No oxygen and flying

[Guest guest]

I'm still playing telephone tag with The Jewish Hospital and wonder how long ahead that they make an appoointment. Does anyone know if it will be weeks or months?

I have decided to not take my oxygen with me on the plane. I am only on 3 liters and the terminal is at sea level in Pheonix and I am at 5200 feet at home so I should be all right walking thru the terminal and on the plane, I am not moving so my need for oxygen will be little. I don't know about Denver's terminal..how long it is, etc. but I think I can make it. That will make things considerably easier for me traveling. The Jewish Hospital said to contact them if you need oxygen and I will. I have to cut expenses and if Medicare won't pay for it I won't take it. It will all ready cost me about $200 aday with dog boarding, plane fair and hotel and food expenses. I hope to be able to get into a motel or hotel that has a shuttle and that should cut expenses a bit. Also, I would like one that has Wifi and breakfast. I think I can make it on 2 meals a day. I hope they have dining facilities too but would love it if there were a Burger King within easy distance..LOL The patient representative said that I could be there 7 days. The key word is COULD so if I plan on the original 4 that they first said what will happen to my return ticket? And if I get a return ticket for 7 days what if they are thru with me in 4? This all seems so complicated. And this telephone tag is aggravating. She leaves me a message that says "Call me as soon as possible" and I do and all I get is an answering machine that says she will get back to me in 24-48 hours...well, she never gets back to me in 24 and then there is the whole weekend and then when Monday comes I have things I have to do! I have to run around and get the tests results sent and they are in more then one facility! I also have my exercise class and Usually need to go shopping...I can't just sit at home and wait not knowing when they will call. They asked me for my cell phone number which I called and gave her (leaving it on her voice mail which she said would be fine) but she has never used it. I am so frustrated with The Jewish I have to just forget about them and go about my business.

Today is a bad day breathing wise for me and I don't know why....I feel like I am not getting enough air and my chest feels "heavy". I feel like one of my dogs is sitting on my chest....does that make sense? BlueFlyer JOyce AZ IPF 11-08