Guest guest Posted December 26, 2000 Report Share Posted December 26, 2000 Absolutely try the diet! And get the kids looked at for constipation as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2000 Report Share Posted December 26, 2000 Toe walking is an indicator of extensive constipation. A good doctor can usually tell from a physical exam ... but an x-ray is more conclusive. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2000 Report Share Posted December 26, 2000 > Absolutely try the diet! And get the kids looked at for constipation as well. Thanks for the prompt reply. Is there a reason to get them tested for constipation? They don't seem to have too much trouble in that area, was just wondering if this was something parents should get done when kids have PDD. How do you get them tested? What do you ask the doctor to do? Thanks again, it seems good to know there's someone out there that knows something about this. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2000 Report Share Posted December 26, 2000 If both your grandchildren are toe walking, it probably would be a good idea if they were checked out for bowel blockage. This happens to a lot of kids when they are blocked. They toe walk to ease the pressure and pain. My ADHD grandson's doctor figures that he probably has blockage, although she did not x-ray him for it, because he has been constipated since he was little. She said that it would take months for his bowels to shrink to normal size. I think the bread machine thing is a personal choice. I already have a few kitchen gadgets but my mixer was not up to doing the bread without it climbing over the top so I bought a new Kitchen Aid mixer. It will make the bread and so much more. With all the extra work that seems to be added making gfcf bread in a machine, I don't think it is worth it to me personally. But then, I am still working on a bread that everyone will accept. I finally quit dumping my mistakes in the garbage, if they were fit to eat at all, and make bread crumbs out of them for my meat loaves. No one complains about them that way. ;-) When my youngest daughter was little, she started throwing up a lot after I put her on the bottle at about 2 1/2 months. We had a shortage of doctors in our little mountain town and I was beginning to get terrified at the amount she was throwing/spitting up. I tried all kinds of different liquids and they all met the same fate. Strained baby food she was keeping down and she was not losing weight but I was still panicky. The doctor finally recommended I take her to the next town to a pediatrician. I went to one I knew for years and he told me that she would stop when she started walking. His new baby was having the same problem. As soon as she started walking, the problem was gone. That was a valve problem not intolerance to casein. This diet is not going to hurt your grandchildren. It is a healthy diet. My grandson is still very autistic but he has improved much since September. He probably would improve much more if we did not keep having infringements. Don't forget to check out the website that goes with this list. www.gfcfdiet.com and the companion list gfcfrecipes (AT) e This is a great list with tons of support. I don't know what I would have done without them. I am raising two of my grandsons. I am trying to get the 9 year old to do the diet. He is ADHD and maybe bipolar. His 6 yo brother has nonverbal autism and has been on the diet since September as completely gfcf as I can keep him. We have seen lots of improvement and we are look forward to lots more. Betty in Central Ca. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 Welcome Jen, I have fibro/myofacial pain syndrome complex, carpel tunnel syndrome, left shoulder impingement, panic disorder, and depression (Yes I am a mess) I never had Botox injections ( I am not even sure what they are if anyone can explain maybe I can ask my rheumy about them) I am sure someone here can tell you their experiences with them here in the group if they have had them. Hope you get your info.... and again welcome Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 Welcome Jen, I have fibro/myofacial pain syndrome complex, carpel tunnel syndrome, left shoulder impingement, panic disorder, and depression (Yes I am a mess) I never had Botox injections ( I am not even sure what they are if anyone can explain maybe I can ask my rheumy about them) I am sure someone here can tell you their experiences with them here in the group if they have had them. Hope you get your info.... and again welcome Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 > > Pam: have they done a liver biopsy on you yet? What tests have you had done? how much Urso are you on? I take 1200 mgs a day. > > Hello all!! I am Pam a newly diagnosed soul with PSC(2 > > weeks) I am asymptomatic at this point besides > > elevated liver enzymes and like CJ new to urso > > 3/6.Just curious to know if someone has been on it for > > a while.If so has their PSC slowed down,or not > > advanced ??Thx Pam > > > > > > > ______________________________________________________________________ __ > ____________ > > Be a better friend, newshound, and > > know-it-all with Yahoo! Mobile. Try it now. > http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Yes I have had a liver biopsy.I don't have UC or Krohn's just this There is lupus in the family. I will have my pharmacist print out info .I did print somethings from the internet Thx for your reply --- cjlackie clackie@...> wrote: > > > > > My pharmacist printed out some studies about URSO> ______________________________________________________________________ > __ > > ____________ > > > Be a better friend, newshound, and > > > know-it-all with Yahoo! Mobile. Try it now. > > > http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > > > > ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Yes I have had a liver biopsy.I don't have UC or Krohn's just this There is lupus in the family. I will have my pharmacist print out info .I did print somethings from the internet Thx for your reply --- cjlackie clackie@...> wrote: > > > > > My pharmacist printed out some studies about URSO> ______________________________________________________________________ > __ > > ____________ > > > Be a better friend, newshound, and > > > know-it-all with Yahoo! Mobile. Try it now. > > > http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > > > > > > ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 Welcome Steve, I'm sorry that you were diagnosed with PSC and NASH (I don't know anything about NASH), about PSC we can not accurately predict how the disease will progress in you or how quickly. You don't have to read many posts by this group to figure out PSC effects us all differently. Some of us have had PSC a long time (I was diagnosed 19 years ago) and are relatively symptom free. Others have sever itching, RUQ pain, fatigue, and/or other symptoms. This is a good group to be apart of (if you have PSC or are a caregiver), lots of caring people that can relate to what your going through. Ask anything you want, somebody here has gone through it before. Ian (52) PSC 89 Hi Folks,I'm a new member and found this group via Google. I want to thank the creators for the wealth of information on PSC that was organized for us. I was diagnosed in the past 3 months with both PSC and NASH. I know that having both increases my odds of developing Cirrohosis and other complications. My reading on PSC seems to consistently indicated that most people develop cirrhosis and, then, liver failure within 10 years. Am I reading the literature correctly? And. I know and my doctors confirmed that I am at higher risk in that I have two separate diseases that my odds of developing complications are even higher. But. Is there a typical course in terms of progression with PSC? Thanks for any help you can give and I look forward to the day when I can give something back to the group.Steve -- Ian Cribb former P.Eng. (resigned in good standing) Quote Link to comment Share on other sites More sharing options...
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