Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Awhile back when I working in the security industry, during the Suzane Summers " Thigh Master " reign. One of our dispatchers said she had been using hers for about a month, and could, " Pop a basket ball " . Every man in the room took a few steps back, that was a scary prospect. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Hey Neighbor! Not sure about the idea..I liked it..LOL I am now, as we are speaking, emailing CNN and looking for Gupta's email. He seems like he is really aware and conscious of others illnesses, pains, etc. So..(might ask him to join us here, for some real feedback). Hope your storms overnight was managable. Here..not so bad. The weather changes back and forth..is a danged killer tho. Aches, pains are abundant to say the least. Tired most of the days anyway, so I move slowly, but some how get what needs done, done. The rest..lol, can wait til hubby wants to help. I have to call my doctor on monday, to see about some kinda something for the harsh kinda pains that the lyrica doesn't take care of. It doesn't take care of some. Don't get me wrong..on a regular day..I can tolerate ( I do have a high tolerance for pain, so when I complain, I am seriously doing some major hurting.). Cursing doesn't help either. haha, I usually have something not so nice to say everytime I move. Praying..well..helps-at least to get my mind off my hurts. I get so tired of hurting tho. I think that is what bothers me the most-not one day goes by that I am not hurting..and..well..it gets on my nerves bad. This is most definitely a demon I would like to somehow cast back into hell!!!!!!! Hard to explain, but makes me just wanna scream, and keep screaming ...til it stops! Anyway..gonna stop with the rambling now. Thanks for the yahoo add. We shall chat long into the night, some nights..deal? - In Fibromyalgia_Support_Group , Annie G wrote: > > Hi !! > > First, howdy neighbor!! I live in Nashville, TN. Thanks for telling your story. I also like your idea. We just have to get our heads together (gently) and see what we can come up with. > > Hugs, > annie > > > magicaldream411 wrote: > Hi! I am a lurker here for the mostpart, but on this post, I have to > agree. > > A bit about me, then..my idea, if it is alright. > > I am a 44 year old woman, with syndrome X(pre-diabetes, metabolic > disorder). I have finally been diagnosed with FM by several doctors, > that finally listened to me. Others, wanted to treat me for pulled or > sprained muscles, five me flexiril(sp), and let me be done. As we all > know, that does not help or ease the pain and discomfort at all. I > have been on Cymbalta for years for depression/anxiety, and have been > on Lyrica with it for about three months now. 100mg 3 times a day, > and I suspect that will increase soon. > My kids are grown,and I married a wonderful man last year. 7-7-07. > Have been married before and finally found one that is decent to me, > and considerate. > > My pain, although it is all day everyday, I have to say..it really > gets worse when I try to lay down to rest. OMG--it feels as if my > muscles are twisting around every bone in my body, and shrinking to > boot. My face even hurts. Needless to say, I am awake quite late, as > I cannot rest thru it. Thinking that is what explains my being tired > all the time. And the foggy way my thinking is...but, both could just > be this damned beast that is taking away my livlihood. > > Now..the speaking out.. > I was reading, and thinking..and maybe, we should get to these major > personalities as a group. Hell, all of them..Larry King, Oprah..news > organizations..and..what about dear old Dr. Gupta on CNN? > Someone, that has the knowledge..and appropriate wording..should..I > think..write out a petition before awareness day. WE CAN ALL SIGN > IT-family and friends too..and then..email it to those places..and get > the word out. And we should make sure they all know..that we expect > more than a 30 sec. commercial for a drug manufacturer. We need to > get attention, and we should all have the respect of normal > individuals with lives to live even tho we have no cuts or bruises. > > Oh. I apologize for the swearing..but, sometimes, I just cannot > emphasize my communitive skills without a " bleep " here and there. I > by no means want to offend not one of you. > > Soft Hugs to ya all (from Knoxville, TN) > > > > > > > I agree we need to do it somehow.Who is willing to speak up? We will > need more than one to speak, as we all feel different, and we need to > get organize and thoughts and ideas pulled together in some kind of > format.We need a lot media attn; as well as the foundation to reach > out and help us.Della > > > >Reply (via web post) | Start a new topic > > Messages | Files | Photos | Links | Database | Polls | Calendar > 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. > > 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. > > 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe > > 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. > > 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. > > Have a nice day everyone. > > > Change settings via the Web (Yahoo! ID required) > Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional > Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe > > > Recent Activity > > 27 > New Members > > 12 > New Photos > > 3 > New Files > > Visit Your Group > Meditation and > Lovingkindness > A Yahoo! Group > to share and learn. > > Yahoo! Health > Heartburn or Worse > What symptoms > are most serious? > > All-Bran > Day 10 Club > on Yahoo! Groups > Feel better with fiber. > > > > . > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Loest boltzero@...> wrote: Awhile back when I working in the security industry, during the Suzane Summers " Thigh Master " reign. One of our dispatchers said she had been using hers for about a month, and could, " Pop a basket ball " . Every man in the room took a few steps back, that was a scary prospect. --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 Here is a copy of the email I just sent to CNN.com/health- On May 12th is Fibromyalgia Awareness Day. I am on a yahoo group called " Fibromyalgia_Support_Group " . I have talked with and listened to many with the same trouble, aches, chronic pain all over, just to be ignored by people because we show no signs of anything wrong. We have all been belittled and some even called lazy, even tho, this beast has a hold of us and the chronic pain, the fatigue, and the mind fogs we all have-that is absolutely has to stop. We are all good decent people for the most part..fighting most of the time alone, a disease, that is not recognized by anyone with exception of us that are suffering from it. Now..I would love to see or hear of CNN Health doing a segment on it. Especially with FM awareness day approaching. As a matter of fact, I would love to invite you to join our group for more info, and some real life people, with real life experiences with this. It is sad..that as a people..that we have to hear such bad things, as much pain we are in. NO, I promise you--it is NOT all in our heads as it has been said so many times, by doctors, family, friends..etc. But, then again..maybe we should consider it may just be in our heads, because, that is where our pain transmitters that are somehow crossed, or short circuited are, isn't it? By the way...this support group has over a thousand members in it, and the majority are suffering, and a few are there to actually support family members and friends, spouses, etc..that are suffering. Any acknowledgement you could give to us, would deeply be appreciated, to get the word out. Thank You for Your Time and Attention- . Is a start! Hope it helps. Awhile back when I working in the security industry, during the Suzane > Summers " Thigh Master " reign. > > One of our dispatchers said she had been using hers for about a month, > and could, " Pop a basket ball " . > > Every man in the room took a few steps back, that was a scary prospect. > > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Hi !! Any way we can get the word out will be a blessing for us all. If we have to stand and sit on a street corner with placards saying " We are being ignored and we won't take it anymore " or " Wake up Congress and Feel our Pain " . I am hoping that I get a response from the television show producers. I would like to gather as many of us as possible to appear on the show. I like the clothespin idea too!! , my doctor just put me on Zanaflex for night. It has helped me sleep and wake up not hurting as much. I will have sleepless nights and if I see you on yahoo messenger, we can chat until our eyes get blurry and we are ready to sleep. Hugs, Annie p.s. the offer to chat is always open, but just like all of us, sometimes I have to go lay down to slow down the pain!!! magicaldream411 magicaldream411@...> wrote: Hey Neighbor! Not sure about the idea..I liked it..LOL I am now, as we are speaking, emailing CNN and looking for Gupta's email. He seems like he is really aware and conscious of others illnesses, pains, etc. So..(might ask him to join us here, for some real feedback). Hope your storms overnight was managable. Here..not so bad. The weather changes back and forth..is a danged killer tho. Aches, pains are abundant to say the least. Tired most of the days anyway, so I move slowly, but some how get what needs done, done. The rest..lol, can wait til hubby wants to help. I have to call my doctor on monday, to see about some kinda something for the harsh kinda pains that the lyrica doesn't take care of. It doesn't take care of some. Don't get me wrong..on a regular day..I can tolerate ( I do have a high tolerance for pain, so when I complain, I am seriously doing some major hurting.). Cursing doesn't help either. haha, I usually have something not so nice to say everytime I move. Praying..well..helps-at least to get my mind off my hurts. I get so tired of hurting tho. I think that is what bothers me the most-not one day goes by that I am not hurting..and..well..it gets on my nerves bad. This is most definitely a demon I would like to somehow cast back into hell!!!!!!! Hard to explain, but makes me just wanna scream, and keep screaming ...til it stops! Anyway..gonna stop with the rambling now. Thanks for the yahoo add. We shall chat long into the night, some nights..deal? - In Fibromyalgia_Support_Group , Annie G wrote: > > Hi !! > > First, howdy neighbor!! I live in Nashville, TN. Thanks for telling your story. I also like your idea. We just have to get our heads together (gently) and see what we can come up with. > > Hugs, > annie > Change settings via the Web (Yahoo! ID required) > Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional > Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe > > > Recent Activity > > 27 > New Members > > 12 > New Photos > > 3 > New Files > > Visit Your Group > Meditation and > Lovingkindness > A Yahoo! Group > to share and learn. > > Yahoo! Health > Heartburn or Worse > What symptoms > are most serious? > > All-Bran > Day 10 Club > on Yahoo! Groups > Feel better with fiber. > > > > . > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Way to go !!!!! Standing/sitting ovation!!! Please let us know what kind of response you get. Hugs, Annie in TN magicaldream411 magicaldream411@...> wrote: Here is a copy of the email I just sent to CNN.com/health- On May 12th is Fibromyalgia Awareness Day. I am on a yahoo group called " Fibromyalgia_Support_Group " . I have talked with and listened to many with the same trouble, aches, chronic pain all over, just to be ignored by people because we show no signs of anything wrong. We have all been belittled and some even called lazy, even tho, this beast has a hold of us and the chronic pain, the fatigue, and the mind fogs we all have-that is absolutely has to stop. We are all good decent people for the most part..fighting most of the time alone, a disease, that is not recognized by anyone with exception of us that are suffering from it. Now..I would love to see or hear of CNN Health doing a segment on it. Especially with FM awareness day approaching. As a matter of fact, I would love to invite you to join our group for more info, and some real life people, with real life experiences with this. It is sad..that as a people..that we have to hear such bad things, as much pain we are in. NO, I promise you--it is NOT all in our heads as it has been said so many times, by doctors, family, friends..etc. But, then again..maybe we should consider it may just be in our heads, because, that is where our pain transmitters that are somehow crossed, or short circuited are, isn't it? By the way...this support group has over a thousand members in it, and the majority are suffering, and a few are there to actually support family members and friends, spouses, etc..that are suffering. Any acknowledgement you could give to us, would deeply be appreciated, to get the word out. Thank You for Your Time and Attention- . Is a start! Hope it helps. Awhile back when I working in the security industry, during the Suzane > Summers " Thigh Master " reign. > > One of our dispatchers said she had been using hers for about a month, > and could, " Pop a basket ball " . > > Every man in the room took a few steps back, that was a scary prospect. > > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Annie- Lord knows I sure need something to help me sleep. I wasn't able to go to bed until 5am today, and looky--now it is 9:00 am. Resting is absolutely something this beast doesn't let me do. I will lay back down in a few minutes, and I guarentee I will be back up at 11. Is sometimes pain that will wake me up..but then again sometimes,, my eyes just open..either way..I sleep in two hour intervals. I have kept a journal and everytime I wake up, I write the time down..and if I can sleep three hours straight, it is a miracle-usually it is within two hours. The frustration overwhelms me, I want to hit something I am so tired..tired of feeling like this. Is it any wonder why I have anxiety attacks? I sit with my face in my hands, and keep quiet, but I just wanna scream, cuss, hit, kick, throw something!! However, I know it won't do any good..I am just-oh--I am sure you all know the aggravation, the aggitation that goes along with not feeling yourself. I have always been a person that when I see something that needs doing, I do it..no problem. I have always been active, hyper..happy to just be blessed enough to do things, help people-and now..if I do..I have to do slow, I have to stop as not to over-do..but I over-do alot...even through my pain, I try to push on through..just to feel like me..and accomplish something..making some old lady smile, is the light of my life..making my hubby grin or laugh..yeah..that is the ultimate..but it is too much for me anymore. I need help with anything I do, planting flowers in my flower bed..yep, I need someone to help me, because I just cannot do it. MAKES ME SICK! MAKES ME MAD! The " me " I used to be, I can't be now, and I will not be in the future either...so not only am I fighting the pain..and Lord it is bad today--but I am having a big fight with depression..and I just refuse to let this take over my life-but what can I possibly do to stop it?? Pain meds..have never been one of my favorites. They make me feel like a zombie or something..for sure they make me unable to focus,and so NOT alert, and now, seems like I am being forced to reach out to my doctor for them. I literally have no control over this evil thing that has just welcomed itself into my life uninvited....and took over. ::cries:: Well now..bitching surely doesn't help, I think it kinda makes me hurt more. Think I am laying on couch under blankie with My chichuahua and try to nap again. Until later.. T > > Hi !! > > Any way we can get the word out will be a blessing for us all. If we have to stand and sit on a street corner with placards saying " We are being ignored and we won't take it anymore " or " Wake up Congress and Feel our Pain " . > > I am hoping that I get a response from the television show producers. I would like to gather as many of us as possible to appear on the show. I like the clothespin idea too!! > > , my doctor just put me on Zanaflex for night. It has helped me sleep and wake up not hurting as much. > > I will have sleepless nights and if I see you on yahoo messenger, we can chat until our eyes get blurry and we are ready to sleep. > > Hugs, > Annie > > p.s. the offer to chat is always open, but just like all of us, sometimes I have to go lay down to slow down the pain!!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Thank You, Thank You--:bowing(kinda).. i will let ya know if and when they decide to reply!! For sure! Wonder, if more than just me, emails them..if it will make them more apt to do something and not think i am just a crazy old lady?? OH..I also emailed my cousin. He works for the Knoxville News Sentinel(local paper)--he is on the editoral staff there...and I asked a favor--heehee..if he would do some research on FMS as well, and an article maybe..to let people see that none of us are worthless works..that we all have family, friends, lives..some work..etc... His email was quite long, as when I get started..I make sure that through my words, people can almost feel the pain I go through, personally-haha..is like I get on my soap box..and I don't get off it quick! I have learned..when you speak about it..people tend to not listen..but, when you email..send letters, etc..they will read them. So alot of what is said, is absorbed. Anyway--we will see if it does any good. I intend on emailing more later in the day/evening..I am going to accomplish this...and see it through. Soft Hugs to all.. T > Here is a copy of the email I just sent to CNN.com/health- > > On May 12th is Fibromyalgia Awareness Day. I am on a yahoo group > called " Fibromyalgia_Support_Group " . I have talked with and listened > to many with the same trouble, aches, chronic pain all over, just to > be ignored by people because we show no signs of anything wrong. We > have all been belittled and some even called lazy, even tho, this > beast has a hold of us and the chronic pain, the fatigue, and the mind > fogs we all have-that is absolutely has to stop. > We are all good decent people for the most part..fighting most of the > time alone, a disease, that is not recognized by anyone with exception > of us that are suffering from it. > Now..I would love to see or hear of CNN Health doing a segment on it. > Especially with FM awareness day approaching. > As a matter of fact, I would love to invite you to join our group for > more info, and some real life people, with real life experiences with > this. > It is sad..that as a people..that we have to hear such bad things, as > much pain we are in. NO, I promise you--it is NOT all in our heads as > it has been said so many times, by doctors, family, friends..etc. > But, then again..maybe we should consider it may just be in our heads, > because, that is where our pain transmitters that are somehow crossed, > or short circuited are, isn't it? > By the way...this support group has over a thousand members in it, and > the majority are suffering, and a few are there to actually support > family members and friends, spouses, etc..that are suffering. > > Any acknowledgement you could give to us, would deeply be appreciated, > to get the word out. > > Thank You for Your Time and Attention- > . > > Is a start! Hope it helps. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Hey , lurk no more....we need you!! /Mi Re: WE NEED people to speak out? LETS DO IT... Hi! I am a lurker here for the mostpart, but on this post, I have to agree. A bit about me, then..my idea, if it is alright. I am a 44 year old woman, with syndrome X(pre-diabetes, metabolic disorder). I have finally been diagnosed with FM by several doctors, that finally listened to me. Others, wanted to treat me for pulled or sprained muscles, five me flexiril(sp), and let me be done. As we all know, that does not help or ease the pain and discomfort at all. I have been on Cymbalta for years for depression/anxiety, and have been on Lyrica with it for about three months now. 100mg 3 times a day, and I suspect that will increase soon. My kids are grown,and I married a wonderful man last year. 7-7-07. Have been married before and finally found one that is decent to me, and considerate. My pain, although it is all day everyday, I have to say..it really gets worse when I try to lay down to rest. OMG--it feels as if my muscles are twisting around every bone in my body, and shrinking to boot. My face even hurts. Needless to say, I am awake quite late, as I cannot rest thru it. Thinking that is what explains my being tired all the time. And the foggy way my thinking is...but, both could just be this damned beast that is taking away my livlihood. Now..the speaking out.. I was reading, and thinking..and maybe, we should get to these major personalities as a group. Hell, all of them..Larry King, Oprah..news organizations..and..what about dear old Dr. Gupta on CNN? Someone, that has the knowledge..and appropriate wording..should..I think..write out a petition before awareness day. WE CAN ALL SIGN IT-family and friends too..and then..email it to those places..and get the word out. And we should make sure they all know..that we expect more than a 30 sec. commercial for a drug manufacturer. We need to get attention, and we should all have the respect of normal individuals with lives to live even tho we have no cuts or bruises. Oh. I apologize for the swearing..but, sometimes, I just cannot emphasize my communitive skills without a " bleep " here and there. I by no means want to offend not one of you. Soft Hugs to ya all (from Knoxville, TN) > > > > I just wrote a response to 's comments. He is right on the > money. What can we do in the future to put together some kind of > awareness type operation for Fibromyalgia? ?? The commercials are > short and are a beginning but do no justice. And just think, > Fibromyalgia Awarenss day is coming up shortly. But do you think > anyone will hear about it except for a very few? The answer is NO. > It won't be advertised and no one will know it except those of us who > have it. I am just stating how this disease gets no coverage or gets > the WRONG coverage. > > > > NOW, THAT SAID, we have a very diverse group of people here with > knowledge and creativity from every walk of life. We have some very > damn SMART people here too with alot of intelligence and education > backgrounds. How do we come together in some way to figure out how > to get the REAL word out about fibro? I will help any way I can. If > I could I would talk to a crowd of a million about this disease. I > am a registered nurse who had years of experience before fibro took > ahold of me. I DID NOT even know what fibromyalgia was until I got > very ill with it. I had not even heard the word " FIBROMYALGIA " . > What does that tell us? The disease is behind the lines, it is > discounted, it is NOT taught in nursing schools. It was not taught > in medical school either until maybe the very recent time. > > > > Come on people. Help me. Is there any way we can ban together and > come up with something to educate people about this? I mean the real > thing, not the stupid articles that make us look like hypochondriacs > and lunatics. Not the STUPID articles that say " It does NOT get > worse " . > > > > That said, it will not happen overnight. But think together and > lets at least try to come up with something. (We may not be able to, > but lets think on it) > > > > love and hugs to my group of friends, > > Debra V. > > > > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo..com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2008 Report Share Posted May 4, 2008 Aw..geez..I will lurk no more! ::smiles:: Nice to be needed, and wanted..and understood. Hugs to all ~ > > Hey , lurk no more....we need you!! > /Mi > Re: WE NEED people to speak out? LETS DO IT... > > > Hi! I am a lurker here for the mostpart, but on this post, I have to > agree. > > A bit about me, then..my idea, if it is alright. > > I am a 44 year old woman, with syndrome X(pre-diabetes, metabolic > disorder). I have finally been diagnosed with FM by several doctors, > that finally listened to me. Others, wanted to treat me for pulled or > sprained muscles, five me flexiril(sp), and let me be done. As we all > know, that does not help or ease the pain and discomfort at all. I > have been on Cymbalta for years for depression/anxiety, and have been > on Lyrica with it for about three months now. 100mg 3 times a day, > and I suspect that will increase soon. > My kids are grown,and I married a wonderful man last year. 7-7-07. > Have been married before and finally found one that is decent to me, > and considerate. > > My pain, although it is all day everyday, I have to say..it really > gets worse when I try to lay down to rest. OMG--it feels as if my > muscles are twisting around every bone in my body, and shrinking to > boot. My face even hurts. Needless to say, I am awake quite late, as > I cannot rest thru it. Thinking that is what explains my being tired > all the time. And the foggy way my thinking is...but, both could just > be this damned beast that is taking away my livlihood. > > Now..the speaking out.. > I was reading, and thinking..and maybe, we should get to these major > personalities as a group. Hell, all of them..Larry King, Oprah..news > organizations..and..what about dear old Dr. Gupta on CNN? > Someone, that has the knowledge..and appropriate wording..should..I > think..write out a petition before awareness day. WE CAN ALL SIGN > IT-family and friends too..and then..email it to those places..and get > the word out. And we should make sure they all know..that we expect > more than a 30 sec. commercial for a drug manufacturer. We need to > get attention, and we should all have the respect of normal > individuals with lives to live even tho we have no cuts or bruises. > > Oh. I apologize for the swearing..but, sometimes, I just cannot > emphasize my communitive skills without a " bleep " here and there. I > by no means want to offend not one of you. > > Soft Hugs to ya all (from Knoxville, TN) > > Quote Link to comment Share on other sites More sharing options...
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