New here- overwhelmed- been sick my whole life

[Guest guest]

Just wanted to let yu know i am out here and appreciate this site. I am

feeling very sick today- wearing dark sunglasses in the house. I tried

to figure out when it all started. This week I feel like i did during

the months after i had mumps and meningitis at age 12. Last week I

had dark circles under my eyes just like in my school photo when I was 9

and in some of my baby pictures (allergies?) I have allways had a hard

time falling asleep and a hard time waking up (even if I sleep 10

hours)- I remember my parents saying I must be the only child on earth

who had to be dragged out of bed on christmas morning whining " just 10

more minutes,please.' -it was a running gag and became a favorite

family story. Before that I had early childhood malnutrition and

rickets. Very small and not much hair,one photo shows me eating snow

(Iwas hungry). My parents dissagree about my age. Dad says Iwas born a

year earlier than mom says and it's hard to give either one of them the

benefit of the doubt. As soon as I could speak I complained of head

aches At age two I had a severe strain of influenza. At age 8 I had

peculair illness the lasted (acute portion) 24hrs, included

hallucinations, seizures high bodytemp - fascinated the med school as a

handfull of oter kids had the same thing. So they studied us all for a

few months In my mid twentys I was diagnosed with Hashimoto's (auto

immune) thyroid disorder. Made me verry ill at the time but now i just

take a thyroid pill every day. at diagnosis the dr said my bloodwork was

the most extreme he'd ever seen and that I must have been on low thyroid

function for years- amazd I was able to walk into the office. A few

years ago i was on a psych med called seroquel (a 'cousin drug' to

zyprexa) and developed somethng called metabolic syndrome. most of the

symptoms of that are gone now but i still have high cholesterol. And a

lot of belly fat; dr blamed it on the 'stress hormone' cortisol and

said that was part of the metobolic syndrome. I am not yet diagnosed

with Fibromyalgia - allthough my dr and everyone else I meet say my

current condition meets all requirments for diagnossis. We ust wait for

the right specialist to put a name to my sufferring. My illness and

inability to do basic household tasks puts a load on my partner,and she

already has her own load to carry and does worry about me so. Today the

only painmeds I can take are tylenol and aspirin. I take lithium and

mostly a lot of drugs could kill me if they are combined with lithium so

i have to be very carefull. I tried tramadol/ultram and it gave me bad

head ache and severe nausea. All the drs I see are reluctant to

prescribemea narcotic. i have no substance abuse history, but I live in

a town with a thriving street market for narcotics. hmm, i could use

some extra cash! just kidding. Oh bless me I have been typing for ever.

I hope this is an okay Hello.Wenzdai

[Guest guest]

What a horrible experience you have had with life. It is truly heartbreaking.

Why were you starved as a child? Were you adopted by your parents after being

taken away from the natural parents? How horrible to have started life with

that kind of problem.

And the host of other health issues beside the possibility of fibro. Hugs to

you.

Write all you want here. This is a very understanding group.

Debra V.

wenzdai wenzdai@...> wrote:

Just wanted to let yu know i am out here and appreciate this site. I

am

feeling very sick today- wearing dark sunglasses in the house. I tried

to figure out when it all started. This week I feel like i did during

the months after i had mumps and meningitis at age 12. Last week I

had dark circles under my eyes just like in my school photo when I was 9

and in some of my baby pictures (allergies?) I have allways had a hard

time falling asleep and a hard time waking up (even if I sleep 10

hours)- I remember my parents saying I must be the only child on earth

who had to be dragged out of bed on christmas morning whining " just 10

more minutes,please.' -it was a running gag and became a favorite

family story. Before that I had early childhood malnutrition and

rickets. Very small and not much hair,one photo shows me eating snow

(Iwas hungry). My parents dissagree about my age. Dad says Iwas born a

year earlier than mom says and it's hard to give either one of them the

benefit of the doubt. As soon as I could speak I complained of head

aches At age two I had a severe strain of influenza. At age 8 I had

peculair illness the lasted (acute portion) 24hrs, included

hallucinations, seizures high bodytemp - fascinated the med school as a

handfull of oter kids had the same thing. So they studied us all for a

few months In my mid twentys I was diagnosed with Hashimoto's (auto

immune) thyroid disorder. Made me verry ill at the time but now i just

take a thyroid pill every day. at diagnosis the dr said my bloodwork was

the most extreme he'd ever seen and that I must have been on low thyroid

function for years- amazd I was able to walk into the office. A few

years ago i was on a psych med called seroquel (a 'cousin drug' to

zyprexa) and developed somethng called metabolic syndrome. most of the

symptoms of that are gone now but i still have high cholesterol. And a

lot of belly fat; dr blamed it on the 'stress hormone' cortisol and

said that was part of the metobolic syndrome. I am not yet diagnosed

with Fibromyalgia - allthough my dr and everyone else I meet say my

current condition meets all requirments for diagnossis. We ust wait for

the right specialist to put a name to my sufferring. My illness and

inability to do basic household tasks puts a load on my partner,and she

already has her own load to carry and does worry about me so. Today the

only painmeds I can take are tylenol and aspirin. I take lithium and

mostly a lot of drugs could kill me if they are combined with lithium so

i have to be very carefull. I tried tramadol/ultram and it gave me bad

head ache and severe nausea. All the drs I see are reluctant to

prescribemea narcotic. i have no substance abuse history, but I live in

a town with a thriving street market for narcotics. hmm, i could use

some extra cash! just kidding. Oh bless me I have been typing for ever.

I hope this is an okay Hello.Wenzdai

---------------------------------

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[Guest guest]

wenzdai,

I also had been a sickly sort of child. I spent my entire childhood

sleeping. I can seriously relate to what you are saying about your

thyroid. I just had the usual childhood illnesses, but as an adult

was in a serious auto accident which has left me with a closed head

injury, herniated disk in my spine & neck, neuralgia, lower, upper

and middle back problems as well as partial paralysis in the left

side of my body. It was quite by accident they FINALLY discovered my

thyroid was full of nodules.....hundreds of x-rays, MRI's and CT

scans of my back, neck & brain. The first endocrinologist just blew

all this off and gave me levoxyl for the low thyroid problem. I spent

the next four years feeling like $h!t. Having been diagnosed with FM

everything was passed off as just that...a bad flare up. I now have a

new endocrinologist who took the time to do a full make up of blood

test, ultrasound of the thyroid and another biopsy. So far I have the

blood test results back. I am seriously low on Vitamin-D, B12, Iron

as well as my thyroid meds had to be tripled and he discovered my

adrenal gland is barely producing cortisol which may be related to my

pituitary gland not functioning. Now that I am on 125mcg of levoxyl I

actually feel some what human again....my body still hurts and I am

on 8 other Rx's for the FM and accident damage, but I actually

haven't fallen asleep 10 minuets after I get out of bed, that is when

I can get out of bed.

I have learned you cannot just take one doctors word anymore. I

begged the other doctor to look at my case more seriously and he

would do only the minimal. They keep telling us there is no absolute

medical condition that sets this off it just happens, but as I read

all of your post I see there are so many common factors between all

of us.

I so know from what the new Doc told me is it is serious when your

adrenal glands are not working properly and these hormones are vital

to life it's self. I hope there is light at the end of this tunnel

for me.....I am so tired of being sick.

I thank god every day that I have an excellent pain management doctor!

Teri,

form MI

> Just wanted to let yu know i am out here and appreciate

this site. I am

> feeling very sick today- wearing dark sunglasses in the house. I

tried

> to figure out when it all started. This week I feel like i did

during

> the months after i had mumps and meningitis at age 12. Last week I

> had dark circles under my eyes just like in my school photo when I

was 9

> and in some of my baby pictures (allergies?) I have allways had a

hard

> time falling asleep and a hard time waking up (even if I sleep 10

> hours)- I remember my parents saying I must be the only child on

earth

> who had to be dragged out of bed on christmas morning whining " just

10

> more minutes,please.' -it was a running gag and became a favorite

> family story. Before that I had early childhood malnutrition and

> rickets. Very small and not much hair,one photo shows me eating snow

> (Iwas hungry). My parents dissagree about my age. Dad says Iwas

born a

> year earlier than mom says and it's hard to give either one of them

the

> benefit of the doubt. As soon as I could speak I complained of head

> aches At age two I had a severe strain of influenza. At age 8 I had

> peculair illness the lasted (acute portion) 24hrs, included

> hallucinations, seizures high bodytemp - fascinated the med school

as a

> handfull of oter kids had the same thing. So they studied us all

for a

> few months In my mid twentys I was diagnosed with Hashimoto's (auto

> immune) thyroid disorder. Made me verry ill at the time but now i

just

> take a thyroid pill every day. at diagnosis the dr said my

bloodwork was

> the most extreme he'd ever seen and that I must have been on low

thyroid

> function for years- amazd I was able to walk into the office. A few

> years ago i was on a psych med called seroquel (a 'cousin drug' to

> zyprexa) and developed somethng called metabolic syndrome. most of

the

> symptoms of that are gone now but i still have high cholesterol.

And a

> lot of belly fat; dr blamed it on the 'stress hormone' cortisol and

> said that was part of the metobolic syndrome. I am not yet diagnosed

> with Fibromyalgia - allthough my dr and everyone else I meet say my

> current condition meets all requirments for diagnossis. We ust wait

for

> the right specialist to put a name to my sufferring. My illness and

> inability to do basic household tasks puts a load on my partner,and

she

> already has her own load to carry and does worry about me so. Today

the

> only painmeds I can take are tylenol and aspirin. I take lithium and

> mostly a lot of drugs could kill me if they are combined with

lithium so

> i have to be very carefull. I tried tramadol/ultram and it gave me

bad

> head ache and severe nausea. All the drs I see are reluctant to

> prescribemea narcotic. i have no substance abuse history, but I

live in

> a town with a thriving street market for narcotics. hmm, i could use

> some extra cash! just kidding. Oh bless me I have been typing for

ever.

> I hope this is an okay Hello.Wenzdai

>

>

>

>

>

>

> ---------------------------------

> You rock. That's why Blockbuster's offering you one month of

Blockbuster Total Access, No Cost.

>

>

[Guest guest]

Teri-

Such a Trauma- the accident- to discover you are hypothroid. I think thyroid

testing

should be routine for all physical exams, just like a complete blood count or

something.

We go all out on vaccinations but don't take the time to look at the

bloodchemistry which

can help so much with identifying medicalconditions. At least now if one checks

into a

psych hospital suicidaly deprssed the first ting they do is check for low

thyroid. Do be

agressive about your thyroid monitoring. Most docs think once a year is okay,but

with

complicating factors- biological or multi-med- more ofen is necessary. I get

mine done 2

or3 times a year; more if I can'tkeep a steady thyroid level or am having med

adjustments.

Peace, Wendai

> > Just wanted to let yu know i am out here and appreciate

> this site. I am

> > feeling very sick today- wearing dark sunglasses in the house. I

> tried

> > to figure out when it all started. This week I feel like i did

> during

> > the months after i had mumps and meningitis at age 12. Last week I

> > had dark circles under my eyes just like in my school photo when I

> was 9

> > and in some of my baby pictures (allergies?) I have allways had a

> hard

> > time falling asleep and a hard time waking up (even if I sleep 10

> > hours)- I remember my parents saying I must be the only child on

> earth

> > who had to be dragged out of bed on christmas morning whining " just

> 10

> > more minutes,please.' -it was a running gag and became a favorite

> > family story. Before that I had early childhood malnutrition and

> > rickets. Very small and not much hair,one photo shows me eating snow

> > (Iwas hungry). My parents dissagree about my age. Dad says Iwas

> born a

> > year earlier than mom says and it's hard to give either one of them

> the

> > benefit of the doubt. As soon as I could speak I complained of head

> > aches At age two I had a severe strain of influenza. At age 8 I had

> > peculair illness the lasted (acute portion) 24hrs, included

> > hallucinations, seizures high bodytemp - fascinated the med school

> as a

> > handfull of oter kids had the same thing. So they studied us all

> for a

> > few months In my mid twentys I was diagnosed with Hashimoto's (auto

> > immune) thyroid disorder. Made me verry ill at the time but now i

> just

> > take a thyroid pill every day. at diagnosis the dr said my

> bloodwork was

> > the most extreme he'd ever seen and that I must have been on low

> thyroid

> > function for years- amazd I was able to walk into the office. A few

> > years ago i was on a psych med called seroquel (a 'cousin drug' to

> > zyprexa) and developed somethng called metabolic syndrome. most of

> the

> > symptoms of that are gone now but i still have high cholesterol.

> And a

> > lot of belly fat; dr blamed it on the 'stress hormone' cortisol and

> > said that was part of the metobolic syndrome. I am not yet diagnosed

> > with Fibromyalgia - allthough my dr and everyone else I meet say my

> > current condition meets all requirments for diagnossis. We ust wait

> for

> > the right specialist to put a name to my sufferring. My illness and

> > inability to do basic household tasks puts a load on my partner,and

> she

> > already has her own load to carry and does worry about me so. Today

> the

> > only painmeds I can take are tylenol and aspirin. I take lithium and

> > mostly a lot of drugs could kill me if they are combined with

> lithium so

> > i have to be very carefull. I tried tramadol/ultram and it gave me

> bad

> > head ache and severe nausea. All the drs I see are reluctant to

> > prescribemea narcotic. i have no substance abuse history, but I

> live in

> > a town with a thriving street market for narcotics. hmm, i could use

> > some extra cash! just kidding. Oh bless me I have been typing for

> ever.

> > I hope this is an okay Hello.Wenzdai

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > You rock. That's why Blockbuster's offering you one month of

> Blockbuster Total Access, No Cost.

> >

> >