Re: New stuff. =( (Tingling and Vibrating Hands)

[Guest guest]

,

Hi! You've described perfectly what I've been complaining about for months. My

hands (and occasionally my feet) tingle constantly like a light pins and needles

and at times escalating into a sort of hurting numbness (I know that doesn't

make sense, but I don't know how else to describe it). I'm always complaining

that I feel like my hands are sitting on something that's vibrating.

I've been to several neurologists and they keep telling me they're not finding

anything...which is hugely frustrating since I know what I'm feeling all the

time. None of my doctors have confirmed it, but I think it must be a PSC thing.

I never had it before PSC and it's become a near-constant irritation. In fact,

I can't even remember the last time I wasn't aware of my hands. I wonder how we

get the doctors to consider the tingling a symptom. Do we just all have to

report it and wait until the doctors catch up and talk to each other about it?

I feel like so much of what we go through must be PSC related and I'm forever

trying to convince my docs of it!

Just thought I'd let you know you're not alone!

Sandi in VA

> PLEASE tell me that this numbness and pain crap is just

> another PSC

> thing. Anyone have similar stuff????

>

>