Did not get very good news on my biopsy this past week

September 14, 2008

I had a brushing done on Sept. 3rd and on the 10th I met with my

Doctor. The Dr. that did the brushings gave me a very good

report....not much change in there and he did not think he would see me

for 6 months this trip.......WRONG.....Brushings came back showing

CCA. Now I am on the road for a transplant and really stunned....Don't

know what to think, what to feel.....just numb and scared to

death....My Doctor told me they can cure this......need some prayers

here I guess....I have to go have a bunch of more test like heart,

chest CT, ultrasound of pancreas, gallbladder etc. and others I can't

remember.....I have to start chemo and radiation ASAP....Anyone out

there been this route? How have you made out? Was chemo by pill or

intravenous? so many questions....Will meet with the oncologist and

surgeon this week I think.....hope so anyway...want this over as soon

as possible.....Guess I just am looking for alittle support.

cj

psc Feb 08, CCA Sept. 08

September 15, 2008

cj,

We did this! Most importantly, we made it!!!! Ok, it was hell, but we

really did make it. is three months post transplant and back to

work, and doing FABULOUS. Trust me, you are sooooo lucky to have had

it diagnosed early enough to be considered for transplant. The

survival rate jumps from 2-8% to 82%. Really, I'm thrilled for you in

a weird, warped, cancer survivor way.

There's a support group for cca at cholangiocarcinoma.org. Also, I

have a blog from the year we survived treatment at

bbfranson.blogspot.com. My email is bbfranson@.... We are here for

you, fire away.

wife of (psc 94, cca 07, tx 08)

Oh, the chemo, xeloda, was IV at the very beginning of radiation, and

then oral the rest of the time; 2 weeks on, 1 week off. No hair loss.

Recommended Posts