Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 I joined and have been following this list for two weeks now and thought I'd introduce myself. My name is -my 25 year old daughter( who is a nurse) was just diagnosed with PSC a couple of weeks ago. Needless to say this is ripping our hearts out and it's hard to function right now watching what this is doing to her as a 25 year old ready to start out her life. She's a tough kid. She was diagnosed with an agressive case of UC as a teen and had the J Pouch surgery in high school. She was having another bout with pouchitis that included severe back pains (for the first time) when he GI doctor ordered tests that confirmed PSC. We switched to a highly recommended GI team and liver specialist here in Pittsburgh at UPMC Presby,and are awaiting the results for a battery of tests and bloodwork done a few days ago. At the end of the month she will be scoped by the GI team from the ' throat down' to rule out Crohns. My wife and I are trying to learn as much as possible about this disease and reading the posts here are so helpful. I have a ton of questions but will wait for another post. george george Quote Link to comment Share on other sites More sharing options...
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