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Re: Diet and PSC

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Eosinophils can be associated with Autoimmune disease and to the best

of my knowledge are not associated with food allergies. I have had

elevated eosinophil levels for a very long time and they are the

primary invader into my liver.

What Abnormal Results Mean Return to top

High numbers of eosinophils (eosinophilia) are usually associated

with allergic diseases and infections from parasites such as worms. A

high eosinophil count may be due to:

Asthma

Autoimmune diseases

Eczema

Hay fever

Leukemia

http://www.nlm.nih.gov/medlineplus/ency/article/003649.htm

Gluten sensitivity from what I understand is an autoimmune diease

known as Celiac disease. Abnormal IgA levels is associated with

Celiac disease.

Celiac disease is a digestive disease that damages the small

intestine and interferes with absorption of nutrients from food.

People who have celiac disease cannot tolerate a protein called

gluten, found in wheat, rye, and barley. Gluten is found mainly in

foods but may also be found in products we use every day, such as

stamp and envelope adhesive, medicines, and vitamins.

.....Recently, researchers discovered that people with celiac disease

have higher than normal levels of certain autoantibodies in their

blood. Antibodies are protective proteins produced by the immune

system in response to substances that the body perceives to be

threatening. Autoantibodies are proteins that react against the

body's own molecules or tissues. To diagnose celiac disease,

physicians will usually test blood to measure levels of

Immunoglobulin A (IgA)

anti-tissue transglutaminase (tTGA)

IgA anti-endomysium antibodies (AEA)

...... The only treatment for celiac disease is to follow a gluten-

free diet. When a person is first diagnosed with celiac disease, the

doctor usually will ask the person to work with a dietitian on a

gluten-free diet plan. A dietitian is a health care professional who

specializes in food and nutrition. Someone with celiac disease can

learn from a dietitian how to read ingredient lists and identify

foods that contain gluten in order to make informed decisions at the

grocery store and when eating out.

For most people, following this diet will stop symptoms, heal

existing intestinal damage, and prevent further damage. Improvements

begin within days of starting the diet. The small intestine is

usually completely healed in 3 to 6 months in children and younger

adults and within 2 years for older adults. Healed means a person now

has villi that can absorb nutrients from food into the bloodstream.

In order to stay well, people with celiac disease must avoid gluten

for the rest of their lives. Eating any gluten, no matter how small

an amount, can damage the small intestine. The damage will occur in

anyone with the disease, including people without noticeable

symptoms. Depending on a person's age at diagnosis, some problems

will not improve, such as delayed growth and tooth discoloration.

http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/

I hope this information is helpful for you. I personally do not have

Celiac disease; however, I have been tested several times for the

disease which is what has lead me to research it's symptoms and

treatment.

Dawn

In , Monteiro

wrote:

>

> MIME-Version: 1.0

> Content-Type: multipart/alternative; boundary= " 0-1850378412-

1222086588=:68404 "

>

> --0-1850378412-1222086588=:68404

> Content-Type: text/plain; charset=iso-8859-1

> Content-Transfer-Encoding: quoted-printable

>

> Greetings,=0A=0AI am fairly new to this group as my 5 year was just

diagnos=

> ed with PSC.=A0 When she was two years we introduced peanut butter

and she =

> started having blood in her stool.=A0 We went to the pediatrician

several t=

> imes and he told me that it was an intestinal infection and it

would clear =

> on it's own.=A0 =0A=0AAfter a couple of months and several calls we

went ba=

> ck to the pediatrician because she was still having blood in her

stool.=A0 =

> At that time he suggested that we do some blood work and her liver

enzymes =

> came back very elevated.=A0 I believe they were in the 700's, she

also had =

> an elevated eosinophil count which indicated that she had food

allergies.=

> =0A=0AWe were sent to Mass General hospital where they did a liver

biopsy, =

> colonoscopy and endoscopy.=A0 At the time the liver specialist

assured me t=

> hat these tests would give us all the answers we were looking for.

When the=

> results came back they showed that she had eosinophils in her

colon, diges=

> tive tract and liver.=A0 That told me that she was suffering from

food alle=

> rgies, I figured if we got rid of the eosinphils then we would get

rid of t=

> he problem all together.=0A=0AI took her in for allergy testing and

learned=

> that there are two kinds of allergies, IgE and IgG.=A0 The IgE

allergies a=

> re in and out of your system in 24 hours, the IgG alleriges are

delayed ons=

> et and could affect you up to 72 hours after exposure.=A0 The skin

test is =

> on for IgE allergies.=A0 It turned out that she had several food

allergies =

> and hers were all IgG.=A0 She was allergic to everything Soy,

Wheat, Milk, =

> Eggs, Gluten and more.=A0 We significantly modified her diet,

calmed down t=

> he allergic response (auto-immune response) and we were able to

have normal=

> liver function tests for over a year.=A0 Then we stopped testing

her LFT's=

> ..=A0 After two years she had outgrown most of her food allergies

so we star=

> ted to reintroduce all the foods that had been eliminated.=A0 Such

as pizza=

> , and more high fat foods.=A0 Now we are back to square one again

accept th=

> is time when we completed all the tests including the ERCP we have

a diagno=

> sis.=A0 I am convinced that we

> are where we are now because of her diet since all she was eating

was pizz=

> a, ribs, burgers, chips and cheese.=A0 =0A=0AI am new to all of

this and do=

> n't know much about liver disease.=A0 I have talked to someone who

told me =

> that she needed to avoid all the foods that she had been eating.=A0

Now I a=

> m faced with what do I feed her?=A0 She has a gluten allergy so she

is whea=

> t free.=A0 She is 5 years old and isn't interested in trying very

many new =

> foods and if she does try them she doesn't like them.=A0 I think

she would =

> rather go hungry then eat something she doesn't like. She appears

and acts =

> to be perfectly normal but we know there is a serious problem that

could ta=

> ke her life.=A0 We are struggling as a family now coming to terms

with the =

> fact that she could be here today and gone tomorrow.=0A=0AI am

interested i=

> n finding out everything I can about this disease and I'm thankful

for this=

> support group.=A0 If anyone has information that you could share

that you =

> think would be helpful I would be very grateful.=A0 =0A=0A=0A

> --0-1850378412-1222086588=:68404

> Content-Type: text/html; charset=us-ascii

>

> Greetings,

>

> I am fairly new to this group as my 5 year was just diagnosed

with PSC. When she was two years we introduced peanut butter

and she started having blood in her stool. We went to the

pediatrician several times and he told me that it was an intestinal

infection and it would clear on it's own.

>

> After a couple of months and several calls we went back to the

pediatrician because she was still having blood in her stool.

At that time he suggested that we do some blood work and her liver

enzymes came back very elevated. I believe they were in the

700's, she also had an elevated eosinophil count which indicated that

she had food allergies.

>

> We were sent to Mass General hospital where they did a liver

biopsy, colonoscopy and endoscopy. At the time the liver

specialist assured me that these tests would give us all the answers

we were looking for. When the results came back they showed that she

had eosinophils in her colon, digestive tract and liver. That

told me that she was suffering from food allergies, I figured if we

got rid of the eosinphils then we would get rid of the problem all

together.

>

> I took her in for allergy testing and learned that there are

two kinds of allergies, IgE and IgG. The IgE allergies are in

and out of your system in 24 hours, the IgG alleriges are delayed

onset and could affect you up to 72 hours after exposure. The

skin test is on for IgE allergies. It turned out that she had

several food allergies and hers were all IgG. She was allergic

to everything Soy, Wheat, Milk, Eggs, Gluten and more. We

significantly modified her diet, calmed down the allergic response

(auto-immune response) and we were able to have normal liver function

tests for over a year. Then we stopped testing her LFT's.

After two years she had outgrown most of her food allergies so we

started to reintroduce all the foods that had been eliminated.

Such as pizza, and more high fat foods. Now we are back to

square one again accept this time when we completed all the tests

including the ERCP we have

> a diagnosis. I am convinced that we are where we are now

because of her diet since all she was eating was pizza, ribs,

burgers, chips and cheese.

>

> I am new to all of this and don't know much about liver

disease. I have talked to someone who told me that she needed

to avoid all the foods that she had been eating. Now I am faced

with what do I feed her? She has a gluten allergy so she is

wheat free. She is 5 years old and isn't interested in trying

very many new foods and if she does try them she doesn't like

them. I think she would rather go hungry then eat something she

doesn't like. She appears and acts to be perfectly normal but we know

there is a serious problem that could take her life. We are

struggling as a family now coming to terms with the fact that she

could be here today and gone tomorrow.

>

> I am interested in finding out everything I can about this

disease and I'm thankful for this support group. If anyone has

information that you could share that you think would be helpful I

would be very grateful.

>

>

>

>

> --0-1850378412-1222086588=:68404--

>

Link to comment
Share on other sites

Eosinophils can be associated with Autoimmune disease and to the best

of my knowledge are not associated with food allergies. I have had

elevated eosinophil levels for a very long time and they are the

primary invader into my liver.

What Abnormal Results Mean Return to top

High numbers of eosinophils (eosinophilia) are usually associated

with allergic diseases and infections from parasites such as worms. A

high eosinophil count may be due to:

Asthma

Autoimmune diseases

Eczema

Hay fever

Leukemia

http://www.nlm.nih.gov/medlineplus/ency/article/003649.htm

Gluten sensitivity from what I understand is an autoimmune diease

known as Celiac disease. Abnormal IgA levels is associated with

Celiac disease.

Celiac disease is a digestive disease that damages the small

intestine and interferes with absorption of nutrients from food.

People who have celiac disease cannot tolerate a protein called

gluten, found in wheat, rye, and barley. Gluten is found mainly in

foods but may also be found in products we use every day, such as

stamp and envelope adhesive, medicines, and vitamins.

.....Recently, researchers discovered that people with celiac disease

have higher than normal levels of certain autoantibodies in their

blood. Antibodies are protective proteins produced by the immune

system in response to substances that the body perceives to be

threatening. Autoantibodies are proteins that react against the

body's own molecules or tissues. To diagnose celiac disease,

physicians will usually test blood to measure levels of

Immunoglobulin A (IgA)

anti-tissue transglutaminase (tTGA)

IgA anti-endomysium antibodies (AEA)

...... The only treatment for celiac disease is to follow a gluten-

free diet. When a person is first diagnosed with celiac disease, the

doctor usually will ask the person to work with a dietitian on a

gluten-free diet plan. A dietitian is a health care professional who

specializes in food and nutrition. Someone with celiac disease can

learn from a dietitian how to read ingredient lists and identify

foods that contain gluten in order to make informed decisions at the

grocery store and when eating out.

For most people, following this diet will stop symptoms, heal

existing intestinal damage, and prevent further damage. Improvements

begin within days of starting the diet. The small intestine is

usually completely healed in 3 to 6 months in children and younger

adults and within 2 years for older adults. Healed means a person now

has villi that can absorb nutrients from food into the bloodstream.

In order to stay well, people with celiac disease must avoid gluten

for the rest of their lives. Eating any gluten, no matter how small

an amount, can damage the small intestine. The damage will occur in

anyone with the disease, including people without noticeable

symptoms. Depending on a person's age at diagnosis, some problems

will not improve, such as delayed growth and tooth discoloration.

http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/

I hope this information is helpful for you. I personally do not have

Celiac disease; however, I have been tested several times for the

disease which is what has lead me to research it's symptoms and

treatment.

Dawn

In , Monteiro

wrote:

>

> MIME-Version: 1.0

> Content-Type: multipart/alternative; boundary= " 0-1850378412-

1222086588=:68404 "

>

> --0-1850378412-1222086588=:68404

> Content-Type: text/plain; charset=iso-8859-1

> Content-Transfer-Encoding: quoted-printable

>

> Greetings,=0A=0AI am fairly new to this group as my 5 year was just

diagnos=

> ed with PSC.=A0 When she was two years we introduced peanut butter

and she =

> started having blood in her stool.=A0 We went to the pediatrician

several t=

> imes and he told me that it was an intestinal infection and it

would clear =

> on it's own.=A0 =0A=0AAfter a couple of months and several calls we

went ba=

> ck to the pediatrician because she was still having blood in her

stool.=A0 =

> At that time he suggested that we do some blood work and her liver

enzymes =

> came back very elevated.=A0 I believe they were in the 700's, she

also had =

> an elevated eosinophil count which indicated that she had food

allergies.=

> =0A=0AWe were sent to Mass General hospital where they did a liver

biopsy, =

> colonoscopy and endoscopy.=A0 At the time the liver specialist

assured me t=

> hat these tests would give us all the answers we were looking for.

When the=

> results came back they showed that she had eosinophils in her

colon, diges=

> tive tract and liver.=A0 That told me that she was suffering from

food alle=

> rgies, I figured if we got rid of the eosinphils then we would get

rid of t=

> he problem all together.=0A=0AI took her in for allergy testing and

learned=

> that there are two kinds of allergies, IgE and IgG.=A0 The IgE

allergies a=

> re in and out of your system in 24 hours, the IgG alleriges are

delayed ons=

> et and could affect you up to 72 hours after exposure.=A0 The skin

test is =

> on for IgE allergies.=A0 It turned out that she had several food

allergies =

> and hers were all IgG.=A0 She was allergic to everything Soy,

Wheat, Milk, =

> Eggs, Gluten and more.=A0 We significantly modified her diet,

calmed down t=

> he allergic response (auto-immune response) and we were able to

have normal=

> liver function tests for over a year.=A0 Then we stopped testing

her LFT's=

> ..=A0 After two years she had outgrown most of her food allergies

so we star=

> ted to reintroduce all the foods that had been eliminated.=A0 Such

as pizza=

> , and more high fat foods.=A0 Now we are back to square one again

accept th=

> is time when we completed all the tests including the ERCP we have

a diagno=

> sis.=A0 I am convinced that we

> are where we are now because of her diet since all she was eating

was pizz=

> a, ribs, burgers, chips and cheese.=A0 =0A=0AI am new to all of

this and do=

> n't know much about liver disease.=A0 I have talked to someone who

told me =

> that she needed to avoid all the foods that she had been eating.=A0

Now I a=

> m faced with what do I feed her?=A0 She has a gluten allergy so she

is whea=

> t free.=A0 She is 5 years old and isn't interested in trying very

many new =

> foods and if she does try them she doesn't like them.=A0 I think

she would =

> rather go hungry then eat something she doesn't like. She appears

and acts =

> to be perfectly normal but we know there is a serious problem that

could ta=

> ke her life.=A0 We are struggling as a family now coming to terms

with the =

> fact that she could be here today and gone tomorrow.=0A=0AI am

interested i=

> n finding out everything I can about this disease and I'm thankful

for this=

> support group.=A0 If anyone has information that you could share

that you =

> think would be helpful I would be very grateful.=A0 =0A=0A=0A

> --0-1850378412-1222086588=:68404

> Content-Type: text/html; charset=us-ascii

>

> Greetings,

>

> I am fairly new to this group as my 5 year was just diagnosed

with PSC. When she was two years we introduced peanut butter

and she started having blood in her stool. We went to the

pediatrician several times and he told me that it was an intestinal

infection and it would clear on it's own.

>

> After a couple of months and several calls we went back to the

pediatrician because she was still having blood in her stool.

At that time he suggested that we do some blood work and her liver

enzymes came back very elevated. I believe they were in the

700's, she also had an elevated eosinophil count which indicated that

she had food allergies.

>

> We were sent to Mass General hospital where they did a liver

biopsy, colonoscopy and endoscopy. At the time the liver

specialist assured me that these tests would give us all the answers

we were looking for. When the results came back they showed that she

had eosinophils in her colon, digestive tract and liver. That

told me that she was suffering from food allergies, I figured if we

got rid of the eosinphils then we would get rid of the problem all

together.

>

> I took her in for allergy testing and learned that there are

two kinds of allergies, IgE and IgG. The IgE allergies are in

and out of your system in 24 hours, the IgG alleriges are delayed

onset and could affect you up to 72 hours after exposure. The

skin test is on for IgE allergies. It turned out that she had

several food allergies and hers were all IgG. She was allergic

to everything Soy, Wheat, Milk, Eggs, Gluten and more. We

significantly modified her diet, calmed down the allergic response

(auto-immune response) and we were able to have normal liver function

tests for over a year. Then we stopped testing her LFT's.

After two years she had outgrown most of her food allergies so we

started to reintroduce all the foods that had been eliminated.

Such as pizza, and more high fat foods. Now we are back to

square one again accept this time when we completed all the tests

including the ERCP we have

> a diagnosis. I am convinced that we are where we are now

because of her diet since all she was eating was pizza, ribs,

burgers, chips and cheese.

>

> I am new to all of this and don't know much about liver

disease. I have talked to someone who told me that she needed

to avoid all the foods that she had been eating. Now I am faced

with what do I feed her? She has a gluten allergy so she is

wheat free. She is 5 years old and isn't interested in trying

very many new foods and if she does try them she doesn't like

them. I think she would rather go hungry then eat something she

doesn't like. She appears and acts to be perfectly normal but we know

there is a serious problem that could take her life. We are

struggling as a family now coming to terms with the fact that she

could be here today and gone tomorrow.

>

> I am interested in finding out everything I can about this

disease and I'm thankful for this support group. If anyone has

information that you could share that you think would be helpful I

would be very grateful.

>

>

>

>

> --0-1850378412-1222086588=:68404--

>

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