Intro

[Guest guest]

I have been poked and prodded, x-rayed, given Dracula a couple of gallons of

blood,

sliced diced and sectioned, then pftd and walked into the floor for the past

year.

Basically, last year I caught what was supposedly a cold. Then a couple of weeks

later, it

was changed to must have been the flu. Then, oops, looks like ground glass,

sorry it is

IPF. Maybe. Or NSIP. Maybe. Or NSIP with an autoimmune disease component.

Several

months later, and the diagnosis is currently NSIP with an autoimmune disease

component

and a connective tissue disease with it. Personally, sounds like a catch all.

Sorry if I sound

frustrated. I am. And scared.

I was put on oxygen 3 months ago, 2 liters continuous. Thought that I did not

need it,

now not sure I can be without it. Not sure if I will ever get better. Does it

get better?

I work full time, am single parent of 2 kids still at home and caregiver to my

elderly

mother (although honestly, she is taking more care of me than I am of her

lately.)

A couple of questions...

1) I feel exhausted a lot of the time, to the point that my body seems to made

of lead. If

that normal? Yesterday I was able to do the dishes. It took an HOUR! then, I

need a 2

hour nap. I am exhausted.

2) I start sweat buckets sporadically throughout the day. (no, not menopause). I

get

drenched. Is that part of this process?

3) Oh, yeah, and just for fun, I think that I am catching a cold!! So, what do I

do now?

normally, not an issue. But with whatever I have, and the medications that I am

on what

should I do? Is there something that I should do or not do?

Sorry for the long winded message.

Later,

DX 08 still pending??

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