Re: No Worse??--To -A question

[Guest guest]

, how you say the truth. It is true. No one on the outside looking in can

tell us how this crap will act and how it makes us feel. And they certainly are

wrong when they say it " does not get worse " . I say a big BS. (I don't want to

use the word so I will use the letters). They are full of it. I am tired of

reading and hearing information that is false. I know just from talking to a

few hundred people on this site the last 2 years that it does progress. I know

it from my own experience also.

, you seem like a smart man. Do you have any suggestions or any ideas on

how we can get some of our people to be able to speak to the public?????? I

mean everything has a beginning. There are spokespersons for just about every

other thing out there. Think on it my friend.

hugs to ya,

Debra V.

> Good Morning Everyone,

> I have a question... In all the books I've read and web-sites I've

> checked out, they say that you will get " no worse " with fibro. Some

> days will just be better or worse than others. But my symptoms

> gradually kept getting worse, that's why I eventually went to the

> doctor. And now, every now and then, new symptoms seem to creep up on

> me. Does that make sense? Is anyone else experiencing the same things

> and did your doctor tell you that you would get " no worse " ?

> Thanks and I hope everyone has a great Friday!

> Lots of Hugs,

> Kristi

> Breezewood, PA

>

>

The concept of " You will get no worse " is simply a false statement.

Any author or webmaster that -has- Fibromyalgia already has first hand

knowledge of this.

The Fibromyalgia community is in dire need of spokespersons and

activists who -have- the syndrome, not outsiders who extend a

gratuitous " I know how you feel " . There is no way they could even

begin to grasp how you and I feel living with Fibromyalgia.

Throw in the aging process in the mix of Fibromyalgia symptoms, and

sure you might not die directly from Fibromyalgia but the increased

demands and stress factors on your body may " shave off " a few years.

I do everything I can to educate myself on the " facts " of Fibro and

weight them against the " claims " of outsiders, those who do not have

the syndrome and can directly tell who's right.

In a few short years I went from a vibrant active individual to a

virtual " meat sack " .

I really wonder at what point " you won't get any worse " is,...when you

hit rock bottom?

Or you won't get any worse than,...what?

________________________________________________________________________________\

____

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know-it-all with Yahoo! Mobile. Try it now.

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[Guest guest]

,

yes please help us we do need a spokesperson to speak out, also one to help with

diability.No one should have to go thru all that we do to get it. Some one needs

to write a book from all our experiences. We all are different and different

methods and medas work onn each of us differently.Is anyone willing to speak up

or write. I know it would be hard as most of us are barley surving

finacially.Della

Re: No Worse??--To -A question

, how you say the truth. It is true. No one on the outside looking in can

tell us how this crap will act and how it makes us feel. And they certainly are

wrong when they say it " does not get worse " . I say a big BS. (I don't want to

use the word so I will use the letters). They are full of it. I am tired of

reading and hearing information that is false. I know just from talking to a few

hundred people on this site the last 2 years that it does progress. I know it

from my own experience also.

, you seem like a smart man. Do you have any suggestions or any ideas on

how we can get some of our people to be able to speak to the public?????? I mean

everything has a beginning. There are spokespersons for just about every other

thing out there. Think on it my friend.

hugs to ya,

Debra V.

> Good Morning Everyone,

> I have a question... In all the books I've read and web-sites I've

> checked out, they say that you will get " no worse " with fibro. Some

> days will just be better or worse than others. But my symptoms

> gradually kept getting worse, that's why I eventually went to the

> doctor. And now, every now and then, new symptoms seem to creep up on

> me. Does that make sense? Is anyone else experiencing the same things

> and did your doctor tell you that you would get " no worse " ?

> Thanks and I hope everyone has a great Friday!

> Lots of Hugs,

> Kristi

> Breezewood, PA

>

>

The concept of " You will get no worse " is simply a false statement.

Any author or webmaster that -has- Fibromyalgia already has first hand

knowledge of this.

The Fibromyalgia community is in dire need of spokespersons and

activists who -have- the syndrome, not outsiders who extend a

gratuitous " I know how you feel " . There is no way they could even

begin to grasp how you and I feel living with Fibromyalgia.

Throw in the aging process in the mix of Fibromyalgia symptoms, and

sure you might not die directly from Fibromyalgia but the increased

demands and stress factors on your body may " shave off " a few years.

I do everything I can to educate myself on the " facts " of Fibro and

weight them against the " claims " of outsiders, those who do not have

the syndrome and can directly tell who's right.

In a few short years I went from a vibrant active individual to a

virtual " meat sack " .

I really wonder at what point " you won't get any worse " is,...when you

hit rock bottom?

Or you won't get any worse than,...what?

____________ _________ _________ _________ _________ _________ _

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now. http://mobile. yahoo.com/

;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ