Having a bad time

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had aspiration anuminitus. He also had adelektisus. That is streaks

of collapse in the lungs. The adelektisus was in the right lung but we got

rid of it.

>

>Reply-To: RSS-Support

>To: RSS-Support >

>Subject: Re: Having a bad time

>Date: Sun, 27 Oct 2002 23:28:54 -0500

>

>Hi !

> Thanks so much for the suggestions! They are wonderful! And " YES " B

>had

>a swallowing study right after we got back from NY. We weren't home for 36

>hours and he was back in the hospital for 8 days. He had aspiration

>pnuemonitis. And something like adalectesus(sp?) I spelled that

>phonetically, so try sounding it out. I'm still not even sure what that is!

>Anyway, they said that the results of the study shoed that B isn't

>aspirating from swallowing. Now, the way that I understand it, even if he

>is

>aspirating when swallowing, it wouldn't always show every he swallows. Is

>that right?

> He got out of the Cleveland Clinic on 10/4? (can't remember without

>looking at the calendar! LOL) Anyway, he is STILL doing the gagging thing

>and his congestion hasn't totally gone away yet! It is so frustrating! He

>was just at his ped on 10/21, and he had an infection in both ears, puss in

>his throat and (of course) some congestion. We have him on nebs of Intol,

>3Xdaily. Hopefully that will help. You should see my 2 yr old

>granddaughter,

>Aidan, with the nebulizer! She is so funny! After B gets his treatment,

>then

>A has to have hers! I give her just the tube, with the machine running, and

>she sticks it in her mouth, ears, belly button! The look on her face is

>hilarious! LOL

>Anyway, thanks again for the suggestions! So this was so long! I have a

>tendency to talk to much too! (You can't tell can you? LOL)

>Pat (g-ma to Aidan, non-RSS, 2 and B, RSS, 10 months)

> Having a bad time

> > Resent-From: laura@...

> > Resent-To: bugwilder@...

> > Resent-Date: Sat, 26 Oct 2002 17:28:53 -0500

> >

> >

> > Hi,

> > I'm just writing to get some things off my chest and hopefully feel

> > better.

> > n just can't catch a break.

> > It started last June when he got an epidydimous infection after his

> > second hypospadias surgery. This is a really painful infection that

> > kids rarely get. It's the area that surrounds the testicle. So he

> > was on antibiotics for 2 1/2 months for that.

> >

> > Then, ever since July he's had terrible, painful constipation.

> > Anyone else's kids have this problem? It's heartbreaking to watch

> > him screaming in pain. We just changed to Pediasure with fiber.

> >

> > Sept 6 he had his g-tube/fundo/pyloroplasty. Because of being

> > catheterized, the epidydimous infection is back again. He was on

> > antibiotics 4x a day and just went to once a day, and it got worse

> > again, so we're going back to 4x and the urologist wants to do a

> > VCUG to see if anything's going on with his kidneys. Does anyone

> > else's kids have kidney abnormalities? I know that was one of the

> > characteristics in the old literature.

> >

> > He's been wretching ever since his surgery, so I'm feeding him very

> > slowly, and he's supposed to start Reglan today.

> >

> > Last night, as he was screaming because of the constipation, as I

> > put him back in his crib, he feeding pump tube must have gotten

> > caught on something and his button came out! I got the spare one and

> > my husband put it back in. Advice nurse said to come to the ER this

> > morning. so off we went for him to get poked and prodded some more.

> > When we got home he wretched some more and now he's thankfully

> > asleep.

> > when his button came out at 4:00 a.m. he didn't want to go back to

> > sleep! He wanted to watch TV and play.

> >

> > Meanwhile, I have another older son who doesn't get much attention

> > because I'm feeding n all day. It's not fair. I really don't

> > want to put him on a pump all day though.

> > If this doesn't get easier soon I'm going to lose it.

> >

> > There is some good news. He's gained almost 2 whole pounds in the 7

> > weeks since surgery, from 14.2 to 16, and my other son just got over

> > hand/foot/mouth disease, and n escaped that one somehow.

> >

> > Thanks for reading. I just needed to cry on someone's shoulder since

> > my husband is at work.

> >

> > Cindy

> >

> >

> >