long story from New Member in NC

[Guest guest]

hello, I'm a 39yr Mom & wife. For almost 2 yrs I was told I had RA and was

treated in depth for it with NO relief. As a matter of fact I got steadily

worse! SO I moved my family 800 miles to NC to get better care for my " RA " since

my Dr. had exhausted all options we decided to go to " The City of Medicine " aka:

Chapel Hill, NC, where after waiting 5 LONG painful months for an appointment

date, I was diagnosed with Fibromyalgia! No wonder all those RA Meds did NO

good!! And why had 2 seasoned RA Dr's misdiagnosed me?!?! Almost everyone from

my husband's side of the family lives here in also, and 90% of the women have

RA. So I would also finally get the moral support I so desperately needed and

was NOT getting from my husband. How could I, he has NO clue what this is like!

They do. Finally a sympathetic ear! Well we hardly ever get to visit with any of

them as I imagined. Then I was re-diagnosed. So, since I had been in other Yahoo

groups before with much sucess I knew right

where to go to chat with others in my painful shoes. I can no longer work and

am fighting for Disability and was sure I could find others who have walked my

path and offer assurance and advice. I am on Lyrica, I was on if from when I

" had " RA. They just raised my dose from 50mg to 75mg at bed time. It makes me SO

tired....and she wants to tripple it by have me take it 3X a day! UGH!! I'll be

in a coma-like state all day! Is iLyrica supposed to only help with the physical

symptons? Like the pain & tingling? What about my bladder & memory problems??

And all the others? I am also on pain medication which as you likely know

doesn't do a whole lot. They also had me on an anti-depressant but after 3 weeks

I didn't like the side effects and stopped it. I'll be going on another though

at my next appt. Well. thanks for listening to my story. I look forward to all

of your advice and shoulders to gently lean on. ~TINA~

[Guest guest]

Hi Tina,

I'm glad you found us..it's a great group for support, answers and just to vent

with!!

Hugs,

/Mi

long story from New Member in NC

hello, I'm a 39yr Mom & wife. For almost 2 yrs I was told I had RA and was

treated in depth for it with NO relief. As a matter of fact I got steadily

worse! SO I moved my family 800 miles to NC to get better care for my " RA " since

my Dr. had exhausted all options we decided to go to " The City of Medicine " aka:

Chapel Hill, NC, where after waiting 5 LONG painful months for an appointment

date, I was diagnosed with Fibromyalgia! No wonder all those RA Meds did NO

good!! And why had 2 seasoned RA Dr's misdiagnosed me?!?! Almost everyone from

my husband's side of the family lives here in also, and 90% of the women have

RA. So I would also finally get the moral support I so desperately needed and

was NOT getting from my husband. How could I, he has NO clue what this is like!

They do. Finally a sympathetic ear! Well we hardly ever get to visit with any of

them as I imagined. Then I was re-diagnosed. So, since I had been in other Yahoo

groups before with much sucess I knew right

where to go to chat with others in my painful shoes. I can no longer work and

am fighting for Disability and was sure I could find others who have walked my

path and offer assurance and advice. I am on Lyrica, I was on if from when I

" had " RA. They just raised my dose from 50mg to 75mg at bed time. It makes me SO

tired....and she wants to tripple it by have me take it 3X a day! UGH!! I'll be

in a coma-like state all day! Is iLyrica supposed to only help with the physical

symptons? Like the pain & tingling? What about my bladder & memory problems??

And all the others? I am also on pain medication which as you likely know

doesn't do a whole lot. They also had me on an anti-depressant but after 3 weeks

I didn't like the side effects and stopped it. I'll be going on another though

at my next appt. Well. thanks for listening to my story. I look forward to all

of your advice and shoulders to gently lean on. ~TINA~

[Guest guest]

Welcome Tina. We will understand you. I must say that Lyrica does not help

everyone. BUT so far it has helped my alot. I have only been on it for a week.

I hope they can find something to bring you relief. Is it possible you have RA

and fibromyalgia? Just asking, because somehow these things go hand in hand for

some people.

So glad you are here,

Debra V.

Andersen Lander2004@...> wrote:

Hi Tina,

I'm glad you found us..it's a great group for support, answers and just to vent

with!!

Hugs,

/Mi

long story from New Member in NC

hello, I'm a 39yr Mom & wife. For almost 2 yrs I was told I had RA and was

treated in depth for it with NO relief. As a matter of fact I got steadily

worse! SO I moved my family 800 miles to NC to get better care for my " RA " since

my Dr. had exhausted all options we decided to go to " The City of Medicine " aka:

Chapel Hill, NC, where after waiting 5 LONG painful months for an appointment

date, I was diagnosed with Fibromyalgia! No wonder all those RA Meds did NO

good!! And why had 2 seasoned RA Dr's misdiagnosed me?!?! Almost everyone from

my husband's side of the family lives here in also, and 90% of the women have

RA. So I would also finally get the moral support I so desperately needed and

was NOT getting from my husband. How could I, he has NO clue what this is like!

They do. Finally a sympathetic ear! Well we hardly ever get to visit with any of

them as I imagined. Then I was re-diagnosed. So, since I had been in other Yahoo

groups before with much sucess I knew right

where to go to chat with others in my painful shoes. I can no longer work and am

fighting for Disability and was sure I could find others who have walked my path

and offer assurance and advice. I am on Lyrica, I was on if from when I " had "

RA. They just raised my dose from 50mg to 75mg at bed time. It makes me SO

tired....and she wants to tripple it by have me take it 3X a day! UGH!! I'll be

in a coma-like state all day! Is iLyrica supposed to only help with the physical

symptons? Like the pain & tingling? What about my bladder & memory problems??

And all the others? I am also on pain medication which as you likely know

doesn't do a whole lot. They also had me on an anti-depressant but after 3 weeks

I didn't like the side effects and stopped it. I'll be going on another though

at my next appt. Well. thanks for listening to my story. I look forward to all

of your advice and shoulders to gently lean on. ~TINA~

[Guest guest]

Hi Tina and welcome - I've been diagnosed for 10 years now, but believe I've had

FM since childhood. I'm going to get tested for RA next week as I am having

some pretty bad pain in my knuckles, and RA does run in our family.

The side effects from Lyrica are supposed to go away, but you may be someone who

is very sensitive to meds and cannot handle it. What anti-depressant were you

on? I take Cymbalta. What pain meds have you been given? I use

tramadol(Ultram) and Tylenol and they work for me. Many others need narcotics

to get by.

Your memory problems may fluctuate especially as many meds can make it worse

until our body adjusts. Some people use meds for ADD to help with the fibro

fog.

As for your bladder problems, is it just irritable bladder? Or something more

serious that has its own diagnosis? You might want to see a specialist about

that.

HTH.

Jeanne in WI

hello, I'm a 39yr Mom & wife. For almost 2 yrs I was told I had RA and was

treated in depth for it with NO relief. As a matter of fact I got steadily

worse! SO I moved my family 800 miles to NC to get better care for my " RA " since

my Dr. had exhausted all options we decided to go to " The City of Medicine " aka:

Chapel Hill, NC, where after waiting 5 LONG painful months for an appointment

date, I was diagnosed with Fibromyalgia! No wonder all those RA Meds did NO

good!! And why had 2 seasoned RA Dr's misdiagnosed me?!?! Almost everyone from

my husband's side of the family lives here in also, and 90% of the women have

RA. So I would also finally get the moral support I so desperately needed and

was NOT getting from my husband. How could I, he has NO clue what this is like!

They do. Finally a sympathetic ear! Well we hardly ever get to visit with any of

them as I imagined. Then I was re-diagnosed. So, since I had been in other Yahoo

groups before with much sucess I knew right where to go to chat with others in

my painful shoes. I can no longer work and am fighting for Disability and was

sure I could find others who have walked my path and offer assurance and advice.

I am on Lyrica, I was on if from when I " had " RA. They just raised my dose from

50mg to 75mg at bed time. It makes me SO tired....and she wants to tripple it by

have me take it 3X a day! UGH!! I'll be in a coma-like state all day! Is iLyrica

supposed to only help with the physical symptons? Like the pain & tingling? What

about my bladder & memory problems?? And all the others? I am also on pain

medication which as you likely know doesn't do a whole lot. They also had me on

an anti-depressant but after 3 weeks I didn't like the side effects and stopped

it. I'll be going on another though at my next appt. Well. thanks for listening

to my story. I look forward to all of your advice and shoulders to gently lean

on. ~TINA~