Pink Joyce

[Guest guest]

Joyce,

Hope you are feeling better today...I am. Or at least my stomach is feeling better. I'm still very tired a bit like I've been mashed by a steamroller. And I'm not even a little bit interested in food, if only that would last, lol.

Happy New Year to you!!

Beth in North Carolina

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

HAPPY NEW YEAR!!

To: Breathe-Support Sent: Thursday, January 1, 2009 7:51:46 AMSubject: Re: Re: new and scared

Beth

I have the same bug

Could it be that contagious so far apart???? lol

Yesterday was awful

didn't even turn on my computer

slept most of the day

hardly ate

skipped some meds

i wonder if we are more susceptible to these things because of our comprised immune systems

hope you are feeling better

Pink Joyce IPF 3/06 Pennsylvania

Donate Life

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Re: new and scaredTo: Breathe-Support@ yahoogroups. comDate: Wednesday, December 31, 2008, 6:16 PM

Eileen,

Sher is absolutely correct. I don't know where you heard that most IPF patients die before getting disability but it's simply not true. My SSDI was approved in less than 6 months. I remember one specific individual in this group whose SSDI was approved in less than 2 months.

If you decide to go down that road there are things you can do to help your application along and increase your chances of being approved quickly.

I also feel your pain on the weight issue. I've struggled with my weight since I was a teenager and that struggle is not helped now by how difficult it is to exercise safely. I am losing weight but very slowly. I just keep trying to move in that direction and not stress over it.

I've been living with pulmonary fibrosis for two and a half years now and for that entire time I've been on oxygen 24/7. It is possible to continue to live a good and productive life with supplemental O2. You are not alone!!

Beth in North Carolina

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

HAPPY NEW YEAR!!

From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Wednesday, December 31, 2008 6:34:44 PMSubject: Re: Re: new and scared

Eileen...your last line reads 'most IPF pts die before getting disability'. ..I don't think that is true. There are some on the board who have disability.. . Beth for one. I'm already on S/S so I cannot apply for SDI. Those who have it will respond to you I'm sure.

I know, losing weight is so difficult and especially if you're on prednisone.

Don't panic Eileen, you are not going to die next week. I thought I was going to die in a matter of days when I was first dx. It will be three years ago in March.

I hope you will consider filing for SDI. Lots of us here on it... that may help your worry about the house/salary needed. Are 's wages enough to keep you afloat?

Take a deep breath and just forge ahead. We're all here for you and you will learn many helpful things.

Keep on keepin' on...

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

new and scared> > > Hi > My name is Eileen. I was diagnosed w IPF/UIP in May 2007. I have > actually been doing very well till this Thanksgiving. I got the flu > and my oxygen dropped. The doctor put me on 02 temporarily saying he > thought I would go back up but I have not. Monday he told me I have to >

face the possibility my fibrosis has worsened and I will need to stay > on 02. I happen to be off from work this week so I am trying to take > it easy but I am scared. I am so tired. How am I going to keep > working? If I don't work we will lose our house. Not a good market to > have to sell now. I am just scared and need someone who knows what it > is like to talk to.>