Bruce Neti Pot

[Guest guest]

I also have complete blockage but with the Netti pot it opens my nose up. It doesn't drain threw on the fist try. I blow my nose after every use, three to five time a side.. I use it in both sides. It drains the best from my right to left nostril. Some times it never makes it from the left to the right but is still clears out a lot of JUNK. Give it any other try P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 9 LPM 8/04, PH 3/06, ILL yo 60From: Bruce Moreland

Subject: Re: reply to SherTo: Breathe-Support Date: Friday, January 23, 2009, 5:12 PM

Tina

I'm with you. As much as I hate going to another doctor, if my current

ones can't address it, I'm going to have to go to a specialist. I've

read a lot about sinusitis and it perpetually returning once you really

get it. Some think antibiotics help, some say they just temporarily

reduce the inflammation. I can't do a neti pot as I have solid blockage

and it can't get through. I think because it's not life threatening they

just tend to ignore it and not treat it as serious. However, right now,

I'm more uncomfortable from congestion and sinuses than I am from the

PF. I did try Mucinex D too. It pushed my pulse way up, even at rest, so

like being on speed for me I guess.

>

> From: Sher Bauman bofus (AT) wbcable (DOT) net>

> Subject: Re: HI EVERYONE

> To: Breathe-Support@ yahoogroups. com

> Date: Thursday, January 22, 2009, 3:13 PM

>

>

>

>

> 

> Diane...Want to say hi to you. There have been a few sad posts today

and I sense your fear and frustration and fatigue.

> Acceptance is a hard thing to do, I work on it all the time.

> I don't think Hospice is always 'morphine and death'...Vicky has been

w/Hospice for quite awhile and has actually improved. She was at death's

door 2-3 times. Yes, she is on morphine but each of us are different and

morphine (I think) can be a good med for us. I needed and had

relief from morphine but I'm allergic to it so it's been hard finding

something else that works as well for my compromised lungs. Pulmodude

and the pain clinic both state that morphine is one of the better drugs

for "us". If it comes to that for you I hope a little encouragement that

it does work well for many will be of help.

> Everything is trial and error anyway. I hate this disease!

> I think it's a good thing tho' that you are working on getting your

affairs in order. It is suggested to ALL of us that we do that, sooner

than later.

> A warm hug to you Diane, keep us posted on how you are doing.

> Love,

> Â

> MamaSher, age 70. IPF 3-06, OR. Â

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

>

> HI EVERYONE

>

>

>

> Hi-sorry I haven't posted much lately. I did go to a new specialist

last week at Albany Medical Center. She is the head of ICU/PULM and

works with lung transplants- trained at Colombia Univ. SHe read all my

reports form a few months ago and sees no reason to do any further

tests. I was told back then I only had 48% of my lung capacity left-she

said no way-only about 32%. Because my body is not tolerating any of the

drugs and most of them paralyze my nervous system, this is about the end

for me. She absoltely will not treat the pulmonary hypertension because

it is a secondary cause to the lung disease. UGH I still don't

understand why it won't help!!! She suggested Hospice when I am ready. I

am very scared and always related Hospice with Morphine and death

shortly after. I am fighting my way thru each day though getting weaker.

Have much paperwork to do. Just closed business and have taxes and

ledgers to do ect as well as will and bills for hubby. He will

> be lost since I have done everything for 20yrs.... I cry most days

now with mixed feelings wondering how I'm going to get thru the day.

Recently the town I live in sent me someone once a month to help clean,

vac, do laundry ect. Thank God for some people. That was supposed to be

ME-continuing my giving to society and helping people. Life is unfair.

Like you all say-you don't come stamped with a date of expiration- so no

ones knows except God. I try to keep faith and say prayers for all of

you also. Thank you for being there for me. I hope Hospice does me well

for a little while longer when I do decide.

>

> Diane PF,Raynauds, PM,Sjorgrens 2006 PH 2008

>