** I just got another note from Dr Lindor**

[Guest guest]

RE: High Dose URSO study

It would never hurt to contact NIH (Pat Robuck or Jay Hoofnagle) to express

our group's real needs for them to support research that can lead to effective

treatment for PSC. They know this,

but patient input

and advocacy means a great deal

to them, as it should.

I wrote back and told Dr Lindor our group

would get right on it. I looked up

the addresses (they are below) please

send both of them a note (email and/or snail mail) But don’t all do it today, pick a

day next week and write something different to each of them. Please, this is something we can all do,

let’s be proactive!!

NIDDK, National Institutes of Health

Division: Digestive

Diseases & Nutrition

Attn: Dr. Pat Robuck

6707 Democracy Blvd.

Bethesda, MD 20817

Email: robuckp@...

NIDDK, National Institutes of Health

Division: Liver Disease

Attn: Dr. Jay Hoofnagle

Bldg 31, Room 9A27

Bethesda, MD 20892-0520

Email: HoofnagleJ@...

By the way, I also told him, if he needs us

to anything to let us know.

Thank you!

Barb in Texas