Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 I have dealt with this for a long time prior to my psc diagnosis. I previously was diagnosed with acid reflux. I have found just lately that if I use my acid reflux medication at supper time, it makes a world of difference. Also, general tips for acid reflux help. For example, not eating after 6:00 in the evening and being conscious of not laying down within 3 hours after eating. Some of this is a huge adjustment. However, it helps alot. Good Luck. janel >>> " mclean_mcbain " 2/1/2007 1:33 am >>> I feel like a bit of a voyeur, I have been a member of the PSC support group since last October; I have posted only a couple of messages, but frequently read the postings. I feel very fortunate for where I am in the entire process and I am becoming more aware of the issues that I may have to face in the future and it is all due to everyone sharing your trials and tribulations. I want to say thank you for that. I have been pretty asymptomatic to date (knock on wood - or whatever may else help!) Although this is a relatively embarrassing issue, I feel that this is the best place to ask the question. I have been to see my doctor, and have mentioned it to other people in the medical field, and no one seems to take me very seriously and that is the issue of halitosis. They have implied that it could be my imagination! Trust me, it is not! I have good oral hygiene, I actively floss, brush, etc., but I know that I get extreme halitosis. It is not due to garlic, etc, but it seems to be coming from inside my body. It is starting to make me very self conscious and it is directly affecting my work life, and more importantly, how I show affection to my wife. I think that it is directly connected to my digestion. My self diagnosis says that my altered digestion is backing up into stomach and I am getting breath that smells of fecal matter. What makes matters worse, is that I can't tell when it is happening or not. I was hoping that someone else may have dealt with this issue and could advise me, so that I could " educate " my doctor or move to some home remedy solution. In many of the medical books that are available, it only seems to say that bad breath can be a sign of other issues internally. Still, no help to me. I feel a little embarrassed posting such an insignificant issue, compared to the issues that many of you are staring down. Best of luck to everyone who reads this and thanks for any replies. For all of you who post on a regular basis and only get a reply or two, please know that there are many other people that read and benefit from your postings. Thanks, Vancouver Island, Canada PSC/UC Nov '05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 I have dealt with this for a long time prior to my psc diagnosis. I previously was diagnosed with acid reflux. I have found just lately that if I use my acid reflux medication at supper time, it makes a world of difference. Also, general tips for acid reflux help. For example, not eating after 6:00 in the evening and being conscious of not laying down within 3 hours after eating. Some of this is a huge adjustment. However, it helps alot. Good Luck. janel >>> " mclean_mcbain " 2/1/2007 1:33 am >>> I feel like a bit of a voyeur, I have been a member of the PSC support group since last October; I have posted only a couple of messages, but frequently read the postings. I feel very fortunate for where I am in the entire process and I am becoming more aware of the issues that I may have to face in the future and it is all due to everyone sharing your trials and tribulations. I want to say thank you for that. I have been pretty asymptomatic to date (knock on wood - or whatever may else help!) Although this is a relatively embarrassing issue, I feel that this is the best place to ask the question. I have been to see my doctor, and have mentioned it to other people in the medical field, and no one seems to take me very seriously and that is the issue of halitosis. They have implied that it could be my imagination! Trust me, it is not! I have good oral hygiene, I actively floss, brush, etc., but I know that I get extreme halitosis. It is not due to garlic, etc, but it seems to be coming from inside my body. It is starting to make me very self conscious and it is directly affecting my work life, and more importantly, how I show affection to my wife. I think that it is directly connected to my digestion. My self diagnosis says that my altered digestion is backing up into stomach and I am getting breath that smells of fecal matter. What makes matters worse, is that I can't tell when it is happening or not. I was hoping that someone else may have dealt with this issue and could advise me, so that I could " educate " my doctor or move to some home remedy solution. In many of the medical books that are available, it only seems to say that bad breath can be a sign of other issues internally. Still, no help to me. I feel a little embarrassed posting such an insignificant issue, compared to the issues that many of you are staring down. Best of luck to everyone who reads this and thanks for any replies. For all of you who post on a regular basis and only get a reply or two, please know that there are many other people that read and benefit from your postings. Thanks, Vancouver Island, Canada PSC/UC Nov '05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 I have dealt with this for a long time prior to my psc diagnosis. I previously was diagnosed with acid reflux. I have found just lately that if I use my acid reflux medication at supper time, it makes a world of difference. Also, general tips for acid reflux help. For example, not eating after 6:00 in the evening and being conscious of not laying down within 3 hours after eating. Some of this is a huge adjustment. However, it helps alot. Good Luck. janel >>> " mclean_mcbain " 2/1/2007 1:33 am >>> I feel like a bit of a voyeur, I have been a member of the PSC support group since last October; I have posted only a couple of messages, but frequently read the postings. I feel very fortunate for where I am in the entire process and I am becoming more aware of the issues that I may have to face in the future and it is all due to everyone sharing your trials and tribulations. I want to say thank you for that. I have been pretty asymptomatic to date (knock on wood - or whatever may else help!) Although this is a relatively embarrassing issue, I feel that this is the best place to ask the question. I have been to see my doctor, and have mentioned it to other people in the medical field, and no one seems to take me very seriously and that is the issue of halitosis. They have implied that it could be my imagination! Trust me, it is not! I have good oral hygiene, I actively floss, brush, etc., but I know that I get extreme halitosis. It is not due to garlic, etc, but it seems to be coming from inside my body. It is starting to make me very self conscious and it is directly affecting my work life, and more importantly, how I show affection to my wife. I think that it is directly connected to my digestion. My self diagnosis says that my altered digestion is backing up into stomach and I am getting breath that smells of fecal matter. What makes matters worse, is that I can't tell when it is happening or not. I was hoping that someone else may have dealt with this issue and could advise me, so that I could " educate " my doctor or move to some home remedy solution. In many of the medical books that are available, it only seems to say that bad breath can be a sign of other issues internally. Still, no help to me. I feel a little embarrassed posting such an insignificant issue, compared to the issues that many of you are staring down. Best of luck to everyone who reads this and thanks for any replies. For all of you who post on a regular basis and only get a reply or two, please know that there are many other people that read and benefit from your postings. Thanks, Vancouver Island, Canada PSC/UC Nov '05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2007 Report Share Posted February 1, 2007 I had the same problem prior to dilatation and stenting. I believe this is fairly common in liver disease. Arne 55 - UC 1977, PSC 2000 Alive and (mostly) well in Minnesota ________________________________ Although this is a relatively embarrassing issue, I feel that this is the best place to ask the question. I have been to see my doctor, and have mentioned it to other people in the medical field, and no one seems to take me very seriously and that is the issue of halitosis. They have implied that it could be my imagination! Trust me, it is not! Quote Link to comment Share on other sites More sharing options...
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