Re: ERCPs and Contrast Dyes Questions * To *

[Guest guest]

Hi ,

I am very sorry to read what happened to you .I am still lucky that

I never had an ERCP, my diagnosis was done by liverbiopsy , but

maybe I will have to in the future.

Is in Holland any ERCP specialist that you know?

By the way I live in Regio Noord Holland and if you need some help

with shopping or anything I could give you a hand.

Regards

Silvia

>

>

> Hello " Iregener " ,

>

> I certainly don't wish to frighten you any further... but this is

another side of the complication coin.

> I have had one ERCP - performed by one of the most experienced

endoscopists in Holland - which resulted in an infected, necrotising

pancreatitis and a ruptured duodenum. This complication very nearly

killed me and I spent nearly 14 weeks in hospital, some of those

weeks in the ICU. I have been left with some serious disabilities as

a result of the MOFS/MODS (multi-organ failure/multi-organ

dysfunction syndrome). I need a multitude of drugs, including

immunosuppression, to keep chronic heart failure, pulmonary fibrosis,

an increase since then in ALL inflammatory parameters, increased UC

problems including hyperplastic masses in my rectum, increased

spondyloarthritis problems, now requiring permanent custom bracing of

the right leg, cataracts, Lupus, dermatological problems, crippling

fatigue etc etc. I have had my career destroyed as I had to go into

the disability system and I am physically badly restricted. I have

already moved to one level living as I can no longer manage the

stairs. I live alone and have increasing difficulties doing my

shopping, housework... all the " routine " things in life.

> I am told I have SIRS - systemic immune response syndrome.

> I am 57 and this happened to me when I was 50......

> I have had 2 MRCP's since then... there is NO WAY I will EVER allow

another ERCP, I would not survive such a compilcation a 2nd time. The

2nd MRCP used Gadolinium to delineate the bile ducts - I developed an

allergic reaction to the Gadolinium... so that's out too.

> I have decided that in the circumstances I will " ignore " all the

liver stuff and no longer even go for check-ups with a hepatologist.

There is really no point. My GI, GP and all my other (now necessary)

specialists " understand " my decision and are supportive.......

>

> Good luck with your procedure.

>

> DutchPat.

>

> PS. My personal viewpoint from a very close perusal of the

literature over the years, is that the statement " that they have

never had a patient get pancreatitis from an ERCP " is misleading at

best and unprofessional at worst. There isn't one single branch of

medicine that experiences " no complications " ........

> That they don't want to worry you unduly is one thing, giving you

an " ostrich " statement is something else all together. Even in the

best hands and with no discernible (my case) problems, disasters can

and do occur. Luckily not often, but......................

>

>

> ERCPs and Contrast Dyes Questions

> Posted by: " lregener " lregener@... lregener

> Mon Mar 31, 2008 8:45 pm (PDT)

> Hi,

>

> I am getting ready to have my second ERCP in a couple of weeks. The

> last time I had the test was in January of 1992, and they had to

abort

> the procedure because I had a reaction to the dye, and ended up with

> significant pancreatitis (and a 10 day hospitalization). I swore I

> would never swallow the tube again after that, so I did have the

MRCP,

> which had a definitive finding of PSC.

>

> I am wondering if anyone has had a similar situation, and then had

to

> have an additional ERCP (after a traumatic first one)? If so, were

> they able to use different contrast methods, or able to use the

scope

> without any dye at all?

>

> The doctor who is doing the procedure is unreachable, and his gate

> keepers keep assuring me that they have never had a patient get

> pancreatitis from an ERCP. But clearly, now they do. I am that

patient.

>

> I am also thinking about backing out of the whole thing. I am also

> scheduled for a liver biopsy in April as well (which I have no

problem

> with). Does anyone have any feedback or words of wisdom that you

would

> be willing to pass along?

>

> ly I am pretty scared about this whole thing, and my gut (no

pun

> intended) says just walk away.....

>

> Many thanks.

>