Re: Pain: Anyone else feel it come on like this?

[Guest guest]

Try a hot-hot-hot shower, let the spray hot the tender areas and

massage the heat in.

[Guest guest]

I know a lot of people are helped by hot showers and baths. I can't tolerate

them. For some reason, like a massage, even though it feels great while it is

going on, I hurt like Hell for about two days afterward.

I have to do luke warm showers.

I do a lot of relaxation exercises and try to take a nap. If I can take a

short nap it gets better.

Marti

Loest boltzero@...> wrote:

Try a hot-hot-hot shower, let the spray hot the tender areas and

massage the heat in.

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

I don't think my pain behaves the way you describe. Nevertheless, have you

tried using pain patches such as Salonpas or cremes like Aspercreme or

BioFreeze?

Have you ever used prescription Lidoderm patches? Also, does taking hot baths

help?

Jeanne in WI

Not like getting the Flu- not achey.

Not muscle spasms.

Not muscle tightness (like too much yardwork).

Feels like muscles are getting denser.

Feels like muscles are pulling together; turning inward; fibers rubbing

against one

another.

Pain will come next.

What helps? any suggestions other than pain meds?

I know this is physical and not psychlogical.

PEACE

Cassandra

[Guest guest]

I have that constantly. I describe it as though my muscles were rubber bands

that someone has twisted and twisted as tight as it will go. It is almost

like the muscles are shortening.

~~~~~

~~~~~~~~~~~~~

Your Avon Representative

Shop for all of your Avon needs at youravon.com/michellebyrd

http://michellebyrd.avonrepresentative.com/>

Reasonable shipping rates if you would

like your order shipped directly to you

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of wenzdai

Sent: Saturday, April 19, 2008 3:44 PM

To: Fibromyalgia_Support_Group

Subject: " Pain: Anyone else feel it come on like this? "

Not like getting the Flu- not achey.

Not muscle spasms.

Not muscle tightness (like too much yardwork).

Feels like muscles are getting denser.

Feels like muscles are pulling together; turning inward; fibers rubbing

against one

another.

Pain will come next.

What helps? any suggestions other than pain meds?

I know this is physical and not psychlogical.

PEACE

Cassandra

[Guest guest]

Hi ,

Yes, that is one of the sympotoms of this thing.

that's how I used to describe it to my husband Vince. it burns and stabs

through your muscles like a hot ice pick.

Sux Huh?

Does Flexeril work? Not really for me.

run2web@...> wrote:

I have that constantly. I describe it as though my muscles were rubber

bands

that someone has twisted and twisted as tight as it will go. It is almost

like the muscles are shortening.

~~~~~

~~~~~~~~~~~~~

Your Avon Representative

Shop for all of your Avon needs at youravon.com/michellebyrd

http://michellebyrd.avonrepresentative.com/>

Reasonable shipping rates if you would

like your order shipped directly to you

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of wenzdai

Sent: Saturday, April 19, 2008 3:44 PM

To: Fibromyalgia_Support_Group

Subject: " Pain: Anyone else feel it come on like this? "

Not like getting the Flu- not achey.

Not muscle spasms.

Not muscle tightness (like too much yardwork).

Feels like muscles are getting denser.

Feels like muscles are pulling together; turning inward; fibers rubbing

against one

another.

Pain will come next.

What helps? any suggestions other than pain meds?

I know this is physical and not psychlogical.

PEACE

Cassandra

[Guest guest]

Thanks ,

So far no one else has " got it " when I described it like I did below. Or maybe

it just got

missed. Drs look at me like I'm crazy if I describe it like that so I just tell

them 'it hurts'

and then they think I'm another crazy woman (which I am) " drugseeking " (which I'm

not)- I

mean I do want the drugs but only for the pain, not for 'fun'.

Cassandra

>

> I have that constantly. I describe it as though my muscles were rubber bands

> that someone has twisted and twisted as tight as it will go. It is almost

> like the muscles are shortening.

>

>

>

> ~~~~~

>

>

>

> ~~~~~~~~~~~~~

> Your Avon Representative

> Shop for all of your Avon needs at youravon.com/michellebyrd

> http://michellebyrd.avonrepresentative.com/>

> Reasonable shipping rates if you would

> like your order shipped directly to you

>

>

>

> _____

>

> From: Fibromyalgia_Support_Group

> [mailto:Fibromyalgia_Support_Group ] On Behalf Of wenzdai

> Sent: Saturday, April 19, 2008 3:44 PM

> To: Fibromyalgia_Support_Group

> Subject: " Pain: Anyone else feel it come on like this? "

>

>

>

> Not like getting the Flu- not achey.

>

> Not muscle spasms.

>

> Not muscle tightness (like too much yardwork).

>

> Feels like muscles are getting denser.

>

> Feels like muscles are pulling together; turning inward; fibers rubbing

> against one

> another.

>

> Pain will come next.

>

> What helps? any suggestions other than pain meds?

>

> I know this is physical and not psychlogical.

>

> PEACE

> Cassandra

>

>

>

>

>

>

[Guest guest]

I know exactly what you mean. I dont know how to describe it... bit I

understand it. For me, I cant say its exactly PAIN for me... as much

as its almost snewhat vague, but not. Its like extreme discomfort,

then gets worse as time goes on and becomes really painful...

But when you said " muscles getting denser " i understood what you were

talking about. Its going on with me right now. I just took pain meds

for it. I dont know what it is though, except that its part of fibro,

brcause Sharon (my fibro mentor.. a lady at church that has had it for

20 years and has helped me alot in the past) described it exactly the

same way.

Sometimes an epson salt bath thats super hot helps, sometimes not.

Sorry I cant be more help than.. I understand how you feel.

-Suzanne

>

> Not like getting the Flu- not achey.

>

> Not muscle spasms.

>

> Not muscle tightness (like too much yardwork).

>

> Feels like muscles are getting denser.

>

> Feels like muscles are pulling together; turning inward; fibers

rubbing against one

> another.

>

> Pain will come next.

>

> What helps? any suggestions other than pain meds?

>

> I know this is physical and not psychlogical.

>

> PEACE

> Cassandra

>

[Guest guest]

Hi Cassandra,

I do understand!!! It feels like my whole body is skrinking from the outside

in and I just want out!!! Very unpleasant tingling sensation and muscles all

knotted up and do what they want to. I am seeing neurologist tomorrow because

Friday night my arms and legs acted like I was a puppet and someone was pulling

my strings. Then, when I started to stand it was like the puppeteer cut the

strings!! Then it threw me into a massive anxiety/panic attack and I went to

ER.

Good luck hun and I hope you can get some help!!!

Hugs,

Annie

wenzdai wenzdai@...> wrote:

Thanks ,

So far no one else has " got it " when I described it like I did below. Or maybe

it just got

missed. Drs look at me like I'm crazy if I describe it like that so I just tell

them 'it hurts'

and then they think I'm another crazy woman (which I am) " drugseeking " (which I'm

not)- I

mean I do want the drugs but only for the pain, not for 'fun'.

Cassandra

>

> I have that constantly. I describe it as though my muscles were rubber bands

> that someone has twisted and twisted as tight as it will go. It is almost

> like the muscles are shortening.

>

>

>

> ~~~~~

>

>

>

> ~~~~~~~~~~~~~

> Your Avon Representative

> Shop for all of your Avon needs at youravon.com/michellebyrd

> http://michellebyrd.avonrepresentative.com/>

> Reasonable shipping rates if you would

> like your order shipped directly to you

>

>

>

> _____

>

> From: Fibromyalgia_Support_Group

> [mailto:Fibromyalgia_Support_Group ] On Behalf Of wenzdai

> Sent: Saturday, April 19, 2008 3:44 PM

> To: Fibromyalgia_Support_Group

> Subject: " Pain: Anyone else feel it come on like this? "

>

>

>

> Not like getting the Flu- not achey.

>

> Not muscle spasms.

>

> Not muscle tightness (like too much yardwork).

>

> Feels like muscles are getting denser.

>

> Feels like muscles are pulling together; turning inward; fibers rubbing

> against one

> another.

>

> Pain will come next.

>

> What helps? any suggestions other than pain meds?

>

> I know this is physical and not psychlogical.

>

> PEACE

> Cassandra

>

>

>

>

>

>

[Guest guest]

Wow... I thought I was the only one that did that... painicing about

the pain. I wonder how many of us do... im gonna ask.

--Suzanne

> >

> > I have that constantly. I describe it as though my muscles were

rubber bands

> > that someone has twisted and twisted as tight as it will go. It is

almost

> > like the muscles are shortening.

> >

> >

> >

> > ~~~~~

> >

> >

> >

> > ~~~~~~~~~~~~~

> > Your Avon Representative

> > Shop for all of your Avon needs at youravon.com/michellebyrd

> > http://michellebyrd.avonrepresentative.com/>

> > Reasonable shipping rates if you would

> > like your order shipped directly to you

> >

> >

> >

> > _____

> >

> > From: Fibromyalgia_Support_Group

> > [mailto:Fibromyalgia_Support_Group ] On Behalf Of

wenzdai

> > Sent: Saturday, April 19, 2008 3:44 PM

> > To: Fibromyalgia_Support_Group

> > Subject: " Pain: Anyone else feel it come on like this? "

> >

> >

> >

> > Not like getting the Flu- not achey.

> >

> > Not muscle spasms.

> >

> > Not muscle tightness (like too much yardwork).

> >

> > Feels like muscles are getting denser.

> >

> > Feels like muscles are pulling together; turning inward; fibers

rubbing

> > against one

> > another.

> >

> > Pain will come next.

> >

> > What helps? any suggestions other than pain meds?

> >

> > I know this is physical and not psychlogical.

> >

> > PEACE

> > Cassandra

> >

> >

> >

> >

> >

> >

[Guest guest]

>

> Wow... I thought I was the only one that did that... painicing about

> the pain. I wonder how many of us do... im gonna ask.

> --Suzanne

>

>

That's the roller coaster syndrome you get to the top of the first big

hill,...and here it comes!

[Guest guest]

I can't have the panic attacks - someone in my hh has to have a clear

head. The night that the pain was so excruciating was NOT due to my

fibro, although I'm sure it exacerbated it in the days to come, it was

due to renal insufficiency causing leg cramps which, after a few tests,

revealed that I had a blood clot! If I had panicked, no one would have

understood what I was talking about - I was so swollen from the extra

fluids that my skin started splitting at the ankles and the doctors

thought I was " scratching " from a bug bite (I wasn't).

Besides which, my DH, who is normally calm, cool and collected almost

to the point of being blunt, tends to panic, especially when his wife

says " honey, I think we better call 911; there's something wrong here "

as she is laying more than half-naked on the floor because that's where

she landed when she thought she was passing out.

So even when the pain comes on suddenly, or something weird happens, I

try to remain calm as possible because I have to be able to explain

what is going on, especially since its my body, you know? Did that make

sense? I haven't hit my caffeine stride yet.

Darlene

> >

> > Wow... I thought I was the only one that did that... painicing about

> > the pain. I wonder how many of us do... im gonna ask.

> > --Suzanne

> >

> >

> That's the roller coaster syndrome you get to the top of the first big

> hill,...and here it comes!

>

[Guest guest]

I haven't really found anything that helps. I keep hoping I can go to the

pain clinic and find something that will help

~~~~~

~~~~~~~~~~~~~

Your Avon Representative

Shop for all of your Avon needs at youravon.com/michellebyrd

http://michellebyrd.avonrepresentative.com/>

Reasonable shipping rates if you would

like your order shipped directly to you

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of Doreen

Pierce

Sent: Wednesday, April 30, 2008 12:55 PM

To: Fibromyalgia_Support_Group

Subject: RE: " Pain: Anyone else feel it come on like this? "

Hi ,

Yes, that is one of the sympotoms of this thing.

that's how I used to describe it to my husband Vince. it burns and stabs

through your muscles like a hot ice pick.

Sux Huh?

Does Flexeril work? Not really for me.

net> wrote:

I have that constantly. I describe it as though my muscles were rubber bands

that someone has twisted and twisted as tight as it will go. It is almost

like the muscles are shortening.

~~~~~

~~~~~~~~~~~~~

Your Avon Representative

Shop for all of your Avon needs at youravon.com/michellebyrd

http://michellebyrd http://michellebyrd.avonrepresentative.com/>

..avonrepresentative.com/>

Reasonable shipping rates if you would

like your order shipped directly to you

_____

From: Fibromyalgia_

Support_Group

[mailto:Fibromyalgia_

Support_Group ] On Behalf Of wenzdai

Sent: Saturday, April 19, 2008 3:44 PM

To: Fibromyalgia_

Support_Group

Subject: " Pain: Anyone else feel it come on like this? "

Not like getting the Flu- not achey.

Not muscle spasms.

Not muscle tightness (like too much yardwork).

Feels like muscles are getting denser.

Feels like muscles are pulling together; turning inward; fibers rubbing

against one

another.

Pain will come next.

What helps? any suggestions other than pain meds?

I know this is physical and not psychlogical.

PEACE

Cassandra

[Guest guest]

Drs. don't seem to understand. You might try massage therapy. I did that

once because someone gave me a free massage and it did feel better but it

needs to be more frequent than once in a while.

~~~~~

~~~~~~~~~~~~~

Your Avon Representative

Shop for all of your Avon needs at youravon.com/michellebyrd

http://michellebyrd.avonrepresentative.com/>

Reasonable shipping rates if you would

like your order shipped directly to you

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of wenzdai

Sent: Wednesday, April 30, 2008 5:17 PM

To: Fibromyalgia_Support_Group

Subject: Re: " Pain: Anyone else feel it come on like this? "

Thanks ,

So far no one else has " got it " when I described it like I did below. Or

maybe it just got

missed. Drs look at me like I'm crazy if I describe it like that so I just

tell them 'it hurts'

and then they think I'm another crazy woman (which I am) " drugseeking " (which

I'm not)- I

mean I do want the drugs but only for the pain, not for 'fun'.

Cassandra

>

> I have that constantly. I describe it as though my muscles were rubber

bands

> that someone has twisted and twisted as tight as it will go. It is almost

> like the muscles are shortening.

>

>

>

> ~~~~~

>

>

>

> ~~~~~~~~~~~~~

> Your Avon Representative

> Shop for all of your Avon needs at youravon.com/michellebyrd

> http://michellebyrd http://michellebyrd.avonrepresentative.com/>

..avonrepresentative.com/>

> Reasonable shipping rates if you would

> like your order shipped directly to you

>

>

>

> _____

>

> From: Fibromyalgia_

Support_Group

> [mailto:Fibromyalgia_

Support_Group ] On Behalf Of wenzdai

> Sent: Saturday, April 19, 2008 3:44 PM

> To: Fibromyalgia_

Support_Group

> Subject: " Pain: Anyone else feel it come on like this? "

>

>

>

> Not like getting the Flu- not achey.

>

> Not muscle spasms.

>

> Not muscle tightness (like too much yardwork).

>

> Feels like muscles are getting denser.

>

> Feels like muscles are pulling together; turning inward; fibers rubbing

> against one

> another.

>

> Pain will come next.

>

> What helps? any suggestions other than pain meds?

>

> I know this is physical and not psychlogical.

>

> PEACE

> Cassandra

>

>

>

>

>

>

[Guest guest]

I guess the first time one of my doctors prescribed valium was

because I was hyperventlating at work --- pain was sooo bad in my

sterum! I was not very happy when the doctor at the emergency room

where she told me to go as she had a meeting and I didn't have time

to get to her office. I took the script but did not get it filed

until she told me it was also a muscle relaxant!!! But it was also

the last time anyone stole my wallet while I was waiting for a bus

during the years I lived in Chicago! I was so oblivous of my

surroundings because of the pain! Now I take valium if I have pain

that might keep me awake. Of course, my shrink here insisted she be

in charge of that med!!! Oh, well, what ever way to get it.

And now I have to type up the list of meds I take so I can give it to

the eye doctor this afternoon.

I am now up to 3.75 in reading glasses!

> > >

> > > I have that constantly. I describe it as though my muscles were

> rubber bands

> > > that someone has twisted and twisted as tight as it will go. It

is

> almost

> > > like the muscles are shortening.

> > >

> > >

> > >

> > > ~~~~~

> > >

> > >

> > >

> > > ~~~~~~~~~~~~~

> > > Your Avon Representative

> > > Shop for all of your Avon needs at youravon.com/michellebyrd

> > > http://michellebyrd.avonrepresentative.com/>

> > > Reasonable shipping rates if you would

> > > like your order shipped directly to you

> > >

> > >

> > >

> > > _____

> > >

> > > From: Fibromyalgia_Support_Group

> > > [mailto:Fibromyalgia_Support_Group ] On Behalf Of

> wenzdai

> > > Sent: Saturday, April 19, 2008 3:44 PM

> > > To: Fibromyalgia_Support_Group

> > > Subject: " Pain: Anyone else feel it come on like this? "

> > >

> > >

> > >

> > > Not like getting the Flu- not achey.

> > >

> > > Not muscle spasms.

> > >

> > > Not muscle tightness (like too much yardwork).

> > >

> > > Feels like muscles are getting denser.

> > >

> > > Feels like muscles are pulling together; turning inward; fibers

> rubbing

> > > against one

> > > another.

> > >

> > > Pain will come next.

> > >

> > > What helps? any suggestions other than pain meds?

> > >

> > > I know this is physical and not psychlogical.

> > >

> > > PEACE

> > > Cassandra

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Oh, yeah! That is how it is. I feel like my chest is on fire and it

spreads out from the front to the back and finger tip to finger tip.

breathing hurts my head hurts, my eyes everything. My instant reaction

is to hold very still. I kind of look around slowly to see if anyone

can see what I feel.

This was one of the arguements I had with my son in law and my mom.

They don't think I'm in that great of pain. I don't act like I'm in

pain. So what does someone in pain look like? I asked them this. I said

i would do my best just tell me what it looks like. I told them to flop

on the floor or moan and cry only made it worse. What does being in

pain look like? If it could be messured like a thermomiter we would

blow the end off.

If the worst pain is a 10 and no pain is a 0 what would yours be. I

usually tell them about 8 or 9. Then they say " No I mean now that

you've had tylenol. " or what ever they gave out. They look like your

nuts when you tell them that is how you feel with those drugs. DUH!

Jan

>

> Wow... I thought I was the only one that did that... painicing about

> the pain. I wonder how many of us do... im gonna ask.

> --Suzanne

>

>

[Guest guest]

hi Cassandra, I am usually a lurker on the boards, but your post

sounded so familiar to me. I have FMS but it is a result of another

disease that I have. I'm 25 and have been living with this for the

last 6 years. Finally it got so bad in the past year I sought

help. It took me so long to find the best combination for my pain.

First I was just given an endless prescription for Lortab. Of

course that does nothing for the pain most of the time. Then I was

put on a pain patch, it was great for the pain, but it was terrible

for me. I gained weight and would sleep way too much. After being

on all of these medications I finally decided to stop taking

anything that is an opiate. I just cannot form an addiction to

something like that. It controls you whether you admit it or not. I

am glad you specified " besides pain meds " . The one thing that has

helped me is taking a Flexeril every night before bed. It puts you

in stage 4 sleep (that most of us aren't getting with FMS)and it

relaxes your body so your muscles can repair. It took about 2 weeks

for me to see a major difference, but boy was it major. I take that

and a Lexapro 10mg every night and it keeps me feeling way better

than I used to.

I hope you can find your combination of activities and medications

that will keep FMS in check. (((hugs)))