Jaundice and bilirubin #'s

[Guest guest]

My husband had his first high bilirubin 3 weeks ago but all the other

liver numbers were within the normal range, although elevated from his

baseline. The bilirubin has since been slowly going back down to

normal but his eyes have remained yellow and he is quite fatigued.

The doctor seems surprised that his eyes are still yellow and that he

is fatigued. He had an ultrasound that showed more PSC involvement

and a " quite distended gallbladder " . I am not sure what the

gallbladder involvement means. Has anyone had any of these things

happen and what did it mean? This is the first time that he has been

experiencing any symptoms of the PSC and he has had it for more than

two years so we feel that we are still new to this and don't

understand what is happening. And since we don't know anyone else

with this disease it is hard to not have anyone to ask questions to.

Any advice or experiences would be greatly appreciated. Thank you.

wife of Rick Crohn's '04, Arthritis '06, PSC '06