Re: Wenzdai

[Guest guest]

I am so sorry about all of your illnesses!! You have to find the right doctor to

help you. Are you seeing a Rheumy doctor? Or a Neuro doctor? Please seek out

help and do it soon!! I know you are in deep pain as well as emotional pain.

There is help out there so please don't give up. I will pray for you and you are

in the right place for support. Don't hesitate to ask questions or just

vent...we do it all here! God Bless You!!

Debra B

Gladewater, Texas

New here- overwhelmed- been sick my whole life

Just wanted to let yu know i am out here and appreciate this site. I am

feeling very sick today- wearing dark sunglasses in the house. I tried

to figure out when it all started. This week I feel like i did during

the months after i had mumps and meningitis at age 12. Last week I

had dark circles under my eyes just like in my school photo when I was 9

and in some of my baby pictures (allergies?) I have allways had a hard

time falling asleep and a hard time waking up (even if I sleep 10

hours)- I remember my parents saying I must be the only child on earth

who had to be dragged out of bed on christmas morning whining " just 10

more minutes,please. ' -it was a running gag and became a favorite

family story. Before that I had early childhood malnutrition and

rickets. Very small and not much hair,one photo shows me eating snow

(Iwas hungry). My parents dissagree about my age. Dad says Iwas born a

year earlier than mom says and it's hard to give either one of them the

benefit of the doubt. As soon as I could speak I complained of head

aches At age two I had a severe strain of influenza. At age 8 I had

peculair illness the lasted (acute portion) 24hrs, included

hallucinations, seizures high bodytemp - fascinated the med school as a

handfull of oter kids had the same thing. So they studied us all for a

few months In my mid twentys I was diagnosed with Hashimoto's (auto

immune) thyroid disorder. Made me verry ill at the time but now i just

take a thyroid pill every day. at diagnosis the dr said my bloodwork was

the most extreme he'd ever seen and that I must have been on low thyroid

function for years- amazd I was able to walk into the office. A few

years ago i was on a psych med called seroquel (a 'cousin drug' to

zyprexa) and developed somethng called metabolic syndrome. most of the

symptoms of that are gone now but i still have high cholesterol. And a

lot of belly fat; dr blamed it on the 'stress hormone' cortisol and

said that was part of the metobolic syndrome. I am not yet diagnosed

with Fibromyalgia - allthough my dr and everyone else I meet say my

current condition meets all requirments for diagnossis. We ust wait for

the right specialist to put a name to my sufferring. My illness and

inability to do basic household tasks puts a load on my partner,and she

already has her own load to carry and does worry about me so. Today the

only painmeds I can take are tylenol and aspirin. I take lithium and

mostly a lot of drugs could kill me if they are combined with lithium so

i have to be very carefull. I tried tramadol/ultram and it gave me bad

head ache and severe nausea. All the drs I see are reluctant to

prescribemea narcotic. i have no substance abuse history, but I live in

a town with a thriving street market for narcotics. hmm, i could use

some extra cash! just kidding. Oh bless me I have been typing for ever.

I hope this is an okay Hello.Wenzdai

________________________________________________________________________________\

____

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[Guest guest]

Re 18. Debra B. thanks from Wenzdai

I am not seeinga reumy or a neuro thats part of the problem. Saw a Neuro in the

past and

was diagnosed with attention deficit disorder and vertigo. I am changing my

primary care

doc because she agreed with me that it looks lie fibromyalgia and then she sent

me to a

pain specialist (who did not do any fibro work up, press on tender points, take

history etc)

then he told me to take no pain meds- not even asprin and that he would refer me

to a

Pain Psychologist. My regular psychologist ( I go for stuff in my head, you know

the mental

stuff) said I didn't need another psychologist, of course I should take tylenol

if they would

give me nothing else. Then she called the primary care dr office to express

concern for my

physical and mental state and requested that I get referred for 2nd opinion by

our towns

top rheumys. After the pain dr fiasco I apparently let a distress call atmy

psychiatrist's

answering machine. She called me back and was very reassuring. Told me i am not

dificult,

just comlicated; wanted to know how sick I really am and who is taking care of

me. My

partner takess me to critical appointments and stays with me. She also takes

care of the

housework,shopping,and laundromat. I do what I can. I feel very limted

>

> I am so sorry about all of your illnesses!! You have to find the right doctor

to help you.

Are you seeing a Rheumy doctor? Or a Neuro doctor? Please seek out help and do

it soon!!

I know you are in deep pain as well as emotional pain. There is help out there

so please

don't give up. I will pray for you and you are in the right place for support.

Don't hesitate

to ask questions or just vent...we do it all here! God Bless You!!

>

> Debra B

> Gladewater, Texas

>

>

> New here- overwhelmed- been sick my whole life

>

> Just wanted to let yu know i am out here and appreciate this site. I am

> feeling very sick today- wearing dark sunglasses in the house. I tried

> to figure out when it all started. This week I feel like i did during

> the months after i had mumps and meningitis at age 12. Last week I

> had dark circles under my eyes just like in my school photo when I was 9

> and in some of my baby pictures (allergies?) I have allways had a hard

> time falling asleep and a hard time waking up (even if I sleep 10

> hours)- I remember my parents saying I must be the only child on earth

> who had to be dragged out of bed on christmas morning whining " just 10

> more minutes,please. ' -it was a running gag and became a favorite

> family story. Before that I had early childhood malnutrition and

> rickets. Very small and not much hair,one photo shows me eating snow

> (Iwas hungry). My parents dissagree about my age. Dad says Iwas born a

> year earlier than mom says and it's hard to give either one of them the

> benefit of the doubt. As soon as I could speak I complained of head

> aches At age two I had a severe strain of influenza. At age 8 I had

> peculair illness the lasted (acute portion) 24hrs, included

> hallucinations, seizures high bodytemp - fascinated the med school as a

> handfull of oter kids had the same thing. So they studied us all for a

> few months In my mid twentys I was diagnosed with Hashimoto's (auto

> immune) thyroid disorder. Made me verry ill at the time but now i just

> take a thyroid pill every day. at diagnosis the dr said my bloodwork was

> the most extreme he'd ever seen and that I must have been on low thyroid

> function for years- amazd I was able to walk into the office. A few

> years ago i was on a psych med called seroquel (a 'cousin drug' to

> zyprexa) and developed somethng called metabolic syndrome. most of the

> symptoms of that are gone now but i still have high cholesterol. And a

> lot of belly fat; dr blamed it on the 'stress hormone' cortisol and

> said that was part of the metobolic syndrome. I am not yet diagnosed

> with Fibromyalgia - allthough my dr and everyone else I meet say my

> current condition meets all requirments for diagnossis. We ust wait for

> the right specialist to put a name to my sufferring. My illness and

> inability to do basic household tasks puts a load on my partner,and she

> already has her own load to carry and does worry about me so. Today the

> only painmeds I can take are tylenol and aspirin. I take lithium and

> mostly a lot of drugs could kill me if they are combined with lithium so

> i have to be very carefull. I tried tramadol/ultram and it gave me bad

> head ache and severe nausea. All the drs I see are reluctant to

> prescribemea narcotic. i have no substance abuse history, but I live in

> a town with a thriving street market for narcotics. hmm, i could use

> some extra cash! just kidding. Oh bless me I have been typing for ever.

> I hope this is an okay Hello.Wenzdai

>

>

>

>

>

>

________________________________________________________________________________\

____

> You rock. That's why Blockbuster's offering you one month of Blockbuster Total

Access,

No Cost.

> http://tc.deals.yahoo.com/tc/blockbuster/text5.com

>

>

[Guest guest]

Girl, I understand about the stuff in your head. I see a shrink too due to a

very traumatic experience last February. My best friend of 32 years committed

suicide. I had no clue this was coming either. He had just lost his partner in

Aug 06 from a brain anuisum (sp) and was just devasted. I would go to Houston at

least once a month to spend a couple of days with him. He always put up a good

front for me. He didn't show up for work (taught elementary science) for 2 days

and they called me. I tried to reach him and couldn't so I called his loft

manager and they went up and found him. I remember just screaming when I

recieved the call. We had been through so much together and I just couldn't

believe that he would do this not only to himself but to me. We loved each other

so much and always said that we were soul mates just in the wrong lifetime.

Anyway enought about that! You really need to get into see a good rheumy or

neuro! You have too!!!!! And go to

another pain management doctor. The first one I went to I refused to go see

after the first visit because he told me that I was on enough medication that I

WAS NOT in pain. He was such an A**! It's very imporant to have the right

doctors and I know this will happen for you. You are in my thoughts and prayers

as well as your partner. I know taking care of someone ontop of all the daily

stuff can really take a toll on a person. Take care and I know things will

eventually work out for you!!

Debra B

Gladewater, Texas

________________________________________________________________________________\

____

You rock. That's why Blockbuster's offering you one month of Blockbuster Total

Access, No Cost.

http://tc.deals.yahoo.com/tc/blockbuster/text5.com