Travel with O2-Sea Puffers

[Guest guest]

Joyce,

I think you might be talking about Sea-Puffers. http://www.seapuffers.com/

I've never been on one of their trips but I've heard only wonderful things about them.

Beth in North Carolina

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, February 6, 2009 8:27:01 AMSubject: Re: Re: Got my appointment at The Jewish Hospital!

There is at least one travel organization that plans trips/vacations and provides both O2 and RTs while on the trip. I forget the name of the organization, but saw it in The Pulmonary Paper.

Pink Joyce IPF 3/06 Pennsylvania

Donate Life

From: Margaret McConnell <margaretmcconnell64 @yahoo.com>Subject: Re: Re: Got my appointment at The Jewish Hospital!To: Breathe-Support@ yahoogroups. comDate: Thursday, February 5, 2009, 10:39 PM

I am so sorry Joyce. I was keeping my mouth closed because I found out that travel oxygen is not covered by medicare summer before last. I had a big uproar with my provider about it and my doctor's office offered to pay. That is when I bought my travel concentrator and put the alternator in my car... all for less than tank and cart rental for that one trip! I can afford to drive, take discounted water travel and stay in OK hotels when I need to go out for medical reasons but it is the back pack supply I still need to figure out. It would work if I had a travel companion who could help. Is there any possibility there is an organization that would have a free loaner? We have a local organization called ASSETS.Margaret

From: JOYCE RUDY <greycharlie@ q.com>To: Breathe-Support@ yahoogroups. comSent: Thursday, February 5, 2009 5:14:12 PMSubject: Re: Re: Got my appointment at The Jewish Hospital!

Medicare will not pay for a portable for travel even if it is for medical purposes. I have medicare with supplemental blue cross but Blue Cross will only pay if medicare pays. They will pay for oxygen in Denver. So, I have decided to fly with United and use their air for an exta $150 each way and I won't use air on the shuttle to and from phoenix nor in the terminals. If I can use a wheel chair I should be all right because my 02 stays in th elow 90's when at rest. It only drops below 90 upon exertion so I should be all right. JoyceRudy

Re: Got my appointment at The Jewish Hospital!

Joyce R.,I don't know what your insurance might cover, but I have Apria also. When I went to Walt Disney World for a week in December, they took care of all my oxygen needs - for both the hotel and the air travel. They provided me with a portable unit AND an extra battery. I met with them the week before the trip to pick up the unit...at which time they showed me everything about operating it. When the Apria rep wasn't happy with the way that one of the batteries was charging, he rush ordered a new unit. Because of the timing, he had the new unit shipped overnight to his house for Saturday delivery, then met me halfway between his home and mine to give me the equipment (we were leaving the next day). All of this and I never even saw a bill!!! It was all taken care of by insurance... so check it out! You never know...and it never hurts to ask.Steve aka...Knip IPF 9/07 confirmed via VATS

12/0757 New Hampshire> > > > > >> > > > > > Telephone tag is over! I have my appointment at Jewish > Hospital!> > > > It's> > > > > the week of March 23rd. Actually it is just for 4 days and > that is> > > > > perfect! I will be out and gone on the 4th day at 10am! Now > things> > > > are> > > > > working out for me! Have

plenty of time to make arrangements > and> > get> > > > set> > > > > and am excited! My birthday is the 10th and maybe they will > have> > > > some> > > > > great news for me. My pulmodude says they won't be able to > tell> > from> > > > my> > > > > ct scan what is causing my PF because the scan shows> > overlapping. .I> > > > > don't understand what that means. He says they will just > tell me> > to> > > > get> > > > > a Vat. I don't understand why my pulmonologist isn't worried > about> > > > that> > > > > since he said during the broncoscopy I bled horribly that he > had> > to> > > > stop> > > > > and not get many

samples. He said they had a hard time > stopping> > the> > > > > bleeding...I asked him if he knew why and he said NO HE > DIDN"T.Now> > > > > shouldn't that be of some concern when telling me to get a > biopsy> > > > that> > > > > you cut into my side and into my lung????? Joyce Rudy AZ IPF > 11-08> > > > > >> > > > >> > > >> > >> >>