RE: everyone about my update

[Guest guest]

I didn't get back on and reply to everyone.....my apologies.

No is not back home yet. We just talk daily via facebook, or blackberry and even short phone calls and he just happen to be being a butt the other day! All is better now.

Great news!!!! Gylenia called today!!! All my paperwork is done and I should have my pills on Tues. Now just have to get that initial appt for the first dose to be taken in office at my infusion center. They have to do a 6 hour observation of the first dose and after that I'm on my own! Thank goodness! I am daily with migraines right now and have got to get something under control before I cut my own head off!

I have to ask those of you that pray to please keep a close family in your prayers for me. They lost their son this morning. He has been battling brain tumors for years and and I shared our battles on a personal level and I feel like I have lost one of my major support beams! I am going to miss him so much but am so greatful he is no longer in pain! Amazing how two so different diseases share so many similar symptoms and we shared so many! We leaned on each other often during our bad days and understood without judgement how each other felt. I will miss our talks very much, but again, am so happy he no longer has to suffer his pain.

Anyway, I know some of you kept asking questions after my post and I'm so sorry I did not write back but I have been in the bed with migraines so much the last few days. I only listen to the tv and haven't dared to look at it. Today is better and can look at the computer and tv! Woooohoooo!!!!

Hugs and Love to everyone!

Tammy, Tx