month). That's as much

as Wyatt's Pentasa if we didn't have an Rx for that --way too rich

for our middle class pockets, would put a hole in that pocket w/o the

Rx. I hope you either get a great price online or can get a Rx for

it and have it covered, Joanne.

Good luck!

--Meghan, mom to 13yo Wyatt-psc, ibd, fap, ai hives, gerd

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> For those of you who take VSL #3 in the packet form can you tell me

if the unflavored is truly unflavored and can not be tasted if mixed

with a soft drink or juice?

My son (13) has taken VSL since he was dx Jan '07 (minus a couple

months when he stopped, then restarted it). The first time he had

it, we just mixed it w/ water; he spat it out like it was poison and

said it has an " alien " taste, " like nothing (he's) ever had before on

this earth " . A little lol to his dramatic expression aside, I don't

think it tastes very good on its own. We tried mixing it in other

liquids, but nothing worked well enough to cover it's Martian

flavor. He takes it mixed with applesauce, pudding, yogurt, ice

cream, and such. His favorite to mix it w/ is chocolate soy pudding -

-he says he can't taste even a trace of it in that (better even than

when mixed w/ milk pudding).

I didn't know they came flavored --I'll have to ask our pharmacist

about ordering it that way. Thanks for that heads up.

>I got the okay from Todd's GI that he could take it and I was going

to order it online and see that there is a flavor packet or

unflavored. I originally was just going to get the pill form (even

though there are less bacteria numbers) because Todd hates any kind

of powder…but if it truly doesn't have a taste maybe he would be

willing to try it.

My husband takes the pill form of the probiotic 'Align'. It's much,

muuuch less potent a dose. What strength is the pill form of VSL?

Wyatt (my son) takes the Rx strength VSL (#3 D-S) -1x/dy.

>I also asked if the GI could give a prescription, but they wouldn't

do that they said you can just order online. Is there a difference

getting a prescription?

Wyatt's had a Rx for it since the beginning. The first 2 months, our

insurance refused to cover it (it was the Rx strength, but they did

not recognize it as an 'acceptable Rx' from their list. A call from

Wyatt's Dr's office cleared that up for us nicely, though and it's

been covered since and only costs the $30 copay now. It is very

expensive out here (to buy from our pharmacy). Only 2 pharmacies out

here get it and it was $250 at one, almost $300 at the other ('course

that's when we were getting 2x/dy in a single month). That's as much

as Wyatt's Pentasa if we didn't have an Rx for that --way too rich

for our middle class pockets, would put a hole in that pocket w/o the

Rx. I hope you either get a great price online or can get a Rx for

it and have it covered, Joanne.

Good luck!

--Meghan, mom to 13yo Wyatt-psc, ibd, fap, ai hives, gerd

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