I feel like I'm a ping pong ball..................

[Guest guest]

Here I am again asking for your opinions on my case again....

I was told 3 wks ago that I had CCA and had to go on Chemo and

Radiation for 6 weeks and then have surgery to be sure no cancer

outside the liver or in the lymph glands.....

Well, I went to UW Madison hospital and clinics yesterday and first

off saw the Radiologist oncologist, he came in the room about an hour

after I was put in the room and he acts like he has no idea who I am

or what I am there for....then his student gives him a piece of paper

and he starts talking in circles...I finally looked at him and

said " are you telling me you are not going to do radiation on me? "

and he says Yes based on the results of this test I have in my hand

you do not have cancer and not saying in a few weeks or months that

you may have it....but right now you do not.....I was

dumbfounded.....so I left him and went on to my oncologist and he

say " Based on this paper which I just read for the time today, I

can't give you Chemo " I was so happy and suprised I could not

believe my luck....I thought, boy the power of prayers are really

working for me today.....

I was to see a surgeon next and was told to go to the tx department

and see him and the oncologist would call and talk with him....so off

I go and I'm sitting in the room and my Hepatologist walks by and

stops in to say hi and says how are you feeling and I told him I was

confussed, then he asked why and I told him what the radiologist &

oncologist told me so he starts to look at my file on the

computer...I said I think this is what you are looking for and showed

him my results of the test that came back from Mayo's...he said he

was looking at the cytology part and that was telling him we needed

to do this tx with the radiation and chemo and get me transplanted

ASAP......well, he leaves and in comes the surgeon and he tells me he

goes along with my hep and thinks we should get going ASAP while I

still had a window to cure this......

Then I had a ultrasound down my throat and they checked my organs and

lymph nodes and all was great there.....they could see the PSC and

the strictures but lymph glands were fine and all the organs were

fine....GOOD NEWs. I leave the hospital kinda in a state of

shock......then tonight I get a call from my cordinator and he says

that the oncologist said he would go against his training and do the

Chemo as they had a meeting today and my Hepatologist convinced him

why this should be done now.....Radiologist did not show up for the

meeting so the surgeon, hepatologist and the oncologist are all going

to go to him next week and convince him this needs to be done

now......

All I can say is I am drained and don't know what to think or feel....

Anyone ever go through anything like this.....

CJ

psc 2008