Re: New stuff. =( (Tingling and Vibrating Hands)

[Guest guest]

My feet are bothering me. They are tingly and feel like boards. I thought it was neuropathy. but I don't know. I was on flagyl and stopped taking it but my feet have not improved.

Subject: Re: New stuff. =( (Tingling and Vibrating Hands)To: Date: Monday, June 23, 2008, 2:44 PM

,Hi! You've described perfectly what I've been complaining about for months. My hands (and occasionally my feet) tingle constantly like a light pins and needles and at times escalating into a sort of hurting numbness (I know that doesn't make sense, but I don't know how else to describe it). I'm always complaining that I feel like my hands are sitting on something that's vibrating.I've been to several neurologists and they keep telling me they're not finding anything...which is hugely frustrating since I know what I'm feeling all the time. None of my doctors have confirmed it, but I think it must be a PSC thing. I never had it before PSC and it's become a near-constant irritation. In fact, I can't even remember the last time I wasn't aware of my hands. I wonder how we get the doctors to consider the tingling a symptom. Do we just all have to report it and wait until the doctors catch up and talk to each other about it? I feel

like so much of what we go through must be PSC related and I'm forever trying to convince my docs of it!Just thought I'd let you know you're not alone!Sandi in VA> PLEASE tell me that this numbness and pain crap is just> another PSC > thing. Anyone have similar stuff????> >

[Guest guest]

My feet are bothering me. They are tingly and feel like boards. I thought it was neuropathy. but I don't know. I was on flagyl and stopped taking it but my feet have not improved.

Subject: Re: New stuff. =( (Tingling and Vibrating Hands)To: Date: Monday, June 23, 2008, 2:44 PM

,Hi! You've described perfectly what I've been complaining about for months. My hands (and occasionally my feet) tingle constantly like a light pins and needles and at times escalating into a sort of hurting numbness (I know that doesn't make sense, but I don't know how else to describe it). I'm always complaining that I feel like my hands are sitting on something that's vibrating.I've been to several neurologists and they keep telling me they're not finding anything...which is hugely frustrating since I know what I'm feeling all the time. None of my doctors have confirmed it, but I think it must be a PSC thing. I never had it before PSC and it's become a near-constant irritation. In fact, I can't even remember the last time I wasn't aware of my hands. I wonder how we get the doctors to consider the tingling a symptom. Do we just all have to report it and wait until the doctors catch up and talk to each other about it? I feel

like so much of what we go through must be PSC related and I'm forever trying to convince my docs of it!Just thought I'd let you know you're not alone!Sandi in VA> PLEASE tell me that this numbness and pain crap is just> another PSC > thing. Anyone have similar stuff????> >

[Guest guest]

My feet are bothering me. They are tingly and feel like boards. I thought it was neuropathy. but I don't know. I was on flagyl and stopped taking it but my feet have not improved.

Subject: Re: New stuff. =( (Tingling and Vibrating Hands)To: Date: Monday, June 23, 2008, 2:44 PM

,Hi! You've described perfectly what I've been complaining about for months. My hands (and occasionally my feet) tingle constantly like a light pins and needles and at times escalating into a sort of hurting numbness (I know that doesn't make sense, but I don't know how else to describe it). I'm always complaining that I feel like my hands are sitting on something that's vibrating.I've been to several neurologists and they keep telling me they're not finding anything...which is hugely frustrating since I know what I'm feeling all the time. None of my doctors have confirmed it, but I think it must be a PSC thing. I never had it before PSC and it's become a near-constant irritation. In fact, I can't even remember the last time I wasn't aware of my hands. I wonder how we get the doctors to consider the tingling a symptom. Do we just all have to report it and wait until the doctors catch up and talk to each other about it? I feel

like so much of what we go through must be PSC related and I'm forever trying to convince my docs of it!Just thought I'd let you know you're not alone!Sandi in VA> PLEASE tell me that this numbness and pain crap is just> another PSC > thing. Anyone have similar stuff????> >

[Guest guest]

My feet are bothering me>>>> I've had a strange sensation on the tops of my feet for over a year. At first it was a feeling of hypersensitivity mostly at night when I went to bed. Now it feels like a burning sensation again usually only at night. The doctors haven't given me any ideas what the problem could be but I will be seeing a dermatologist later in the summer and will ask him. It has gotten difficult enough to sleep at night that I've resorted to using lanacane to deaden the sensation. I had hoped that after tx it would disappear but it hasn't. Barby - KS UC - 1965, ileostomy - 1972, BCIR (continent pouch) 1994, PSC - 1995, arthritis 2007, tx 11.29.07married 28 years , 5 sons, 2 daughters in law, 1 granddaughter, 1 grandbaby due

10/08 and 1 golden retriever