Can someone talk to me about itching?

[Guest guest]

I am trying to figure out whether my itching is PSC related or just

some other anomaly. I've been rather itchy lately. Couldn't sleep

the other night. But the type of itchiness is strange. It's all over

my body, but not constant. It sort of feels like something crawling

on me, just touching the hairs, compelling me to scratch at it. But

it moves all over in different places. For instance, I'll be laying

there, and suddenly there's a spot behind my knee that itches. Get

that. Then it's on my chest, then it's on my arm, then on my foot.

You get the idea. It just keeps moving all around my body, as opposed

to my whole body being itchy constantly. Does this sound familiar?

I keep checking out my eyes for any signs of jaundice, but am seeing

nothing. So, I don't know what's going on. I'm supposedly in the

early stages of PSC and am wondering if this itching is a sign that

I'm really NOT in early stage PSC. Maybe things are getting worse

faster, or maybe it's just due to dry skin or something. Any ideas?

Thanks,

Suzanna

[Guest guest]

Suzanna, That is exactly the way my PSC itching was before I started on the rifampin and now I also go to tanning about 8 minutes a day a couple times a week and it has helped a whole lot. My itching was always worse at night and it made me so I couldn't lay or sit still, I hated it, so I know what you mean. I have no jaundice either, I hope something works for you if it continues.

Take care,

Bettyann (SC)

[Guest guest]

Suzanna, That is exactly the way my PSC itching was before I started on the rifampin and now I also go to tanning about 8 minutes a day a couple times a week and it has helped a whole lot. My itching was always worse at night and it made me so I couldn't lay or sit still, I hated it, so I know what you mean. I have no jaundice either, I hope something works for you if it continues.

Take care,

Bettyann (SC)

[Guest guest]

That is exactly how my itchiness is. It started about three years ago

(and was my first symptom) and I was only finally diagnosed with PSC

two months ago. I have no jaundice either but am in early stages. I

have good days with minimal itching and really bad days where I think

I'm going to lose my mind. My husband gets upset because I break the

skin on the bad days. It's worse at night and my feet usually get it

worst.

I've started trying to sit in the sun a couple times a week as someone

else here suggested, and it seems to help some. I haven't pursued the

rifampin or Questran (?) that others have.

(SoCal)

[Guest guest]

That is exactly how my itchiness is. It started about three years ago

(and was my first symptom) and I was only finally diagnosed with PSC

two months ago. I have no jaundice either but am in early stages. I

have good days with minimal itching and really bad days where I think

I'm going to lose my mind. My husband gets upset because I break the

skin on the bad days. It's worse at night and my feet usually get it

worst.

I've started trying to sit in the sun a couple times a week as someone

else here suggested, and it seems to help some. I haven't pursued the

rifampin or Questran (?) that others have.

(SoCal)

[Guest guest]

That is exactly how my itchiness is. It started about three years ago

(and was my first symptom) and I was only finally diagnosed with PSC

two months ago. I have no jaundice either but am in early stages. I

have good days with minimal itching and really bad days where I think

I'm going to lose my mind. My husband gets upset because I break the

skin on the bad days. It's worse at night and my feet usually get it

worst.

I've started trying to sit in the sun a couple times a week as someone

else here suggested, and it seems to help some. I haven't pursued the

rifampin or Questran (?) that others have.

(SoCal)

[Guest guest]

>

> I am trying to figure out whether my itching is PSC related or just

> some other anomaly. I've been rather itchy lately. Couldn't sleep

> the other night. But the type of itchiness is strange. It's all over

> my body, but not constant. It sort of feels like something crawling

> on me, just touching the hairs, compelling me to scratch at it. But

> it moves all over in different places. For instance, I'll be laying

> there, and suddenly there's a spot behind my knee that itches. Get

> that. Then it's on my chest, then it's on my arm, then on my foot.

> You get the idea. It just keeps moving all around my body, as opposed

> to my whole body being itchy constantly. Does this sound familiar?

>

> I keep checking out my eyes for any signs of jaundice, but am seeing

> nothing. So, I don't know what's going on. I'm supposedly in the

> early stages of PSC and am wondering if this itching is a sign that

> I'm really NOT in early stage PSC. Maybe things are getting worse

> faster, or maybe it's just due to dry skin or something. Any ideas?

>

> Thanks,

> Suzanna

>

Well Suzana, That does sound like PSC Itching.. I had it really bad

for a long time and there is no lotion or anything you can do about

it. For me keeping off Caffinee and other things like fast food or

things that are not suppost to be in your body only helps. Take lots

of showers and just hang in there it will get alittle better.. Itching

was one of my main problems with PSC. Just don't make yourself crazy

(I did)....Hang in there Ken Henshaw

[Guest guest]

>

> I am trying to figure out whether my itching is PSC related or just

> some other anomaly. I've been rather itchy lately. Couldn't sleep

> the other night. But the type of itchiness is strange. It's all over

> my body, but not constant. It sort of feels like something crawling

> on me, just touching the hairs, compelling me to scratch at it. But

> it moves all over in different places. For instance, I'll be laying

> there, and suddenly there's a spot behind my knee that itches. Get

> that. Then it's on my chest, then it's on my arm, then on my foot.

> You get the idea. It just keeps moving all around my body, as opposed

> to my whole body being itchy constantly. Does this sound familiar?

>

> I keep checking out my eyes for any signs of jaundice, but am seeing

> nothing. So, I don't know what's going on. I'm supposedly in the

> early stages of PSC and am wondering if this itching is a sign that

> I'm really NOT in early stage PSC. Maybe things are getting worse

> faster, or maybe it's just due to dry skin or something. Any ideas?

>

> Thanks,

> Suzanna

>

Well Suzana, That does sound like PSC Itching.. I had it really bad

for a long time and there is no lotion or anything you can do about

it. For me keeping off Caffinee and other things like fast food or

things that are not suppost to be in your body only helps. Take lots

of showers and just hang in there it will get alittle better.. Itching

was one of my main problems with PSC. Just don't make yourself crazy

(I did)....Hang in there Ken Henshaw

[Guest guest]

>

> I am trying to figure out whether my itching is PSC related or just

> some other anomaly. I've been rather itchy lately. Couldn't sleep

> the other night. But the type of itchiness is strange. It's all over

> my body, but not constant. It sort of feels like something crawling

> on me, just touching the hairs, compelling me to scratch at it. But

> it moves all over in different places. For instance, I'll be laying

> there, and suddenly there's a spot behind my knee that itches. Get

> that. Then it's on my chest, then it's on my arm, then on my foot.

> You get the idea. It just keeps moving all around my body, as opposed

> to my whole body being itchy constantly. Does this sound familiar?

>

> I keep checking out my eyes for any signs of jaundice, but am seeing

> nothing. So, I don't know what's going on. I'm supposedly in the

> early stages of PSC and am wondering if this itching is a sign that

> I'm really NOT in early stage PSC. Maybe things are getting worse

> faster, or maybe it's just due to dry skin or something. Any ideas?

>

> Thanks,

> Suzanna

>

Well Suzana, That does sound like PSC Itching.. I had it really bad

for a long time and there is no lotion or anything you can do about

it. For me keeping off Caffinee and other things like fast food or

things that are not suppost to be in your body only helps. Take lots

of showers and just hang in there it will get alittle better.. Itching

was one of my main problems with PSC. Just don't make yourself crazy

(I did)....Hang in there Ken Henshaw

[Guest guest]

Can someone talk to me about itching?

To:

> I am trying to figure out whether my itching is PSC related or just > some

other anomaly. I've been rather itchy lately. Couldn't sleep

> the other night. But the type of itchiness is strange. It's all

> over

> my body,

>

> You get the idea. It just keeps moving all around my body, as

> opposed

> to my whole body being itchy constantly. Does this sound familiar?

>

or maybe it's just due to dry skin or something. Any ideas?

>

I have find out with psc you have to use the r/o [rule out] technique. In other

word, try something sort benign, thenif that doesn't work try something more

drastic, then more more drastic, then try ... etc, etc...

For dry skin, go to CVS and just try some skin cream or scratch and see if you

get flakes. Simple r/o for dry skin. I finally go my r/o this fall when I went

to Mayo Clinic when they r/o. I did not have psc after all. Great news!

Let me know how you make out!

[Guest guest]

Can someone talk to me about itching?

To:

> I am trying to figure out whether my itching is PSC related or just > some

other anomaly. I've been rather itchy lately. Couldn't sleep

> the other night. But the type of itchiness is strange. It's all

> over

> my body,

>

> You get the idea. It just keeps moving all around my body, as

> opposed

> to my whole body being itchy constantly. Does this sound familiar?

>

or maybe it's just due to dry skin or something. Any ideas?

>

I have find out with psc you have to use the r/o [rule out] technique. In other

word, try something sort benign, thenif that doesn't work try something more

drastic, then more more drastic, then try ... etc, etc...

For dry skin, go to CVS and just try some skin cream or scratch and see if you

get flakes. Simple r/o for dry skin. I finally go my r/o this fall when I went

to Mayo Clinic when they r/o. I did not have psc after all. Great news!

Let me know how you make out!

[Guest guest]

Can someone talk to me about itching?

To:

> I am trying to figure out whether my itching is PSC related or just > some

other anomaly. I've been rather itchy lately. Couldn't sleep

> the other night. But the type of itchiness is strange. It's all

> over

> my body,

>

> You get the idea. It just keeps moving all around my body, as

> opposed

> to my whole body being itchy constantly. Does this sound familiar?

>

or maybe it's just due to dry skin or something. Any ideas?

>

I have find out with psc you have to use the r/o [rule out] technique. In other

word, try something sort benign, thenif that doesn't work try something more

drastic, then more more drastic, then try ... etc, etc...

For dry skin, go to CVS and just try some skin cream or scratch and see if you

get flakes. Simple r/o for dry skin. I finally go my r/o this fall when I went

to Mayo Clinic when they r/o. I did not have psc after all. Great news!

Let me know how you make out!

[Guest guest]

Thanks so much, everyone, for the replies. Does anybody know what

this means in terms of disease progression? I was just diagnosed

this past fall 07, and they were indicating that I likely have many

years of good health left, but maybe it's progressing much faster

than they anticipated? My LFTs have been stable, but it's not like

I've been getting checked every two weeks or anything. Does

everything go downhill from here? Or is it more along the lines of

the LFTs in that you can have it for ages before transplantation

becomes an issue? I'm just trying to figure out if this is any

indication of the disease progression or health of the liver. Should

I expect jaundice next? Will the itchiness go away or am I stuck

with it forever? What I mean is: does it get progressively worse or

does it come and go with the wind (or diet or whatever)? I'm not

sure what to think. I know, I'm overanalyzing, but I have this need

to be prepared for whatever may happen (not an easy thing with this

disease).

And last, I'm having this dull throbbing ache deep in my left leg

over the past 2 days. Like in the bones or something. Just a dull

uncomfortable pain. Related or no?

You all are so helpful. Thanks so much for your support.

Suzanna

[Guest guest]

Thanks so much, everyone, for the replies. Does anybody know what

this means in terms of disease progression? I was just diagnosed

this past fall 07, and they were indicating that I likely have many

years of good health left, but maybe it's progressing much faster

than they anticipated? My LFTs have been stable, but it's not like

I've been getting checked every two weeks or anything. Does

everything go downhill from here? Or is it more along the lines of

the LFTs in that you can have it for ages before transplantation

becomes an issue? I'm just trying to figure out if this is any

indication of the disease progression or health of the liver. Should

I expect jaundice next? Will the itchiness go away or am I stuck

with it forever? What I mean is: does it get progressively worse or

does it come and go with the wind (or diet or whatever)? I'm not

sure what to think. I know, I'm overanalyzing, but I have this need

to be prepared for whatever may happen (not an easy thing with this

disease).

And last, I'm having this dull throbbing ache deep in my left leg

over the past 2 days. Like in the bones or something. Just a dull

uncomfortable pain. Related or no?

You all are so helpful. Thanks so much for your support.

Suzanna

[Guest guest]

Thanks so much, everyone, for the replies. Does anybody know what

this means in terms of disease progression? I was just diagnosed

this past fall 07, and they were indicating that I likely have many

years of good health left, but maybe it's progressing much faster

than they anticipated? My LFTs have been stable, but it's not like

I've been getting checked every two weeks or anything. Does

everything go downhill from here? Or is it more along the lines of

the LFTs in that you can have it for ages before transplantation

becomes an issue? I'm just trying to figure out if this is any

indication of the disease progression or health of the liver. Should

I expect jaundice next? Will the itchiness go away or am I stuck

with it forever? What I mean is: does it get progressively worse or

does it come and go with the wind (or diet or whatever)? I'm not

sure what to think. I know, I'm overanalyzing, but I have this need

to be prepared for whatever may happen (not an easy thing with this

disease).

And last, I'm having this dull throbbing ache deep in my left leg

over the past 2 days. Like in the bones or something. Just a dull

uncomfortable pain. Related or no?

You all are so helpful. Thanks so much for your support.

Suzanna

[Guest guest]

Suzanna,

The symptoms are not a sure indication of the diseases progression or of what symptoms you will get next. We are all different and many experience different symptoms in different magnitudes and different orders. Some have sever itching when the disease is not very far advanced, but I suspect just about all have several sever symptoms just before requiring a transplant.

Your symptoms could and likely get better before they get worse.

Ian (52) PSC 89

Thanks so much, everyone, for the replies. Does anybody know what this means in terms of disease progression? I was just diagnosed this past fall 07, and they were indicating that I likely have many years of good health left, but maybe it's progressing much faster

than they anticipated? My LFTs have been stable, but it's not like I've been getting checked every two weeks or anything. Does everything go downhill from here? Or is it more along the lines of the LFTs in that you can have it for ages before transplantation

becomes an issue? I'm just trying to figure out if this is any indication of the disease progression or health of the liver. Should I expect jaundice next? Will the itchiness go away or am I stuck with it forever? What I mean is: does it get progressively worse or

does it come and go with the wind (or diet or whatever)? I'm not sure what to think. I know, I'm overanalyzing, but I have this need to be prepared for whatever may happen (not an easy thing with this

disease). And last, I'm having this dull throbbing ache deep in my left leg over the past 2 days. Like in the bones or something. Just a dull uncomfortable pain. Related or no?You all are so helpful. Thanks so much for your support.

Suzanna -- Ian Cribb former P.Eng. (resigned in good standing)

[Guest guest]

Suzanna,

The symptoms are not a sure indication of the diseases progression or of what symptoms you will get next. We are all different and many experience different symptoms in different magnitudes and different orders. Some have sever itching when the disease is not very far advanced, but I suspect just about all have several sever symptoms just before requiring a transplant.

Your symptoms could and likely get better before they get worse.

Ian (52) PSC 89

Thanks so much, everyone, for the replies. Does anybody know what this means in terms of disease progression? I was just diagnosed this past fall 07, and they were indicating that I likely have many years of good health left, but maybe it's progressing much faster

than they anticipated? My LFTs have been stable, but it's not like I've been getting checked every two weeks or anything. Does everything go downhill from here? Or is it more along the lines of the LFTs in that you can have it for ages before transplantation

becomes an issue? I'm just trying to figure out if this is any indication of the disease progression or health of the liver. Should I expect jaundice next? Will the itchiness go away or am I stuck with it forever? What I mean is: does it get progressively worse or

does it come and go with the wind (or diet or whatever)? I'm not sure what to think. I know, I'm overanalyzing, but I have this need to be prepared for whatever may happen (not an easy thing with this

disease). And last, I'm having this dull throbbing ache deep in my left leg over the past 2 days. Like in the bones or something. Just a dull uncomfortable pain. Related or no?You all are so helpful. Thanks so much for your support.

Suzanna -- Ian Cribb former P.Eng. (resigned in good standing)

[Guest guest]

Suzanna,

The symptoms are not a sure indication of the diseases progression or of what symptoms you will get next. We are all different and many experience different symptoms in different magnitudes and different orders. Some have sever itching when the disease is not very far advanced, but I suspect just about all have several sever symptoms just before requiring a transplant.

Your symptoms could and likely get better before they get worse.

Ian (52) PSC 89

Thanks so much, everyone, for the replies. Does anybody know what this means in terms of disease progression? I was just diagnosed this past fall 07, and they were indicating that I likely have many years of good health left, but maybe it's progressing much faster

than they anticipated? My LFTs have been stable, but it's not like I've been getting checked every two weeks or anything. Does everything go downhill from here? Or is it more along the lines of the LFTs in that you can have it for ages before transplantation

becomes an issue? I'm just trying to figure out if this is any indication of the disease progression or health of the liver. Should I expect jaundice next? Will the itchiness go away or am I stuck with it forever? What I mean is: does it get progressively worse or

does it come and go with the wind (or diet or whatever)? I'm not sure what to think. I know, I'm overanalyzing, but I have this need to be prepared for whatever may happen (not an easy thing with this

disease). And last, I'm having this dull throbbing ache deep in my left leg over the past 2 days. Like in the bones or something. Just a dull uncomfortable pain. Related or no?You all are so helpful. Thanks so much for your support.

Suzanna -- Ian Cribb former P.Eng. (resigned in good standing)

[Guest guest]

Suzanna,

Do have your leg checked out. I had a pain in my leg that felt like a insect bite, only I didn't remember being bit. It turn out to be a DVT (Deep Vein Thrombosis). I'm now on blood thinners (since 2004).

Ian (52) PSC 89

Thanks so much, everyone, for the replies. Does anybody know what this means in terms of disease progression? I was just diagnosed this past fall 07, and they were indicating that I likely have many years of good health left, but maybe it's progressing much faster

than they anticipated? My LFTs have been stable, but it's not like I've been getting checked every two weeks or anything. Does everything go downhill from here? Or is it more along the lines of the LFTs in that you can have it for ages before transplantation

becomes an issue? I'm just trying to figure out if this is any indication of the disease progression or health of the liver. Should I expect jaundice next? Will the itchiness go away or am I stuck with it forever? What I mean is: does it get progressively worse or

does it come and go with the wind (or diet or whatever)? I'm not sure what to think. I know, I'm overanalyzing, but I have this need to be prepared for whatever may happen (not an easy thing with this

disease). And last, I'm having this dull throbbing ache deep in my left leg over the past 2 days. Like in the bones or something. Just a dull uncomfortable pain. Related or no?You all are so helpful. Thanks so much for your support.

Suzanna -- Ian Cribb former P.Eng. (resigned in good standing)

[Guest guest]

Suzanna,

Do have your leg checked out. I had a pain in my leg that felt like a insect bite, only I didn't remember being bit. It turn out to be a DVT (Deep Vein Thrombosis). I'm now on blood thinners (since 2004).

Ian (52) PSC 89

Thanks so much, everyone, for the replies. Does anybody know what this means in terms of disease progression? I was just diagnosed this past fall 07, and they were indicating that I likely have many years of good health left, but maybe it's progressing much faster

than they anticipated? My LFTs have been stable, but it's not like I've been getting checked every two weeks or anything. Does everything go downhill from here? Or is it more along the lines of the LFTs in that you can have it for ages before transplantation

becomes an issue? I'm just trying to figure out if this is any indication of the disease progression or health of the liver. Should I expect jaundice next? Will the itchiness go away or am I stuck with it forever? What I mean is: does it get progressively worse or

does it come and go with the wind (or diet or whatever)? I'm not sure what to think. I know, I'm overanalyzing, but I have this need to be prepared for whatever may happen (not an easy thing with this

disease). And last, I'm having this dull throbbing ache deep in my left leg over the past 2 days. Like in the bones or something. Just a dull uncomfortable pain. Related or no?You all are so helpful. Thanks so much for your support.

Suzanna -- Ian Cribb former P.Eng. (resigned in good standing)

[Guest guest]

Suzanna,

Do have your leg checked out. I had a pain in my leg that felt like a insect bite, only I didn't remember being bit. It turn out to be a DVT (Deep Vein Thrombosis). I'm now on blood thinners (since 2004).

Ian (52) PSC 89

Thanks so much, everyone, for the replies. Does anybody know what this means in terms of disease progression? I was just diagnosed this past fall 07, and they were indicating that I likely have many years of good health left, but maybe it's progressing much faster

than they anticipated? My LFTs have been stable, but it's not like I've been getting checked every two weeks or anything. Does everything go downhill from here? Or is it more along the lines of the LFTs in that you can have it for ages before transplantation

becomes an issue? I'm just trying to figure out if this is any indication of the disease progression or health of the liver. Should I expect jaundice next? Will the itchiness go away or am I stuck with it forever? What I mean is: does it get progressively worse or

does it come and go with the wind (or diet or whatever)? I'm not sure what to think. I know, I'm overanalyzing, but I have this need to be prepared for whatever may happen (not an easy thing with this

disease). And last, I'm having this dull throbbing ache deep in my left leg over the past 2 days. Like in the bones or something. Just a dull uncomfortable pain. Related or no?You all are so helpful. Thanks so much for your support.

Suzanna -- Ian Cribb former P.Eng. (resigned in good standing)

[Guest guest]

Suzanna -

Ian's advice was excellent - your leg should be examined. DVT or an infection is a possibility.

Joanne H

(, Ca., mom of , 17, UC/PSC 2-06; Juv Rheum Arthritis 1998)

Suzanna,

Do have your leg checked out. I had a pain in my leg that felt like a insect bite, only I didn't remember being bit. It turn out to be a DVT (Deep Vein Thrombosis). I'm now on blood thinners (since 2004).

Ian (52) PSC 89And last, I'm having this dull throbbing ache deep in my left leg over the past 2 days. Like in the bones or something. Just a dull uncomfortable pain. Related or no?You all are so helpful. Thanks so much for your support. Suzanna | Files | Photos | Links | Database | Polls | Members | Calendar

..

[Guest guest]

Suzanna -

Ian's advice was excellent - your leg should be examined. DVT or an infection is a possibility.

Joanne H

(, Ca., mom of , 17, UC/PSC 2-06; Juv Rheum Arthritis 1998)

Suzanna,

Do have your leg checked out. I had a pain in my leg that felt like a insect bite, only I didn't remember being bit. It turn out to be a DVT (Deep Vein Thrombosis). I'm now on blood thinners (since 2004).

Ian (52) PSC 89And last, I'm having this dull throbbing ache deep in my left leg over the past 2 days. Like in the bones or something. Just a dull uncomfortable pain. Related or no?You all are so helpful. Thanks so much for your support. Suzanna | Files | Photos | Links | Database | Polls | Members | Calendar

..

[Guest guest]

Suzanna -

Ian's advice was excellent - your leg should be examined. DVT or an infection is a possibility.

Joanne H

(, Ca., mom of , 17, UC/PSC 2-06; Juv Rheum Arthritis 1998)

Suzanna,

Do have your leg checked out. I had a pain in my leg that felt like a insect bite, only I didn't remember being bit. It turn out to be a DVT (Deep Vein Thrombosis). I'm now on blood thinners (since 2004).

Ian (52) PSC 89And last, I'm having this dull throbbing ache deep in my left leg over the past 2 days. Like in the bones or something. Just a dull uncomfortable pain. Related or no?You all are so helpful. Thanks so much for your support. Suzanna | Files | Photos | Links | Database | Polls | Members | Calendar

..