RE: Re: Does Anyone NOT take RX!??? Ruth aka Tigger/Sharon

[Guest guest]

Thank you. I plan on calling tomorrow. I've decided to take my life in my

own hands. I'm tired of getting the run around from doctors. I will let

you know how I make out.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of sharon

studley

Sent: Sunday, March 09, 2008 12:12 PM

To: Fibromyalgia_Support_Group

Subject: RE: Re: Does Anyone NOT take RX!??? Ruth aka Tigger

Just thought about what u said as the massage it does, hurt but to me also

felt good too. And there is a program for the Y, if you are low in income,

you can either call and they will send you the form u fill out, or go in. I

belonged when living in Ma. and got a reduced membership, 12.mo! I was going

to do it up here in Me. but the one with the pool is an hr away, and what

good it may do in the water, would work me back in to a big ball of tension

on the drive home, as it is a 1 laner rd. all the way up and traffic in

summer terrible would take probably 2hrs. You should be able to get a good

rate. Hoping u a lighter day Sharon

Tigger <tigger.pinkraincoat <mailto:tigger.pinkraincoat%40gmail.com>

@gmail.com> wrote: Turning the clocks didn't effect me today... I've slept

pretty solid for the

past two days. Between the rain and all of a sudden I got that horrible

fatigue I used to get, I just gave into it. I'm glad I did because I do

feel better today.

My shoulder still hurts, but it will for awhile.

As for the meds vs. therapies... yep, you got it. I've been through PT ever

since I was diagnosed and non of it has helped. One that I went to actually

caused me more problems.

I may look into finding a masseuse that deals with fibro and find out if the

YMCA has programs or special rates for the disabled. Basically, I'm going

to take most of my care and put it in my own hands. I'm tired of getting

the run around from doctors. I used to be afraid of massages because I

thought they would hurt, but then I got one and it felt great... even for

awhile after. We'll see. I have to go over the budget.

Tigger (Ruth) in Rhode Island

> Re: Does Anyone NOT take RX!??? For what ever

> > reason...side

> > > > effects, $, etc.....

> > > >

> > > >

> > > >

> > > > Sherry,

> > > > Long before I was dx'd with fibro, I had those mysterious low back

> > > > pains, back spasms, etc., and for a long time, flexeril worked (10

> > > > mg) because it wasn't that often. Then I started to notice that

> > > > before I could vacuum/mop, I would have to take one and before I was

> > > > done, I would have to take a 2nd one to be able to finish.

> > > >

> > > > When my PCP (no dx yet) heard that, they gave me robaxin, which

> > > > helped a little bit more. Also, naproxyn (sp?) for inflammation and

> > > > as a last resort, darvocet (which I literally only take as a last

> > > > resort).

> > > >

> > > > I got dx'd January '08 by a rheum and he started me on lyrica (low

> > > > dose 75 mg 2x/day) for 2 weeks. I did not notice any sides except

the

> > > > initial few days when I felt " punch drunk " like many on this list.

> > > > Since that time, I am up to the 150 mg 2x a day and not noticing too

> > > > many side effects (drowsiness, etc.).

> > > >

> > > > Of course, every single one of us is different. Your doctor may have

> > > > to tinker and tweak your meds. The best person to speak with is your

> > > > doctor. None of us want to be a zombie and merely travel thru life,

> > > > we all want to live the best possible life we can, dealing with this

> > > > disease, which attacks each one of us a little differently and yet

oh

> > > > so much the same, its scary.

> > > >

> > > > I hope that helps; wanted to give you my experiences.....

> > > >

> > > > (((Hugs)))

> > > > Darlene

> > > >

> > > >

> > > > >

> > > > > I have taken a few RX given to me by my doctor. I did not like!

One

> > > > > made me a zombie, one made me hyperventalate(sp?). And, they were

> > > > just

> > > > > too much $$$$ to keep trying. Fibro Fog is enough to deal with. DO

> > > > they

> > > > > really the RX that is, stop the pain. I think I'd rather hurt than

> > > > be a

> > > > > Zombie all drugged up! What is your opion?

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >