Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 I won't attempt for a few days to read the 488 messages in my in box. I'll go straight to Dr. on and me. He is charming, courteous, smiling, interested and, most of all, willing to put up with my wise-ass attitude and ways. Well, so was everyone else at the hospital. I was put through the usual: PFT's, six-minute walk, weight, height, stick-your-tongue-out procedures. According to Dr. on, I aced everyone of these. He said my disease progress was not very much and had progressed in four small steps. I don't have HP, my heart, blood presure, various other organs and all the other things they withdraw were excellent, so I may have a few good years to go. He did say that one never knows when this disease takes a sudden change for the worse. He also told me that a trial being conducted in Japan is coming to a close with some hope that a treatment may result. He also said he hoped there would soon be an FDA approval for a similar trial in the US. He mentioned a drug which sounded like Prednisone (spelling?). I asked him if he would take me on as a patient. At first he scowled, then laughed, and said yes, he would be delighted. On specifics, he said I should take three tables a day of N-Acetyl to really get a positive effect. His assistant gave me a home recipe for a runny nose that sounds something like Ayr Saline Nasal Rinse, but much cheaper. I will share this with the group in a future email. Despite the long drive from Maine to NC, the trip was well worth it. I feel more confident in my health and its prospects. I left here in minus 21 weather and two feet of snow and arrived in NC to plus 20 degrees and nine inches of snow. The big disappointment of the trip was I didn't get to meet Beth. We were to meet for lunch following my appointment, but at that time her father became ill and was taken to the hospital by ambulance. She may have already posted this to the group. I had an email from her on my return home that he was doing fine. My next appointment with Dr. on is in July, so I am sure she and I can have lunch then. Jack79/IPF - UIP/dx06/05 Maine Quote Link to comment Share on other sites More sharing options...
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