Bras, Hadicapped parking, Pen Pals, Doctors

May 3, 2008

Wal mart is now has bras to size 50DDD. I knoe becuase I used to have

to sprcial order mine. I wear a 44DDD and it is so nice to finally

buy something in a store.

I don't know what I would do without handicap parking. My doc never

had a problem with giving me anything like that. Even when things

were at the worst he fought with the insurance company to get me a

wheel chair. It has been a life saver. I was trapped in the house and

he wanted me to be able to get out. They cost a fourtune. Mine was

8500.00 Thank God for insurance. It will go anywhere. My kids do a

lot of sports and he wanted me to be able to get to the soccer fields

and football fields. What is fun is they pay for the chair and not

for anyway to transport the thing. My husband went to Lowes and got

the ends for a ramp that you attach to boards and we do own a truck

so at least we can get it around. It was so nice last year we went to

Kings Dominion which I never tought I could do. I know people look at

me funny becuae you cant see anything physically wrong. But between

the lupus and the fibro I am a mess.

I need to get to the store so I can get writting supplies. I love to

write. Have kept a journal for years.

Only a few more days to the doctors. I go on Tuesday and I swear the

mass has grown since I saw my PC.

May 3, 2008

Bra size hasnt been too much an issue for me these days, but i have

ordered mine online for a long time, I got tired of standing in

stores. I do most of my shopping online. Shopping + fibro + 3 kids

under 8 + navy husband = nervous breakdown. Lol.

on the topic of people looking at you funny for being on a wheel chair

but nothing phsyically visible being wrong..

similar idea, different situation.

My daughter has 3 different rare medical disorders, all metabolic/

genetic/hormonal, there is nothing physically wrong in the sense that.

she doesnt have downs syndrome.. her feet are on straight.. etc .. its

all inside .. But she is a very challenging child especially for

someone in my situation, and on the occasions that people find out

about these disorders, every time garaunteed, the first thing out of

their mouths are " Wow but shes so normal!! " .............................

It goes back to because its not visibly , blatantly, staring people in

their face... they assume its not real, or serious.

I have a friend who adamantly insists that " She just wants you to

think shes special so she gets more attention " well yes, shes special,

and my other two are special too... its not youngest child

syndrome.... and maybe its the impatient, irritable part of me, but

every time someone says that to me i want to pull her medical chart

out and her lab reports, and shove them in their face. This poor kid

has two volumes of medical files, and four specialists+ped that

follows her on a regular basis, but.., yea. I could go on a rant about

that. LOL

I have been only semi here for posts, still getting over this flare up

and allergies i got from the stupid volcano crud that blew in, so I'm

not entire sure what the lump is you have but I hope it is benign/not

serious! Prayers going with you Tuesday, please let us know.

I have a friend who had lupus, i know she went through hell.. I cant

imagine having both i know what I feel like most days, and what she

felt like most days.. Hope for some good days ahead, we all need

those.

-Nina

> Wal mart is now has bras to size 50DDD. I knoe becuase I used to have

> to sprcial order mine. I wear a 44DDD and it is so nice to finally

> buy something in a store.

> I don't know what I would do without handicap parking. My doc never

> had a problem with giving me anything like that. Even when things

> were at the worst he fought with the insurance company to get me a

> wheel chair. It has been a life saver. I was trapped in the house and

> he wanted me to be able to get out. They cost a fourtune. Mine was

> 8500.00 Thank God for insurance. It will go anywhere. My kids do a

> lot of sports and he wanted me to be able to get to the soccer fields

> and football fields. What is fun is they pay for the chair and not

> for anyway to transport the thing. My husband went to Lowes and got

> the ends for a ramp that you attach to boards and we do own a truck

> so at least we can get it around. It was so nice last year we went to

> Kings Dominion which I never tought I could do. I know people look at

> me funny becuae you cant see anything physically wrong. But between

> the lupus and the fibro I am a mess.

> I need to get to the store so I can get writting supplies. I love to

> write. Have kept a journal for years.

> Only a few more days to the doctors. I go on Tuesday and I swear the

> mass has grown since I saw my PC.

>

May 3, 2008

I surely hope you are wrong about the mass getting bigger. You are in my

thoughts.