Re: Pink

[Guest guest]

Pink Joyce

Your needs and use of the Marathon are very nearly the same as mine with

the exception that I have days I can't use the demand at all. My nose is

too congested to send a message to the equipment.

I noticed the " start talking " part too. Now, talking on the treadmill in

rehab did impact me but in general I'm not affected as much by eating

and talking as most seem to be. I've had that pointed out to me by

several including Gwynne and Beth and I think Leanne even

commented. I feel very lucky in that respect so far. Even though I

typically need 4 lpm and sometimes if I'm in a hurry even 5, I can

normally sit, rest a little, and then eat a meal without oxygen. Now, if

I stand up from the table before hooking it up, I realize it extremely

quickly.

> > >

> > > I was diagnosed with IPF in March 2005. I'm unable to do things

> > > without my oxygen. When I try without the oxygen, it's difficult

> and I

> > > cough uncontrollably. So the doctor put me on 3 liters 24/7. I

> take a

> > > portable tank with me when I go out.

> > >

> > > The cough is very annoying. There are times that I'm unable to

> speak

> > > because I'm unable to breath and the coughing. When I cough, I

> have a

> > > burning sensation in the back of my throat. The pain goes into

> the

> > > base of my neck (below my adam's apple).

> > >

> > > I'm going to my PCP next week to discuss this. Does anyone else

> have

> > > this type of problem?

> > >

> > > Thanks for your thoughts.

> > >

> > >

> > >

> > >

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> Date: 1/26/2009 7:08 AM

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> > >

> >

>