question

[Guest guest]

,

Hope you get some responses to this to help you make an informed

decision. I first noticed that I didn't have the lung capacity I

used to when I couldn't blow up a balloon--imagine all this hot air

and not being able to blow up a balloon! lol

Good luck!

Sue Me

> Hey My Friends,

> I went to the ALS clinic in Atlanta today for my check up.I had

a

> pretty good check up except my breathing has gone down to 59

percent

> and they want me to start using a breathing machine at night to

expand

> my lungs.They also want me to think about getting a feeding tube

put

> in even though Im still eating and drinking fine.They said that

> because my breathing has gone down there might be a problem with

being

> put under to insert the feeding tube.They said its better to do it

now

> before breathing gets worse.I wouldnt use it just have it for when

I

> need it.

> My question is do any of you have feeding tubes and do they

bother

> you?I know someone said awhile back that PLSers dont get feeding

tubes

> and I think someone else said they did.

> Your Friend

>

[Guest guest]

BOB I would get a second and a Third Oppinion before i get one .I

can't speak for you ,but for me i was told only as a last resort .

My Pulmonologist gave me a Bad rating because my Plate vibrated when

i blew out hard during the test .I said have you seen this

before,the vibration shows on the chart it in turn causes the air to

come out wrong .He said wat do you mean i said the flucuation .Oh i

dont know what that is. I knew right away he was an Idiot .All he

knew was how to run the Machine .Tests Interpretations are all

subjective .Did they explain how the test is graded or how it

works .Also If your a smoker BETTER QUIT this will affect the test

dramatically .GEO

>

> Hey My Friends,

> I went to the ALS clinic in Atlanta today for my check up.I had

a

> pretty good check up except my breathing has gone down to 59

percent

> and they want me to start using a breathing machine at night to

expand

> my lungs.They also want me to think about getting a feeding tube

put

> in even though Im still eating and drinking fine.They said that

> because my breathing has gone down there might be a problem with

being

> put under to insert the feeding tube.They said its better to do it

now

> before breathing gets worse.I wouldnt use it just have it for when

I

> need it.

> My question is do any of you have feeding tubes and do they

bother

> you?I know someone said awhile back that PLSers dont get feeding

tubes

> and I think someone else said they did.

> Your Friend

>

[Guest guest]

Hi ,

I think you have been given lots of good advice. Definitely seek

other opinions. As Geo once posted...you cant trust all doctors. Our

local doctor almost killed my husband.

After reading what others have said, if I were in your position, I

wouldnt have it done.

Aussie Maureen

>

> Hey My Friends,

> I went to the ALS clinic in Atlanta today for my check up.I had a

> pretty good check up except my breathing has gone down to 59 percent

> and they want me to start using a breathing machine at night to expand

> my lungs.They also want me to think about getting a feeding tube put

> in even though Im still eating and drinking fine.They said that

> because my breathing has gone down there might be a problem with being

> put under to insert the feeding tube.They said its better to do it now

> before breathing gets worse.I wouldnt use it just have it for when I

> need it.

> My question is do any of you have feeding tubes and do they bother

> you?I know someone said awhile back that PLSers dont get feeding tubes

> and I think someone else said they did.

> Your Friend

>

[Guest guest]

Hi Jane i think they make a Prosthetic (sp) Device for that? GEO

>

> I am having a problem with my right knee giving in when I stand.

Does any one else have this? It has not done this before. built

me a rail to hold to and stand but he has to hold my knee back for me

to stand.

>

>

> Jane Anne

>

>

[Guest guest]

Hi Jane i think they make a Prosthetic (sp) Device for that? GEO

>

> I am having a problem with my right knee giving in when I stand.

Does any one else have this? It has not done this before. built

me a rail to hold to and stand but he has to hold my knee back for me

to stand.

>

>

> Jane Anne

>

>

[Guest guest]

Hi Jane i think they make a Prosthetic (sp) Device for that? GEO

>

> I am having a problem with my right knee giving in when I stand.

Does any one else have this? It has not done this before. built

me a rail to hold to and stand but he has to hold my knee back for me

to stand.

>

>

> Jane Anne

>

>

[Guest guest]

hi jane anne,

do you have ankle-foot orthotic braces, or has your

doctor mentioned them? i have the same problem w/both

knees buckling when i stand, and those help me w/the

knee problem and w/foot drop.

sarah

--- King gking@...> wrote:

> I am having a problem with my right knee giving in

> when I stand. Does any one else have this? It has

> not done this before. built me a rail to hold

> to and stand but he has to hold my knee back for me

> to stand.

>

>

>

> Jane Anne

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

[Guest guest]

hi jane anne,

do you have ankle-foot orthotic braces, or has your

doctor mentioned them? i have the same problem w/both

knees buckling when i stand, and those help me w/the

knee problem and w/foot drop.

sarah

--- King gking@...> wrote:

> I am having a problem with my right knee giving in

> when I stand. Does any one else have this? It has

> not done this before. built me a rail to hold

> to and stand but he has to hold my knee back for me

> to stand.

>

>

>

> Jane Anne

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

[Guest guest]

hi jane anne,

do you have ankle-foot orthotic braces, or has your

doctor mentioned them? i have the same problem w/both

knees buckling when i stand, and those help me w/the

knee problem and w/foot drop.

sarah

--- King gking@...> wrote:

> I am having a problem with my right knee giving in

> when I stand. Does any one else have this? It has

> not done this before. built me a rail to hold

> to and stand but he has to hold my knee back for me

> to stand.

>

>

>

> Jane Anne

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

[Guest guest]

---Hi Jane:

My left knee does when I get tired and my right knee does

every once in a while but not both at the same time.I guess it just

goes along with it.

Danny

In PLS-FRIENDS , " King " wrote:

>

> I am having a problem with my right knee giving in when I stand.

Does any one else have this? It has not done this before. built

me a rail to hold to and stand but he has to hold my knee back for me

to stand.

>

>

> Jane Anne

>

>

[Guest guest]

Thanks Geo,

Jane Anne

Re: Question

[Guest guest]

Danny,

Thanks.

Jane Anne

Re: Question

> ---Hi Jane:

> My left knee does when I get tired and my right knee does

> every once in a while but not both at the same time.I guess it just

> goes along with it.

> Danny

>

>

>

[Guest guest]

Sara,

No I do not have them. I thought they would be to uncomfortable.

Jane Anne

Re: Question

> hi jane anne,

>

> do you have ankle-foot orthotic braces, or has your

> doctor mentioned them? i have the same problem w/both

> knees buckling when i stand, and those help me w/the

> knee problem and w/foot drop.

>

>

[Guest guest]

hey jane anne,

i'm sure opinions and experiences on the forum are

varied but my braces are really not too bad. and they

help enough that the little bit of discomfort is worth

it to me. however, i may be singing a different tune

when the weather gets hot;-) i haven't had them

through a north carolina summer yet. maybe worth

investigating if your knee buckling gets to the point

where you're feeling too unsteady. hope this helps.

sarah

--- King gking@...> wrote:

> Sara,

>

>

> No I do not have them. I thought they

> would be to uncomfortable.

>

>

>

> Jane Anne

> Re: Question

>

>

> > hi jane anne,

> >

> > do you have ankle-foot orthotic braces, or has

> your

> > doctor mentioned them? i have the same problem

> w/both

> > knees buckling when i stand, and those help me

> w/the

> > knee problem and w/foot drop.

> >

> >

>

>

>

>

>

[Guest guest]

hey jane anne,

i'm sure opinions and experiences on the forum are

varied but my braces are really not too bad. and they

help enough that the little bit of discomfort is worth

it to me. however, i may be singing a different tune

when the weather gets hot;-) i haven't had them

through a north carolina summer yet. maybe worth

investigating if your knee buckling gets to the point

where you're feeling too unsteady. hope this helps.

sarah

--- King gking@...> wrote:

> Sara,

>

>

> No I do not have them. I thought they

> would be to uncomfortable.

>

>

>

> Jane Anne

> Re: Question

>

>

> > hi jane anne,

> >

> > do you have ankle-foot orthotic braces, or has

> your

> > doctor mentioned them? i have the same problem

> w/both

> > knees buckling when i stand, and those help me

> w/the

> > knee problem and w/foot drop.

> >

> >

>

>

>

>

>

[Guest guest]

hey jane anne,

i'm sure opinions and experiences on the forum are

varied but my braces are really not too bad. and they

help enough that the little bit of discomfort is worth

it to me. however, i may be singing a different tune

when the weather gets hot;-) i haven't had them

through a north carolina summer yet. maybe worth

investigating if your knee buckling gets to the point

where you're feeling too unsteady. hope this helps.

sarah

--- King gking@...> wrote:

> Sara,

>

>

> No I do not have them. I thought they

> would be to uncomfortable.

>

>

>

> Jane Anne

> Re: Question

>

>

> > hi jane anne,

> >

> > do you have ankle-foot orthotic braces, or has

> your

> > doctor mentioned them? i have the same problem

> w/both

> > knees buckling when i stand, and those help me

> w/the

> > knee problem and w/foot drop.

> >

> >

>

>

>

>

>

[Guest guest]

Sara,

Thanks so much I may give it a try.

Jane Anne

Re: Question

>>

>>

>> > hi jane anne,

>> >

>> > do you have ankle-foot orthotic braces, or has

>> your

>> > doctor mentioned them? i have the same problem

>> w/both

>> > knees buckling when i stand, and those help me

>> w/the

>> > knee problem and w/foot drop.

>> >

>> >

>>

>>

>>

>>

>>

[Guest guest]

> Hi Jane i think they make a Prosthetic (sp) Device for that? GEO

>>

>> I am having a problem with my right knee giving in when I stand.

> Does any one else have this? It has not done this before. built

> me a rail to hold to and stand but he has to hold my knee back for me

> to stand.

>>

>>

>> Jane Anne

>>

>>

[Guest guest]

Hi ,

Thanks for asking! I put what information we currently have on a webpage:

_http://sp-foundation.org/TW06/location.htm_

(http://sp-foundation.org/TW06/location.htm)

Would love to meet you!

best,

Kathi

[Guest guest]

I think waiting till Summer would be the better option. You'll need

more than a week to get to feeling well enough to deal w/ a class full

of 5th graders. I have a 5th grader at home and it was all I could do

to deal w/ her for 1 weekend 10 days after surgery. LOL! She spends

summers w/ her dad.

W

380/264/160

Bdrcolliez@... wrote:

>

> I am trying to decide when to schedule my surgery. I am a 5th grade

> teacher. The last day before Christmas will be Friday, 12/22. I am sure

that they

> will not do surgery on Monday (Christmas) so Tuesday 12/26 would probably be

> the earliest I could have it done. My first day back at work will be 1/4 and

> I would only have a week between surgery and going back to work. Is this a

> good idea? My other option will be to wait until school is out and have it

> done the first part of June. That way I would have a couple of months before

> I went back to work. I have waited this long, I guess a few more months

> won't make much of a difference.

>

> Joan

>

[Guest guest]

Definitely wait til summer. You will NOT feel like

going back to a bunch of 5th graders in only a week...

plus with all the hussle and busstle around the

holiday season.

Best of Luck,

Audrey in pA

________________________________________________________________________________\

____

Want to start your own business?

Learn how on Yahoo! Small Business.

http://smallbusiness.yahoo.com/r-index

[Guest guest]

I went back to work after 2 weeks, but I work in an office with no stairs to

climb and a desk to sit at most of the day. I'm not sure I was ready after 1

week to go back to work. I was still getting used to the new tummy, way of

eating and resting a lot.

Sue

---- Bdrcolliez@... wrote:

=============

I am trying to decide when to schedule my surgery. I am a 5th grade

teacher. The last day before Christmas will be Friday, 12/22. I am sure that

they

will not do surgery on Monday (Christmas) so Tuesday 12/26 would probably be

the earliest I could have it done. My first day back at work will be 1/4 and

I would only have a week between surgery and going back to work. Is this a

good idea? My other option will be to wait until school is out and have it

done the first part of June. That way I would have a couple of months before

I went back to work. I have waited this long, I guess a few more months

won't make much of a difference.

Joan

[Guest guest]

I definitely agree here. My wife is a teacher and she would not think of it

if she were able to have the surgery right now. Most surgeons will tell you

that you need about six weeks to really recuperate and that is pretty

accurate given what I went through this summer.

Lin

Lhsh@...

American by birth,

Saved by the grace of God.

Re:Question

Definitely wait til summer. You will NOT feel like

going back to a bunch of 5th graders in only a week...

plus with all the hussle and busstle around the

holiday season.

Best of Luck,

Audrey in pA

__________________________________________________________

Want to start your own business?

Learn how on Yahoo! Small Business.

http://smallbusiness.yahoo.com/r-index

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[Guest guest]

Hey Joan,

I agree with , I think waiting til school is out is better. God

willing....everything will be fine, but your body may need more than a week to

heal enough to feel like going back to work. And I wouldn't want you to do to

much to soon. If for some reason there is a complication, you won't have to

worry about who is taking care of your class. Unless its an emergency that if

needs to be done asap, like you said you waited this long. Best of Luck. Sherry

Woodard alittleisenough@...> wrote:

I think waiting till Summer would be the better option. You'll need

more than a week to get to feeling well enough to deal w/ a class full

of 5th graders. I have a 5th grader at home and it was all I could do

to deal w/ her for 1 weekend 10 days after surgery. LOL! She spends

summers w/ her dad.

W

380/264/160

Bdrcolliez@... wrote:

>

> I am trying to decide when to schedule my surgery. I am a 5th grade

> teacher. The last day before Christmas will be Friday, 12/22. I am sure that

they

> will not do surgery on Monday (Christmas) so Tuesday 12/26 would probably be

> the earliest I could have it done. My first day back at work will be 1/4 and

> I would only have a week between surgery and going back to work. Is this a

> good idea? My other option will be to wait until school is out and have it

> done the first part of June. That way I would have a couple of months before

> I went back to work. I have waited this long, I guess a few more months

> won't make much of a difference.

>

> Joan

>

Sherry

---------------------------------

Any questions? Get answers on any topic at Yahoo! Answers. Try it now.

[Guest guest]

My doctor actually brought up wls as an idea to me back in early/mid

2004. I told her I had a year of graduate school left and didn't want

to disrupt that. Looking back I could have easily done this between

semesters given two weeks. That might not work for everyone. Also,

looking back, I always think my masters were easier than the

bachelors I went after in many respects. Both my masters were

conveyed to me with highest honors (4.0 GPA) while working full time

over 3.5 years.

I guess, if I was told by my future self that it was no problem back

in 2004 I probably still would have waited just because of the CHANCE

of complication or 4+ week of recovery. There's no shame in waiting

to get your life in order for this surgery. It's a BIG change(s).

Do I regret waiting or wish I could have done it in 2004? Hell I wish

I could have done it in 1994! Do I dwell on that and shed a tear over

the years lost, heck no. That's severely defeatiest. I'm about

getting healthy and staying healthy.

Short recommendation I would wait.

Good luck with your decisions and surgery!

Mike in GR

> >

> > I am trying to decide when to schedule my surgery. I am a 5th

grade

> > teacher. The last day before Christmas will be Friday, 12/22. I

am sure that they

> > will not do surgery on Monday (Christmas) so Tuesday 12/26 would

probably be

> > the earliest I could have it done. My first day back at work will

be 1/4 and

> > I would only have a week between surgery and going back to work.

Is this a

> > good idea? My other option will be to wait until school is out

and have it

> > done the first part of June. That way I would have a couple of

months before

> > I went back to work. I have waited this long, I guess a few more

months

> > won't make much of a difference.

> >

> > Joan

> >

>

>

>

>

>

>

> Sherry

>

> ---------------------------------

> Any questions? Get answers on any topic at Yahoo! Answers. Try it

now.

>

>