Re: LDN - adverse reaction?

[Guest guest]

i'm am excited about everyone's endorsement for LDN. But has anyone ever had an

adverse reaction? I've gotten pancreatitis 3 times from meds (6MP, flagyl,

asacol/colozol). I am going to discuss LDN with my GI in July, but was wondering

if anyone has had bad reactions to it?

>

> Wow Deanna, you've been through hell. Your story is very encouraging - thank

> you so much for sharing it. I too wish I had found out about this years ago.

> But now that I have discovered LDN it feels like, as my husband put it, that

> " the burden of hopelessness is lifted " .

>

> Carol

>

>

>

> From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf

> Of Deanna

>

> Hi Carol

>

> Just letting you know my personal experience with LDN. I've had severe UC

> for 4 1/2 years. Have been on Asacol, Prednisone, Imuran, enemas &

> suppositories. I went off my Imuran last October after finally weaning off

> Prednisone. Well, after the Imuran was out of my system for a couple of

> months, I had the worst flare ever. January & February of this year was an

> absolute nightmare. I had no idea that UC could get that bad and I've

> experienced bad before but nothing like this. Thought I was going to have to

> go to the ER, my kids were scared & thought I was dying because of the

> unbelievable pain!! I was having anywhere from 20-30 very watery, bloody

> diarrhea/day, completely housebound, extremely weak, lost tons of weight.

> Anyway my family physician agreed to let me try LDN (what did I have to

> lose) because I did not want to go back on steroids/Imuran and I absolutely

> refused to try Remicade like my GI was pushing. Seriously, after 2 days, the

> pain was gone!! I started at 1.5 mg for 1 months, then 3 for 1 month and now

> I've been on 4.5 mg for 1 month. I use the capsules, not the cream and have

> had no problems. What a difference!! I am leading a normal life, I have only

> 2-4 bms per day and they're mostly normal, well formed and my body now has a

> bm 'schedule'. Things didn't change overnight however (except for the pain

> thank God) it was a slow, steady improvement. And now after only about 95

> days on LDN I can't believe how my life has changed. Thank God I found out

> about it. I only wish I had known about it before. It is now the only med I

> take. If you have any questions, please feel free to email me directly.

>

> Deanna Roswell

> UC 4 1/2 years

> LDN 4.5 mg

>