Have I been wrongly diagnosed....????

[Guest guest]

Hi all,

I'm recently new to this site and have a few questions that some of

you may be able to answer.

I was diagnosed with PSC on July 3, a month ago. However my doctors

cannot fully confirm the diagnoses it seems now.

I have a history of gallstones. First attack in 1987 , second in

2000. My doctor put me on Urso 300 2x a day with regular checkups and

everything was fine except for a few smaller stones in my bile ducts.

I came off Urso in 2002 when I fell pregnant and stopped taking it

over the years as my gallbladder was always empty on checkups (still

had smallish stones in my liver but nothing to worry about).

In 2006 in my 2nd pregnancy I developed Obstetric Cholestasis and had

4 or 5 cholangitis attacks 3 months post partum. My ALT and ALPs were

extremely high and I was put on Urso 450 2x a day.

Since then I have had some chest pain (centre of rib cage) and my hep

noticed that my gallbladder had filled with stones and so had my

liver with an exceptional stone in my bile duct. I was put on Urso

450 3x a day and sent to do an ERCP within the month to take it out

and also my gallbladder.

When I did the ERCP (November 2007) my gallbladder was empty (they

left it there) and the large stone was actually a calcium buildup in

my bile duct (left it there also) they cleaned the bile ducts of

slush and they noticed that my left biliary tree had some dilatation

but nothing chronic and said may possibly be PSC but considering I

had been closely monitored in the last 8 years they highly doubted it.

Fast track to June '08, had some slight pain in centre of chest, go

to hep for an ultrasound where he finds that my bile ducts are full

of what seem stones again, he says that I may have a high chance of

having PSC. I have an MRI done on the same day but they are not

convinced with the results and they are sending me to have a CT scan

in Siena on Tuesday and then on to Bologna for a liver biopsy,

although my doc says my liver is very healthy but quite enlarged.

Bloodwork is perfect!!

Friday last week I had that dull pain in my chest again and on Monday

they did a Gastroscopy...nada. I was actually hoping for an ulcer!!

Call me crazy....

I am thankful that they are using every measure available to diagnose

me indefinately but can PSC be this hard to find? I'm starting to

think that maybe I should just remove my gall bladder and see what

happens. My doctors are also treating me as a unique case which

scares me a little.

Any information or personal experiences would surely enlighten me as

I am feeling a bit alien at the moment....and also blessed that I

don't have any symptoms as yet.

Thanking you all in anticipation,

a

Italy