FL Wait List group (was Doesn't anyone care ????)

[Guest guest]

There is a Florida Group that addresses the waitlist,

http://leftbehindinfla.net/AAAA_web_site_LBIF/index.html

Steve

> > >

> > > > Thanks so much for that response. My son, who is 27 is also on that

> > waiting list for eight years. No hope and no help in sight.

> > > >

> > > > In a message dated 2/19/2012 8:46:09 P.M. Eastern Standard Time,

> > binhquangchau@ writes:

> > > >

> > > > Mr. Sequenzia:

> > > > There is not one single dollar in the proposed budget for people stuck

> > on the waitlist ...... people who receive zero dollars and zero supports.

> > > > Moreover, a full 40% of individuals deemed eligible for the waiver are

> > waitlisted with no plan to fund them.

> > > > While you are understandably upset by proposed changes to your

> > daughter's cost plan, my 28 year old daugher with autism and ID has no cost

> > plan to cut! She is just as eligible as your daughter and yet mine has been

> > waiting 8 years with no hope in sight.

> > > > All proposed money is consumed by the 60% already funded. Zero for

> > everyone else.

> > > > The entire APD budget must be increased and whatever it is,

> > insufficient as it is, it must be reallocated so that everyone deemed

> > eligible should get something ....... not nothing. It is because my daugher

> > and 20,000 others like her get zero that your daughter and 30,000 others

> > like her get your cost plans funded. You may use as harsh a tone as you

> > wish, but these are the facts.

> > > > People who are waitlisted should be writing to Senator Negron and

> > Representative Matt Hudson.

> > > > negron.joe.web@ and matt.hudson@

> >

> > > > Every eligible individuals should get some level of funding to cover

> > core services before any individual gets services that are not core to

> > their health and safety.

> > > > Every individual should get some funding for a meaningful day activity

> > after they exit the school system. They don't. Unless they are on the

> > waiver.

> > > > Every family should get some funded respite services. We don't.

> > > > The average cost plan of individuals on the waiver is over $44,000 per

> > year.

> > > > The average cost plan of those just as eligible but stuck on the

> > waitlist is $0.

> > > > This is fundamentally unfair and discriminatory on its face.

> > > > While you are tired of begging poeple to write to protect what they

> > already have, the wait listed and their families are tired of " advocates "

> > for individuals with developmental disabilities who are actually advocates

> > only for those already funded.

> > > > No dollars for the waitlisted? Same old, same old.

> > > > Respectfully,

> > > > Binh Quang Chau

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > From:

> >

> > > > To: sList

> > > > Sent: Sunday, February 19, 2012 7:49 AM

> > > > Subject: Doesn't anyone care that we never received

> > funding????

> > > >

> > > >

> > > >

> > > > Doesn't anyone care that we never received funding? As a mother of a

> > child with autism I definitely want to see the med-waiver program continue

> > but not as currently designed. I wonder what is being done for those of us

> > who have been wait listed for years and have watched from the side while

> > the rest of you receive services from the APD? I have yet to receive any

> > email notice from the Autism Society of America outlining when the rest of

> > us will receive funding. When will our children matter? Where is the

> > urgency in this? The med-waiver program as currently designed doesn't not

> > work and is borderline discriminatory. I think the med-waiver program

> > should be EQUALLY divided among those in need, not given to the select few

> > who were " chosen " to be worthy while the rest of us struggle to provide

> > services for our kids WITHOUT any assistance from the APD. Until I see a

> > more fair and even distribution of med-waiver funds I will not be

> > supporting this proposed plan.

> > > >

> > > > IF YOU WANT TO KEEP YOUR MED WAIVER SERVICES - PLEASE REPLY

> > > > To: ven@

> > > >

> > > >

> > > > Anyone who is receiving the Medwaiver for their child or adult with a

> > developmental disability needs to respond to this email, if you have been

> > notified that your funding will be cut or you sent in a public records

> > request to APD asking how the iBudget will affect you.

> > > >

> > > > If you have sent in the public records request that I sent out a few

> > weeks ago or you picked it up at the Autism Society of Florida table at the

> > CARD Conference, I need you to let me know what the reply was from APD. A

> > couple of you have sent me what you received back, but I need more data.

> > > >

> > > > APD is implementing the iBudget in areas 1 and 2 (Panhandle area) and

> > it is my understanding that everyone is receiving a cut in funding, which

> > will result in a cut in services. This is happening even though APD stated

> > that they would not be cutting services to our loved ones.

> > > >

> > > > If we don't act now, we will all have to live with what APD and Senate

> > bill 1516 will do to our services. Please don't sit back and do nothing. If

> > you don't want to lose services, then you need to respond to this email.

> > > >

> > > >

> > > > --

> > > > Regards,

> > > > Ven Sequenzia, Jr.

> > > > President

> > > > Autism Society of America

> > > > State of Florida Chapter

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > --

> > > > Regards,

> > > > Ven Sequenzia, Jr.

> > > > President

> > > > Autism Society of America

> > > > State of Florida Chapter

> > > >

> > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

>

>

> --

> Regards,

> *Ven Sequenzia, Jr. *

> *President*

> *Autism Society of America*

> *State of Florida Chapter*

> *

> *

>