Re: Lyrica--- Yep, it needs to be taken routinely/debra van

[Guest guest]

I to think like you debra. My question is to all this,

how much is people taking and how do they take it

during the day. My doctor wants me to take 300mg a day

but only twice a day and it kicks my but, however i

fell better at the higher doses. but also gained

weight during those weeks. so it was changed to 150 mg

75mg 2 x dailey. and the pain comes back. is any one

taking it more often though the day?

Diane

--- debra van ness ladybug75901@...> wrote:

> Yes, and Lyrica should be taken on a routine basis

> because if you just take it sometimes, it won't

> work. It has to build up blood levels to stay

> effective. It just happens to be effective for pain

> for some reason they don't really understand yet.

> It was originally just a new seizure med.

> Also, I would be leary of stopping it suddenly or

> decreasing the dose suddenly. It might cause

> seizures to withdraw it that quickly even if you are

> not prone to seizures.... due to the brain chemistry

> it works on.

> love and hugs,

> Debra V.

>

> Amy Brand amy@...> wrote:

> Yes....that is what it is, but for some

> reason it works for Fibromyalgia & even

> Diabetes...but

> not for seizures. ???

>

> Lyrica as I understand is something you have to keep

> constant in your system or it will not

> work.

>

> I can actually tell a difference on the Lyrica...I

> have been on it since Dec. I just got upped

> to 100mg 3x's per day.

>

>

> >

> > Hi, All.

> >

> > Regarding a lot of the posts about Lyrica, I think

> some of you are a bit confused on

> what it is and what it is used for.

> >

> > Lyrica is an Anti-seizure medication, NOT a " pain

> pill " . It's NOT type of pill that you

> take for times when you feel worse now and then or

> just during a " flare " .

> >

> > It has been found to relieve some of the symptom

> of Peripheral Neuropathic pain that

> some people with Fibro have.

> >

> > Here are a couple of sites at the Mayo that

> explain it.

> >

> > Lyrica:

> >

>

http://www.mayoclinic.com/health/drug-information/DR601627

> >

> > Peripheral neuropathy:

> >

>

http://www.mayoclinic.com/health/peripheral-neuropathy/DS00131

> >

> > Here's how it helped me:

> > I used to feel numbness and tingling in my hands

> and feet with occasional " electric

> shocks " that would send me through the roof. My skin

> used to feel like it was on FIRE,

> also. The Lyrica has helped relieve those symptoms

> for me. I have worked up to 300 mg.

> a day and that seems like the appropriate amount for

> ME. Every one is different.

> >

> > Anyway, I hope this clarifies the use of Lyrica

> for Fibro for those of you who are

> wondering.

> >

> > Take care.

> > J in East Northcentral Minnesota

> > http://sisypheanranch.blogspot.com/

> > 'Life isn't about how to survive the storm, but

> how to dance in the rain.'

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

>

>

>

> ---------------------------------

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> [Non-text portions of this message have been

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>

> ------------------------------------

>

> 1. While it is wonderful to share our experiences

> with everyone on the list as to what treatments do

> and don't work for us, pls always check with your

> dr. Some treatments are dangerous when given along

> with other meds as well as to certain health

> conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't

> matter what it is) pls don't be afraid to ask for

> help. It is the first step to trying to make that

> situation better.

>

> 3. To unsubscribe the e-mail is:

>

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member

> to be feeling bad at the same time when it comes to

> flares and b/c of that potentially take something

> another member says the wrong way. And that

> includes the things that one member may find funny

> (even if it's laughing at fibro itself) even though

> we who deal with illness whether one such as fibro

> or multiple illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you

> are having a bad day pls let us know so that we can

> do our best to offer our support.

>

> Have a nice day everyone.

>

[Guest guest]

I am now taking 100 mg 3x's per day. My doctor seems to think taking it 3x's

will keep my

body from going into a lull in between doses. He said the maximum amount you can

take per

day is 600mg

>

> I to think like you debra. My question is to all this,

> how much is people taking and how do they take it

> during the day. My doctor wants me to take 300mg a day

> but only twice a day and it kicks my but, however i

> fell better at the higher doses. but also gained

> weight during those weeks. so it was changed to 150 mg

> 75mg 2 x dailey. and the pain comes back. is any one

> taking it more often though the day?

>

> Diane

[Guest guest]

I believe that my doses are too far apart. Two times a day is not enough

anymore. I hope the doc increases it. I take it not always 12 hours between

doses because I start feeling very crummy late in the afternoon or early

evening. So by the time I wake up in the morning, it has been like 15 hours or

more since the last dose. It wears off I tell ya. I would be so happy if he

would increase it. I will put up with the weight gain if it allows me to live

life.

love and hugs,

Debra V.

Subject: Re: Lyrica--- Yep, it needs to be taken routinely/debra van

To: Fibromyalgia_Support_Group

Date: Thursday, April 17, 2008, 11:49 PM

I am now taking 100 mg 3x's per day. My doctor seems to think taking it 3x's

will keep my

body from going into a lull in between doses. He said the maximum amount you can

take per

day is 600mg

>

> I to think like you debra. My question is to all this,

> how much is people taking and how do they take it

> during the day. My doctor wants me to take 300mg a day

> but only twice a day and it kicks my but, however i

> fell better at the higher doses. but also gained

> weight during those weeks. so it was changed to 150 mg

> 75mg 2 x dailey. and the pain comes back. is any one

> taking it more often though the day?

>

> Diane

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[Guest guest]

I'm up to 400mg a day and I know he will up me to 500mg soon

hugs

Amy Brand amy@...> wrote:

I am now taking 100 mg 3x's per day. My doctor seems to think taking it 3x's

will keep my

body from going into a lull in between doses. He said the maximum amount you can

take per

day is 600mg

>

> I to think like you debra. My question is to all this,

> how much is people taking and how do they take it

> during the day. My doctor wants me to take 300mg a day

> but only twice a day and it kicks my but, however i

> fell better at the higher doses. but also gained

> weight during those weeks. so it was changed to 150 mg

> 75mg 2 x dailey. and the pain comes back. is any one

> taking it more often though the day?

>

> Diane

------------------------------------

1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr. Some

treatments are dangerous when given along with other meds as well as to certain

health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.