Re: Maybe we like short posts better?

April 21, 2008

Not only would I be yelling, but I'd probably be throwing things as well,

simply out of sheer frustration and anger. (Don't nobody mess with my

babies!) Honey, I understand, and I'm with you 110%....I am a carrier of CF,

have a first cousin that recently went through a double lung transplant

(successful I might add, so he is now CF free, although he will have to be

on meds the rest of his life to keep his body from rejecting his lungs, but

the docs say other than that, he should live a very long and very normal

life), lost an aunt and an uncle (both as children) of CF, and so when my

newborn had cyclic vomiting, bowel problems and difficulty breathing, I went

totally nutzo! We live in a po-dunk town (although it has the largest

hospital for 200 miles), so I loaded up and headed to Children's Hospital

where my little one was tested, and then retested. Turned out it was not CF

(PTL!!!! although is a carrier), and did have severe asthma along with

cyclic vomiting syndrome. Unfortunately CF is not a common thing they check

for, but with the number of carriers (I can name over 20 in our little

community alone), they should. My children have all been tested and they

know that whoever they decide to marry will have to be tested before they

decide to become pregnant.

Salmagundi Soul

> LETS HOLD OFF ON DOING A FULL WORK-UP AND TREAT IT AS ASTHMATIC

> BRONCHITIS.

> WE GIVE THE KID A RESCUE INHALER (AND MAYBE SOME ASTHMA MANAGEMENT DRUGS),

> SOME ANTIBIOTICSAND COUGH SYRUP. A STOOL SOFTER AND A FLEET ENEMA. SOME

> PEPTO FOR THE TUMMY ACHE. HOW LONG IS THE KID WITH CYSTIC FIBROSIS GOING

> TO

> LAST ON THIS REGIINE?

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