Guest guest Posted May 18, 2008 Report Share Posted May 18, 2008 Hello all, As you may or may not know I am pretty new to PSC, got diagnosed this year and I am having my first ERCP on June 2nd. I don't know what stage I am at, but I do know that I have pain almost all of the time. The test for UC said I was fine, but I do have Celiac/Sprue disease, which is an autoimmune disease and it isn't helping matters much. I have applied for permanent ssi disability because I am tired and just feel bad all the time. I get scared because it seems to me like I should be having more good days then I am. Did anyone else start out this way, and do you have any suggests on how to boost my energy and give me a better quality of life? Also, I noticed that most of you have UC, is this something that I should worry about developing over time, or would I already have it? I have so many questions and my dr. is a Kaiser Gastric dr. and he doesn't seem to get it. He claims that PSC doesn't have pain and can't figure out what is wrong with me. Would you suggest I find a hepatologist? I will drive wherever I need to in order to get some real answers, when you are lost and confused, I find it easy to be scared as well. Thank you, hope to hear back soon. regards brandi celiac's disease 2002 and PSC 2008 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.