Lyme DX

[Guest guest]

Hi all,

Lyme DX by ND/MD came yesterday. Kind of overwhelmed with it, so if anyone else

has a DX for " chronic " lyme, I would appreciate any resources or info, thoughts

on treatment etc.

The DX came after Igenix bood lab testing. We skipped labcorp testing. I have

been having multiple symptoms since January, but it coincided with our starting

SCD, so we were kind of waiting to see what happened. After 4 " flares " , we

finally tested for Lyme. My symptoms have been consistent with MS, so I was

tested for that as well, with a negative MRI. Looking back on it, I guess it all

was a little hairy. At least now I feel better - a reason for why I am so tired,

why my right side throbs continually, why I have presistent numbness, etc . . .

ND/MD calls it " chronic " vs " single incident " because my symptoms have been

persistent for longer than 3 months, and there is not a specific history of a

tick bite, or recent evidence (rash, etc.)

First course of action is 30 days antibiotics - she prefers Doxycycline, but we

agreed on Zithromax, with ++ probiotic and acidolophus supplementation - genlter

on my system. She wants to " provoke " the bugs and then re-test, because we need

secondary confirmation for insurance compliance. I have not started the Zithro

yet - I have not been on antibiotics since starting SCD.

ND/MD follows ilads.org protocol for treatment. We are going to re-test blood

after first course of Zithro. She anticipates that because we caught it early,

my treatment can be handled naturally after initial antibiotics . . .

So, any thoughts or help woudl be appreciated. Reliable resources on lyme that

other have found helpful.

Kind of deflated yesterday - and after everyone went to bed, all I really wanted

was a huge bowl of mac & cheese (even GF!!) but I completely resisted and had

meatballs and cauliflower puree instead . Oh, food + emotions!

Thanks in advance -

Kim in NJ, SBS due to bowel resection Feb 03

" Chronic " Lyme June 09

2 4 yr olds, ADHD/SPD, leaky gut, k.oxytoca, candida

Transitioned to SCD from GFCF Nov/Dec 08

All SCD Jan 1/09