Disability

[Guest guest]

In a message dated 10/20/2002 4:13:16 AM Eastern Daylight Time,

chiari writes:

> Hi Everyone.

> Well, 5 month's of waiting, I got the letter from SSI, I

> was denied for disability. They sent me to 3 doctor's, plus got all

> record's from my doc's. SSI team came up with that I am depressed,

> and have anxiety. Hmmmmmm......gotta laugh, cause I wonder why. Yes,

> I plan on appealing it, but they seem to think I am fine. HA

> HA....Thats it for now.

> Trudi

my mother was denied and when she got a lawyer, they got it for her. She

could hardly function due to dizziness and if anyone had spent 10 mins with

her they would've been able to see she couldn't work, but I guess that

happens to alot of people---hang in there

shari in va

[Guest guest]

Hi Jill.

I've never worked and it only took me one try when i was 21 years old to get

approved for SSI benefits. But I was also a newly divorced mom of 2. Now I'm a

newly single mom of 3. Funny how things change. Anyhoo. The big key to getting

on SSI quick is a good dr. You have to have a dr who supports your decision to

get on disability first (Phylis definately needs a more compasionate dr.). The

dr should also know your financial status. I mean tell the man/woman if you have

to choose between drugs and food or gas. That was my saving grace getting

approved. I had a great dr who truley cared.She wrote numerous letters to the

board that decides the disability cases and I think that is what really helped.

I also went to vocational therapy. That is where they give you a bunch of tests

and write down every time you twitch, move or fart (I'm mostly serious). Then

the tech inputs all the data into a really nifty program that spits out the jobs

that you are

" qualified " for. My search came back with 0. I do know I was lucky and I've

never met anyone not in a wheelchair who got on SSI so quick. Then I fell into a

loophole and got into the Adult Children With Disabilities about 2 months before

i would have become inelegebile. I don't know it's kinda a been there. done

that. know some tricks kinda thing. With nay type of social sec. you have to

know how to manipulate the system, or they will walk on you. Unfortunately that

wonderful dr dosen't accepte Medicare or Medicaid. So now I have a medioceore dr

whom I'll probally be firing soon. I've learned that too. If your dr won't

listen. fire him there are plenty more. Sorry for the ramble. Hope to help.

Sharon.

new member

Hi everyone,

I am new to this group and was diagnosed with FMS 4 years ago.

However, the past 6 months have been the worst ever. My hips and

legs are in severe pain and anytime I hold my 11 month old nephew

(who is very tiny) my right arm ends up hurting severely for weeks.

I have also recently started having severe migraines that last up to

a week. It has not been fun. I also have 2 autistic boys and a

husband that is very unsupportive and not only unhelpful, but he

pretty much makes everything worse. My stress level is through the

roof. I went to see a new rheumatologist this week and he started

asking me about my childhood and my marriage and said I was depressed

and prescribed Trazidone. I asked about Lyrica and he pretty much

shook his head and said that only helps with the pain and wouldnt

prescrib it. He pretty much gave me nothing for the pain, just said

that if I get some sleep with the trazadone the pain will get

better. His resident suggested possibly water therapy but he shot

that down too saying try the trazadone first.

I was able to get a handicapp parking sticker, but can not apply for

disability. For the past 13 years I have been a stay at home mom,

doing odd jobs from home (in home daycare for most of the time and

selling avon). None of it comes close to helping with the bills

(especially with two autistic kids) but working outside the home is

impossible for me. The number one reason I am stuck in my marriage

is I have no way to support myself and the kids (even with support

from him).

I am mostly just looking for a supportive group to discuss and vent

with.

Phyllis

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