Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Well interestingly enough, my 10 yr son has Remicade infusions every 6 weeks. His liver function tests have improved, he has more energy then ever, UC is finally in remission and he does not seem to get the flu bugs everyone else at school does. For at least the last several months because of Remicade, he appears better then he has been for 1 1/2 years. However, I am worried about the risk of Lymphoma. Any info on Lymphoma or warning signs. I know it has been noted in Remicade patients but mostly older ones w/Crohns versus younger ones w/UC.. Any info?. Stevie Lynn Gedgaudas-OStos sgedgaud@... " " " " Sent by: 03/19/2008 12:07 AM Please respond to To cc Subject Infliximab and PSC Hommes DW, Erkelens W, Ponsioen C, Stokkers P, Rauws E, van der Spek M, Kate FT, van Deventer SJ 2008 A Double-blind, Placebo-controlled, Randomized Study of Infliximab in Primary Sclerosing Cholangitis. J. Clin. Gastroenterol. Mar 13 [Epub ahead of print] http://www.ncbi.nlm.nih.gov/pubmed/18344886 " CONCLUSIONS: Study findings failed to demonstrate efficacy of infliximab in this small group of patients with established primary sclerosing cholangitis. " This is a pity ... I was hoping that infliximab (Remicade) might provide some benefits for PSCers. Dave (father of (22); PSC 07/03; UC 08/03) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 I have been on Remicade infusions for 6 or 7 months and feel FANTASTIC! No Crohns...no biliary pain...improved complexion and overall skin condition (no longer sensitive to soaps etc..)...less inflammation regarding my arthritis (hips, back), no mouth sores.. and this is why I have been absent from the group for a few months.. Its spring in Californias central valley..California poppies in full bloom...orchards in bloom...breathtaking! Andi PSC/Crohns/Osteo-Arthritis hips and back 01/02, Modesto, California > > > Well interestingly enough, my 10 yr son has Remicade infusions every 6 > weeks. His liver function tests have improved, he has more energy then > ever, UC is finally in remission and he does not seem to get the flu bugs > everyone else at school does. For at least the last several months because > of Remicade, he appears better then he has been for 1 1/2 years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 My son has been on remicade since May 2005. His UC is in remission - his PSC has a mind of it's own. At present his LFT's are good but I put that down to the urso and fish oils not remi.2007 was different - a bad PSC year when the GI didnt recognise that high doses of Urso were good and I hadnt discovered the wonders of fish oil! , mother to Dan 19, UC/PSC Quote Link to comment Share on other sites More sharing options...
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