Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 Okay! I guess I have missed something. When is Fibro awareness day? Debra B WE NEED people to speak out? LETS DO IT... I just wrote a response to 's comments. He is right on the money. What can we do in the future to put together some kind of awareness type operation for Fibromyalgia? ?? The commercials are short and are a beginning but do no justice. And just think, Fibromyalgia Awarenss day is coming up shortly. But do you think anyone will hear about it except for a very few? The answer is NO. It won't be advertised and no one will know it except those of us who have it. I am just stating how this disease gets no coverage or gets the WRONG coverage. NOW, THAT SAID, we have a very diverse group of people here with knowledge and creativity from every walk of life. We have some very damn SMART people here too with alot of intelligence and education backgrounds. How do we come together in some way to figure out how to get the REAL word out about fibro? I will help any way I can. If I could I would talk to a crowd of a million about this disease. I am a registered nurse who had years of experience before fibro took ahold of me. I DID NOT even know what fibromyalgia was until I got very ill with it. I had not even heard the word " FIBROMYALGIA " . What does that tell us? The disease is behind the lines, it is discounted, it is NOT taught in nursing schools. It was not taught in medical school either until maybe the very recent time. Come on people. Help me. Is there any way we can ban together and come up with something to educate people about this? I mean the real thing, not the stupid articles that make us look like hypochondriacs and lunatics. Not the STUPID articles that say " It does NOT get worse " . That said, it will not happen overnight. But think together and lets at least try to come up with something. (We may not be able to, but lets think on it) love and hugs to my group of friends, Debra V. ____________ _________ _________ _________ _________ _________ _ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 May 12 WE NEED people to speak out? LETS DO IT... I just wrote a response to 's comments. He is right on the money. What can we do in the future to put together some kind of awareness type operation for Fibromyalgia? ?? The commercials are short and are a beginning but do no justice. And just think, Fibromyalgia Awarenss day is coming up shortly. But do you think anyone will hear about it except for a very few? The answer is NO. It won't be advertised and no one will know it except those of us who have it. I am just stating how this disease gets no coverage or gets the WRONG coverage. NOW, THAT SAID, we have a very diverse group of people here with knowledge and creativity from every walk of life. We have some very damn SMART people here too with alot of intelligence and education backgrounds. How do we come together in some way to figure out how to get the REAL word out about fibro? I will help any way I can. If I could I would talk to a crowd of a million about this disease. I am a registered nurse who had years of experience before fibro took ahold of me. I DID NOT even know what fibromyalgia was until I got very ill with it. I had not even heard the word " FIBROMYALGIA " . What does that tell us? The disease is behind the lines, it is discounted, it is NOT taught in nursing schools. It was not taught in medical school either until maybe the very recent time. Come on people. Help me. Is there any way we can ban together and come up with something to educate people about this? I mean the real thing, not the stupid articles that make us look like hypochondriacs and lunatics. Not the STUPID articles that say " It does NOT get worse " . That said, it will not happen overnight. But think together and lets at least try to come up with something. (We may not be able to, but lets think on it) love and hugs to my group of friends, Debra V. ____________ _________ _________ _________ _________ _________ _ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ ____________ _________ _________ _________ _________ _________ _ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 Hi Debra, I'm pretty sure that it's May 12th. I saw it on the NFA web-site. Hugs, Kristi > > Okay! I guess I have missed something. When is Fibro awareness day? > Debra B > > > WE NEED people to speak out? LETS DO IT... > > > I just wrote a response to 's comments. He is right on the money. What can we do in the future to put together some kind of awareness type operation for Fibromyalgia? ?? The commercials are short and are a beginning but do no justice. And just think, Fibromyalgia Awarenss day is coming up shortly. But do you think anyone will hear about it except for a very few? The answer is NO. It won't be advertised and no one will know it except those of us who have it. I am just stating how this disease gets no coverage or gets the WRONG coverage. > > NOW, THAT SAID, we have a very diverse group of people here with knowledge and creativity from every walk of life. We have some very damn SMART people here too with alot of intelligence and education backgrounds. How do we come together in some way to figure out how to get the REAL word out about fibro? I will help any way I can. If I could I would talk to a crowd of a million about this disease. I am a registered nurse who had years of experience before fibro took ahold of me. I DID NOT even know what fibromyalgia was until I got very ill with it. I had not even heard the word " FIBROMYALGIA " . What does that tell us? The disease is behind the lines, it is discounted, it is NOT taught in nursing schools. It was not taught in medical school either until maybe the very recent time. > > Come on people. Help me. Is there any way we can ban together and come up with something to educate people about this? I mean the real thing, not the stupid articles that make us look like hypochondriacs and lunatics. Not the STUPID articles that say " It does NOT get worse " . > > That said, it will not happen overnight. But think together and lets at least try to come up with something. (We may not be able to, but lets think on it) > > love and hugs to my group of friends, > Debra V. > > ____________ _________ _________ _________ _________ _________ _ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ > > > > ______________________________________________________________________ ______________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2008 Report Share Posted May 3, 2008 I have decided to take an active role in awareness day. I am going to put a table at the local WalMart during lunch and hand out brochures, pins, stickers and try to get some donations out of people to send in to the NFA. Plus, I decided to take part in the " virtual " walk for the Walk of FAME on the 10th put on by the NFA. We will see what happens! > > May 12 > > > WE NEED people to speak out? LETS DO IT... > > I just wrote a response to 's comments. He is right on the money. What can we do in the future to put together some kind of awareness type operation for Fibromyalgia? ?? The commercials are short and are a beginning but do no justice. And just think, Fibromyalgia Awarenss day is coming up shortly. But do you think anyone will hear about it except for a very few? The answer is NO. It won't be advertised and no one will know it except those of us who have it. I am just stating how this disease gets no coverage or gets the WRONG coverage. > > NOW, THAT SAID, we have a very diverse group of people here with knowledge and creativity from every walk of life. We have some very damn SMART people here too with alot of intelligence and education backgrounds. How do we come together in some way to figure out how to get the REAL word out about fibro? I will help any way I can. If I could I would talk to a crowd of a million about this disease. I am a registered nurse who had years of experience before fibro took ahold of me. I DID NOT even know what fibromyalgia was until I got very ill with it. I had not even heard the word " FIBROMYALGIA " . What does that tell us? The disease is behind the lines, it is discounted, it is NOT taught in nursing schools. It was not taught in medical school either until maybe the very recent time. > > Come on people. Help me. Is there any way we can ban together and come up with something to educate people about this? I mean the real thing, not the stupid articles that make us look like hypochondriacs and lunatics. Not the STUPID articles that say " It does NOT get worse " . > > That said, it will not happen overnight. But think together and lets at least try to come up with something. (We may not be able to, but lets think on it) > > love and hugs to my group of friends, > Debra V. > > ____________ _________ _________ _________ _________ _________ _ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ > > > ____________ _________ _________ _________ _________ _________ _ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. http://mobile. yahoo.com/ ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ > > Quote Link to comment Share on other sites More sharing options...
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