Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Martha, My husband also has elevated copper and was tested for 's disease by Dr Lindor at Mayo in July. He thankfully doesn't have 's and we were told that it is a symptom of the PSC. The liver has a hard time with the copper sometimes in people with PSC. You can check out which foods contain copper and limit your intake of those foods to help make it easier on your body. And the cataracts are also a side effect of the PSC and UC I believe. I hope that helps a little bit. wife to Rick-crohn's, psc, spondyloarthropathy, gilbert's > > I was diagnosed with mild bilateral cataracts a few months back. Cataracts can be associated > with 's disease, a genetically-based liver disease caused by abnormal copper handling. > I had no Kayser-Fleischer rings on the pupil, another 's sign. As I understand, it is not > unusual to have elevated copper with PSC. I have never taken prednisone or other > corticosteroids, which is also a risk factor for cataracts. > > My gastroenterologist added serum copper to my 3-mo labs. My copper level is elevated, but > not extreme, at 1772 ug/L, compared to a normal level of 700-1500 ug/L. Could this be a > plausible explanation for the cataracts? My father also has cataracts, but got them at age > 70+. > > My history is that I've been asymptomatic for UC and PSC for 29 and 16 years, respectively. > My ALP is usually near-normal (not checked it this time). In these labs my AST is 43 (norm > 17-37 U/L) and ALT is 66 (norm 30-65 U/L. Recent MRCP was unchanged from 2 years ago. > > I've been off-line for a long time. Just a good sort of RL busy- ness. > > My best wishes to all of you, and thanks for any insight you can give me! > Martha (MA) > age 45, UC 1979, PSC 1992, asymptomatic > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Martha, My husband also has elevated copper and was tested for 's disease by Dr Lindor at Mayo in July. He thankfully doesn't have 's and we were told that it is a symptom of the PSC. The liver has a hard time with the copper sometimes in people with PSC. You can check out which foods contain copper and limit your intake of those foods to help make it easier on your body. And the cataracts are also a side effect of the PSC and UC I believe. I hope that helps a little bit. wife to Rick-crohn's, psc, spondyloarthropathy, gilbert's > > I was diagnosed with mild bilateral cataracts a few months back. Cataracts can be associated > with 's disease, a genetically-based liver disease caused by abnormal copper handling. > I had no Kayser-Fleischer rings on the pupil, another 's sign. As I understand, it is not > unusual to have elevated copper with PSC. I have never taken prednisone or other > corticosteroids, which is also a risk factor for cataracts. > > My gastroenterologist added serum copper to my 3-mo labs. My copper level is elevated, but > not extreme, at 1772 ug/L, compared to a normal level of 700-1500 ug/L. Could this be a > plausible explanation for the cataracts? My father also has cataracts, but got them at age > 70+. > > My history is that I've been asymptomatic for UC and PSC for 29 and 16 years, respectively. > My ALP is usually near-normal (not checked it this time). In these labs my AST is 43 (norm > 17-37 U/L) and ALT is 66 (norm 30-65 U/L. Recent MRCP was unchanged from 2 years ago. > > I've been off-line for a long time. Just a good sort of RL busy- ness. > > My best wishes to all of you, and thanks for any insight you can give me! > Martha (MA) > age 45, UC 1979, PSC 1992, asymptomatic > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Martha, My husband also has elevated copper and was tested for 's disease by Dr Lindor at Mayo in July. He thankfully doesn't have 's and we were told that it is a symptom of the PSC. The liver has a hard time with the copper sometimes in people with PSC. You can check out which foods contain copper and limit your intake of those foods to help make it easier on your body. And the cataracts are also a side effect of the PSC and UC I believe. I hope that helps a little bit. wife to Rick-crohn's, psc, spondyloarthropathy, gilbert's > > I was diagnosed with mild bilateral cataracts a few months back. Cataracts can be associated > with 's disease, a genetically-based liver disease caused by abnormal copper handling. > I had no Kayser-Fleischer rings on the pupil, another 's sign. As I understand, it is not > unusual to have elevated copper with PSC. I have never taken prednisone or other > corticosteroids, which is also a risk factor for cataracts. > > My gastroenterologist added serum copper to my 3-mo labs. My copper level is elevated, but > not extreme, at 1772 ug/L, compared to a normal level of 700-1500 ug/L. Could this be a > plausible explanation for the cataracts? My father also has cataracts, but got them at age > 70+. > > My history is that I've been asymptomatic for UC and PSC for 29 and 16 years, respectively. > My ALP is usually near-normal (not checked it this time). In these labs my AST is 43 (norm > 17-37 U/L) and ALT is 66 (norm 30-65 U/L. Recent MRCP was unchanged from 2 years ago. > > I've been off-line for a long time. Just a good sort of RL busy- ness. > > My best wishes to all of you, and thanks for any insight you can give me! > Martha (MA) > age 45, UC 1979, PSC 1992, asymptomatic > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Martha, The Mayo Clinic [mayoclinic.com], use to have a detailed list of foods that contains copper, and the amount in each. It was inactivated, few years back. It would be interesting to go through it if still there, and may be lessen the amount that you do consume of them. Olives, [specially black i think], for example contains lots of copper. I, myself try to limit olives in my diet, although i love olives. I do have a begining of cataracts. I have taken prednisone for UC. Plus having PSC. Also my mother had cataracts at about your father's, age. My best wishes for you. And that is wonderful to be asymptomatic from both PSC and UC for such a number of years. Subject: Re: Copper levelsTo: Date: Saturday, September 27, 2008, 2:56 AM You can check out which foods contain copper and limit your intake of those foods to help make it easier on your body. wife to Rick-crohn's, psc, spondyloarthropathy , gilbert's>> I was diagnosed with mild bilateral cataracts a few months back. Cataracts can be associated > with 's disease, a genetically- based liver disease caused by abnormal copper handling. > I had no Kayser-Fleischer rings on the pupil, another 's sign. As I understand, it is not > unusual to have elevated copper with PSC. I have never taken prednisone or other > corticosteroids, which is also a risk factor for cataracts. > > My gastroenterologist added serum copper to my 3-mo labs. My copper level is elevated, but > not extreme, at 1772 ug/L, compared to a normal level of 700-1500 ug/L. Could this be a > plausible explanation for the cataracts? My father also has cataracts, but got them at age > 70+. > > My history is that I've been asymptomatic for UC and PSC for 29 and 16 years, respectively. > My ALP is usually near-normal (not checked it this time). In these labs my AST is 43 (norm > 17-37 U/L) and ALT is 66 (norm 30-65 U/L. Recent MRCP was unchanged from 2 years ago.> > I've been off-line for a long time. Just a good sort of RL busy-ness. > > My best wishes to all of you, and thanks for any insight you can give me!> Martha (MA)> age 45, UC 1979, PSC 1992, asymptomatic> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Martha, The Mayo Clinic [mayoclinic.com], use to have a detailed list of foods that contains copper, and the amount in each. It was inactivated, few years back. It would be interesting to go through it if still there, and may be lessen the amount that you do consume of them. Olives, [specially black i think], for example contains lots of copper. I, myself try to limit olives in my diet, although i love olives. I do have a begining of cataracts. I have taken prednisone for UC. Plus having PSC. Also my mother had cataracts at about your father's, age. My best wishes for you. And that is wonderful to be asymptomatic from both PSC and UC for such a number of years. Subject: Re: Copper levelsTo: Date: Saturday, September 27, 2008, 2:56 AM You can check out which foods contain copper and limit your intake of those foods to help make it easier on your body. wife to Rick-crohn's, psc, spondyloarthropathy , gilbert's>> I was diagnosed with mild bilateral cataracts a few months back. Cataracts can be associated > with 's disease, a genetically- based liver disease caused by abnormal copper handling. > I had no Kayser-Fleischer rings on the pupil, another 's sign. As I understand, it is not > unusual to have elevated copper with PSC. I have never taken prednisone or other > corticosteroids, which is also a risk factor for cataracts. > > My gastroenterologist added serum copper to my 3-mo labs. My copper level is elevated, but > not extreme, at 1772 ug/L, compared to a normal level of 700-1500 ug/L. Could this be a > plausible explanation for the cataracts? My father also has cataracts, but got them at age > 70+. > > My history is that I've been asymptomatic for UC and PSC for 29 and 16 years, respectively. > My ALP is usually near-normal (not checked it this time). In these labs my AST is 43 (norm > 17-37 U/L) and ALT is 66 (norm 30-65 U/L. Recent MRCP was unchanged from 2 years ago.> > I've been off-line for a long time. Just a good sort of RL busy-ness. > > My best wishes to all of you, and thanks for any insight you can give me!> Martha (MA)> age 45, UC 1979, PSC 1992, asymptomatic> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2008 Report Share Posted September 27, 2008 Here is a link to opper containing foods put out by the WIlson's disease foundation http://www.wilsonsdisease.org/content_sub.asp@SUB_ID=51&CAT_ID=14.html Dawn > > > The Mayo Clinic [mayoclinic.com], use to have a detailed list of foods that contains copper, and the amount in each. It was inactivated, few years back. It would be interesting to go through it if still there, and may be lessen the amount that you do consume of them. Olives, [specially black i think], for example contains lots of copper. I, myself try to limit olives in my diet, although i love olives. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2008 Report Share Posted September 27, 2008 Thanks for all the info about copper. What if anything besides modifying diets are any of you doing to lower copper levels? If you do have more info about cataracts and PSC, please let me know. I am not seeing a direct relationship in the scientific literature, except through copper and 's-like problems. There is a connection with UC and uveitis. I don't have anterior uveitis, which seems to be the painful one, but I wonder if I have intermediate or posterior uveitis (inflammation in the muscles that focus the lens or in the choroid layer behind the retina). This could also account for the cataracts, but I'm just guessing- the eye doc certainly didn't mention it. I do have trouble switching between reading and distance (I don't wear glasses), particularly if I use a microscope for half an hour or more, so it's really bothering me at work (I do research and teach biology). Thanks! Martha 45, UC, 1979, PSC 1992, asymptomatic? > > Here is a link to opper containing foods put out by the WIlson's > disease foundation > > > http://www.wilsonsdisease.org/content_sub.asp@SUB_ID=51&CAT_ID=14.html > > > > Dawn > > > > > > > > > > The Mayo Clinic [mayoclinic.com], use to have a detailed list of > foods that contains copper, and the amount in each. It was > inactivated, few years back. It would be interesting to go through it > if still there, and may be lessen the amount that you do consume of > them. Olives, [specially black i think], for example contains lots of > copper. I, myself try to limit olives in my diet, although i love > olives. > > > > > Quote Link to comment Share on other sites More sharing options...
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